3rd of April - Aria MacDonald

3rd of April

6 Mar at 10:25 am by Anita MacDonald

Aria turned 9 months old on the weekend! Very exciting for us and only 3 months until she is one – wow. It is amazing how far she has come and it is encouraging to see her progress.

The 3rd of April is date we will find out the results of Aria’s kidney scan. Our doctor and specialist nurse are going to Mexico for a paediatric transplant conference. They will be speaking to people there regarding the best way forward for Aria in regards to transplant timing. They will hopefully have feedback for us on the 3rd too.  We suspect we will be off to transplant in 12-18months. So it is going to be a big day!

 We also got the results of Hamish and my DNA profiling.  They confirmed that Aria’s condition was definately not inherited from us which means a less than 1% risk any future child will have total HD.  So that is pleasing although a little sad because it still means any children Aria might have will have a 50% risk of inheriting the disease from her.

 We are having a great response from people and companies in terms of fundraising.  Thank you so much to those who have offered to support us and made donations.  We have a huge sum to raise so all support is gratefully received!!