About Aria - Aria MacDonald

About Aria

Aria McDonald

Aria MacDonald

Aria is an amazing four year old little girl from Manurewa, Auckland, New Zealand.  Aria received her gift of life on the 6th of February 2010, a small bowel, kidney, liver and pancreas transplant at the Nebraska Medical Center, in Omaha, USA.  Sadly the new intestine has rejected and Aria was relisted on the organ transplant list on the 27th of April 2010.  Aria received her 2nd gift of life on Mothers Day 9th May 2010.

Aria’s story begins after birth when she was diagnosed with a very rare condition of the bowel known as total intestinal aganglionosis or total Hirschsprung’s disease. There is no cure and it means she will never be able to digest food.

Total intestinal aganglionosis is where there are no nerves cell throughout the entire bowel to squeeze the food along to be digested. Hirschsprungs is common where a portion of the bowel contains no nerves and can be fixed by removing the effected portion of bowel and reconnecting the healthy remaining bowel. Aria’s form of the disease means this is not an option because there is no healthy bowel.

This news was devastating to her parents Hamish and Anita who were told that nothing could be done to save their baby. It looked like the end of the journey for Aria but really it was the start of something amazing. Dear friends visited the next day and brought hope. That hope was the possibility of a bowel transplant and also the idea of Aria going home on TPN (total parental nutrition).

Aria has now lives at home with Mum and Dad and receives her ‘food’ thru her Hickman line in her shoulder directly into her blood stream. She also has a gastrostomy that drains her stomach of the bile that has no where to go.

Life is not straight forward however. Aria faces the threat of line infections as bugs can easily get into Aria’s blood stream thru her Hickman line. Connecting her to TPN each night must be done under sterile conditions to avoid this. TPN is also very hard on the liver. For babies that live only on TPN the risk of liver failure is high leading to death.  Up until December 2008 Aria had perfect liver numbers but now her liver is struggling.

There is also a problem with Aria’s kidneys.  Her condition is because of a genetic flaw in her DNA which has also caused her kidneys to be unusually small.  This causes abnormal kidney function as her small kidneys are struggling to keep up with her growth.  Because of this she will also need a kidney transplant.

Bowel Transplant

Aria’s only hope of long term survival and a chance to eat rests in small bowel, liver, pancreas and kidney transplant.  These organs have come from a single child donor whose family made a brave and difficult decision to donate life at a desperately terrible time.  This operation is not done in NZ or Australia but the best place is America with the cost of $1-$2 million US dollars. It is still a risky operation but the odds of survival are getting better as advances in medical knowledge continue.

Her family and friends are busy fundraising  for the cost of living in America with no income for 1-2 years.  The NZ Government/tax payer is covering the cost of Aria’s medical care and accommodation.  Please consider some of the many ways in which you can help out or support Aria and her family.

Aria is a bright smiley little girl who handles the trials in her life amazingly well. Her life is a precious gift from God who is taking the MacDonald family on a journey according to His great purposes.

83 Responses to “About Aria”

  1. Jo Lund says:

    Good luck Aria! Hamish and Anita, we wish you all the best in helping your beautiful little girl. Our thoughts and prayers are with you.
    Loe and light
    Jo, Rick, Cadeyrn (6), Tallen (5), Dallandra (3) and Alira (10mths).
    xxx

  2. Randy Quick says:

    God has blessed you with a beautiful little girl and God will take care of her.

  3. Heather says:

    Bless you, your family, and your beautiful Aria…

    My daughter Katie was born with HD and diagnosed at 8 weeks of age. She lost 18.5 cm of colon after pull-through surgery.

    Aria and your family will be in my family’s prayers…

    Heather

  4. Jeremy says:

    God Bless from HuskerNation.

  5. Judy says:

    God bless you wee Aria, and may I say you look like a Macdonald, really beautiful , I wish you all the best.

  6. EVE GILKES says:

    30.8.09
    I am leading worship in our church tomorrow, and wanted to back up what I was saying, and strength for the day bright hope for tomorrow came into my head …….. so I googled and your story came up.
    You have a beautiful daughter ……… I pray His strength for you every day, and a bright hope of healing for tomorrow.
    All things are possible with Him.
    God bless all of you ……… delighted to see you have another child, Boy or girl? I am sorry I cannot tell by the name alone.
    With love
    Eve

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  8. kristian says:

    helllllooooooo

  9. Mia says:

    Great article and great site. I know Im not a perfect parent so Im always looking for great ideas and tips on how to improve.

  10. JASMYNE says:

    Wow you are an absolute beautiful girl, look at those eyes,! god bless you sweetheart, keep going strong.

    xox

  11. Belinda says:

    Sending lots of prays for little Aria and her family. She is beautiful. I am from Liver Families and wanted to show you my support. My son has Biliary Atresia.
    We are from Australia, and my mother and step father are in NZ right now on holidays, my mum just ended up in hospital over there, she was very impressed with the hospital, said it was great. (Not that she wanted to be there!)
    Again…..sending prays.
    Belinda.

