A Big Deal
In about a months time Aria’s kidneys will be scanned again. This is a big deal. The outcome of the scan will hopefully give us the information we need to decide the timing of transplant. If they are in a good state i.e have grown since the last scan and are an ok size then transplant can be put off longer. If not then we will be heading overseas sooner rather than later.
Obviously our choice is to leave transplant for as long as possible to allow her time to grow and get stronger. Aria’s liver is great and she is on her first line which means she could possibility survive awhile on TPN. But on the other hand if her kidneys are in a bad state we would need to do the transplant soon.
So we wait and pray and hope as always. Her liver is a miracle in our books, will the kidneys be too!? I’ll keep you posted.
Thanks for your support, please say hi via comments or contact form 
Would love to hear from you.
2 Responses to “A Big Deal”
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Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 14 Jan at 11:25 am
I LOVE the website!!!
It’s hard to act like you’re working then.
I just about cried while I read through the past email messages you have sent out, especially the very first one – how far things have come
I had to calm myself down so that I wasn’t sitting crying at my desk
Love you all
# 20 Jan at 1:38 am
You have a gorgeous wee daughter! Thats such great news about her liver, I’m praying for good news about her kidneys too.
My daughter Elliott shares Aria’s birthday, and she sends Aria big cyber hugs and a sloppy cyber baby kiss