  12. Kristal says:

    Your little Aria is a true inspiration. My own Auria had a heart defect when she was born, in July 08.. which was corrected at 3 months old. I can only hope for as wonderful of an outcome as we have had, for your little Aria. Such a pretty little girl with such a beautiful name :) You are in our thoughts.

  13. Lisa Kinsella says:

    I watch out for Arias post everyday. I pray that she will continue to improve and you are all a testament to God’s glory and healing.

  14. Ron Crawford says:

    I have just found out about Aria and her family’s plight.
    Above my dining room table I have a photo of a beautiful sunset. The caption below it is, “Lord help me to understand that nothing is going to happen to me today, that you and I can’t handle together.” He has been with me during my kidney transplant and other major surgeries. I know He is beside you, to help you all through this tough time. May God Bless You.

  15. Gail says:

    I have just found out about Aria and her family on a program that was viewed this morning, it was called Attitude. I found it was just amazing the strength and courage of this little girl, and her parents. Our thoughts and heart go out to you all, god bless. xoxo.

  16. Mike says:

    I like Gail watched this mornings episode of Attitude, and saw a family with tremendous strength during a time of need. We are all watching and send our best wishes.

  17. David and Leigh Robins says:

    Hi Aria
    What a brave little girl!!! My wife Leigh and I watched you on TV “Attitude” last week.
    A big hi from Auckland New Zealand!!
    We wish you all the very best and have made a donation that can help.

    Regards

  18. Karen says:

    What an amazing little girl. I wish you all the best for the future.

  19. Ellen says:

    I just watched your programme on T.V. (Attitude) and I just wanted to say how extremely strong Hamish and Anita are! You an inspiration to other parents and families and my heart is filled with love and best wishes for you and Aria. I know you will stay strong and keep fighting for Aria and each other.

  20. Linda says:

    Aria has an enduring spirit and a hopefulness that shows she is here for a reason. By being open to the opportunity for greatness, great changes can happen. Strength comes with hope and faith. You have a lot of courage and love to sustain you. Best wishes for you and your little girl.

  21. Adrienne Jordan, Ngatea says:

    I also watched the programme and want to let you know how you touched my heart.Your strength and courage has made us re evaluate our lives and what is important. May it help you to know that we care so much and hope your little darling feels our thoughts and prayers and gets better soon. oxox

  22. Elizabeth Charleston says:

    I have been following Aria on the Attitude TV show. You are doing a mighty job. Stay strong – you have a lot of people in NZ wishing for a speedy recovery for your dear little girl.
    All the best. E.x

  23. Catherine TeMaiharoa says:

    hi i am twelve years old and i heard about you through my mum and i thought that was just way horrible so my mum and i came up with the idea of fundraising at work and school cause all we want to ever do is help and we hope everything goes according to plan
    We wish yous all the best…

  24. Jodie says:

    I saw your programme on tv yesterday and am just amazed at how brave you all are. You’ve got a lot on your shoulders and it must be really hard for you all. You’ve got a little fighter in Aria. She’s doing really well for such a little one. I just wanted to say keep going, keep fighting for your baby and know that we are praying for you back here in New Zealand. God be with you, xx

  25. Barbara says:

    I too watched the “Attitude” program last Sunday morning. What an inspiration you all are – your courage, strength and love for each other. Away from home and family it must be the hardest time. Little Aria is surely a gift from God and my prayers are with you all.
    God keep you in His arms of love

  26. Valmai says:

    Aria’s story last Sun morning really touched me, but above all your quiet faith and hope in our God shone through. What an amaazing story and what a wonderful testimony. I share a verse from Isaiah 41:10 which is a verse for a whole week – one phrase for each of seven days : -
    1)Fear not
    2)For I am with you
    3)Be not dismayed
    4)For I am your God
    5)I will help you
    6)I will strenghen you
    7)I will uphold you with my victorious right hand.

    May you continually be conscious of God’s faithfulness which is new every morning, His love which never ends and His presence which will hever leave you. There is nowhere that God isnt.

    Every blessing

    Valmai

  27. Shelley Sullivan says:

    Hey…we are friends you havent met yet, but in the family of God.
    Happy Birthday Princess Aria. May God be with you and your family today. May you feel his presence today. May you have peace, and joy and His strength.
    Bless you from Kaitaia, NZ.

  28. Jane Pine says:

    Just watched the Sunday programme in New Zealand on little Aria. What an amazing little girl and what amazing parents. Our prayers are with you in New Zealand.

  29. Rob says:

    I also watched the tv programme and 30 minutes later I am still in awe at the bravery of Aria, the total commitment of her parents and friends and tremendous skills and love given by the surgical team. May God bless you all.

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  31. HUIA says:

    Get well Aria your a fighter with all i heard and watched on tv, i wish you all the best

  32. Brooke menon says:

    Aria you such a dear wee girl im thinking of you and your parents :) xxxx

  33. Dianne says:

    Dear little Aria, a little Angel lent. I have followed your story with attitude, and could feel the pain of Mummy and Daddy. You were a brave little girl right until the end, but now you are at peace Aria. Such a Beautiful little girl to loose. Our family loves you. I cried this morning when I saw we had lost you. God Bless you Aria, and your devoted Parents. X

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“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11