Aria on the TV, Radio and the Web!!
Tonight our story appeared on the Close Up show. It is surreal to see yourself and your precious bubba on TV and hear your story played back to you. It was very well done and we are so grateful to Close Up who made it such a great experience.
We have already experienced first hand the kindness and support that Kiwis have shown Aria. We have a big journey ahead to raise the money we need to give Aria a chance at life. But we are on the road. Please see the Support page on our site if you can help us.
Did you miss it? Watch our story on the tvnz.co.nz website.
Also we where interviewed on breakfast radio this morning. Classic Hits in Wellington asked us to come on and chat about our wee girl with the Wellingtonians down there! I talked with Dave Smart and the team about our fight for Aria’s life and a chance for her to eat fairy bread!! Yum! Thanks to the lovely listeners for visiting our site.
Also YahooXtra have written a story about us. Click Here to have a read.
32 Responses to “Aria on the TV, Radio and the Web!!”
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Support Aria
There are many ways that you can support Aria.
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Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 17 May at 9:45 pm
Dear McDonald Family,
We watched close up tonight & were so interested in Aria’s story. You have such a beautiful little girl & we will be praying for your families journey ahead.
Kindest Regards & best wishes to you all,
Gareth & Sascha
# 17 May at 10:21 pm
Well done to such a beautiful little tv star!! The show really was presented beautifully! Keep on the road guys, you are doing awesome!
# 17 May at 10:28 pm
to a most loving set of parents,
You have been given a wonderful gift & I know that this gift would not have been given to you had you not been able to face & conquer this challenge, keep your hopes up amazing people.
# 17 May at 10:43 pm
Was moved by your story on Close up tonight. What a beautiful little girl you have been blessed with! Reminded me of how precious our children are, thanks for sharing your story. All the best, my thoughts and prayers are with you.
# 18 May at 1:04 am
I have added the audio from that clip to my chat room profile page so that people can hear about her and pray for her (and hopefully donate). It gets about 150 hits a week and most of those will be praying Christians.
Shame I couldn’t put the video up, cause the pics of Aria are so cute
# 18 May at 4:53 am
What a lovely program on Close Up which made me cry buckets of tears, I am Matisse’s grandmother, so understand well what you are all dealing with and the daily struggles that you encounter.
I hope and pray that you will receive the same support and financial help from the public and the Government, to bring about a miracle for your little girl, I also pray that it happens a lot sooner for Aria, so she can begin to live her life without constant pain and struggle, as any child should be entitled.
I am so pleased for you that you have the support from Jodee and Wayne, just sharing problems and information must make the long journey a little easier.
With all our very best wishes , we will be keeping an eye on Arias website and progress.
# 18 May at 8:38 am
I was really touched by your story on Close Up. We will be praying for you and try to ring up all the support we can get for you. As I fed my children yesterday I was humbled and so grateful for the little things that we are blessed with that we take for granted. Hang in there!!!
# 18 May at 12:20 pm
Fantastic!
Go Aria!
# 18 May at 1:53 pm
It is so cool that people all over the world are getting to hear and read Aria’s story. The kids recognised Aria on Close Up. God bless!
# 18 May at 3:27 pm
We watched your show on Close Up last night on T.V one…I was particulary interested as I too have been through hell and back (almost)….My baby girl passed away nearly 3 months ago form liver damage caused by her long term T.P.N…she was only 21 months old. It is good to see that the medical staff are finally taking a better role in taking proper care of all chidlren throughout N.Z!
# 18 May at 6:54 pm
hey guys
Just watched the show on the tvnz website now just due to being overseas.
Like the others, it’s just awesome the recongition and progress you guys are getting loads of exposure and i hope it’s generating you the support and finance’s you need.
I’m heading o/s in June, so i’ll keep an eye on this via the internet, but guys hope you guys and Aria have a totally awesome first birthday, you’ve all deserved it. I got told once the first birthday is really for the parents like a well done on surviving the first year, but in this case, i tink you all as well as Aria deserve some sort of celebration.
# 18 May at 7:22 pm
oh hey
Just wanted to say i’ve added a link to Aria’s website on my windowslive space, to try to highten her awareness, i don’tk nwo how many people check it out but just one more thing i could do
# 18 May at 9:55 pm
awesome! awesome!! Great to hear about the publicity – and publicity for such a deserving reason!! Love the comment about the fairy bread – Aria and fairy bread – now there will be a photo to look forward to!
# 19 May at 12:43 am
What a dear wee star you have.Really enjoyed the exposure you had on close up.We as a neighbour at Starship, hope and pray everything goes well for you and we too hope for a miracle for our Lily who is back in Wkto Hosp.We look forward to hearing good news from both families.
# 19 May at 12:44 pm
I watched your story with interest. My daughter, who turns 21 yrs. old next week, was born with a long portion of Short Segment HD. She was undiagnosed for 6 mos., but got surgically corrected by her first birthday. We have been involved in a HD Research Study at Johns Hopkins University, Baltimore, MD, since 1994. If there comes a point where you need to come to Pittsburgh, Pa., please contact me at the email address I left or at ODdolls4HD@yahoo.com , and perhaps I can help in some way since it is my home state. Best of luck, and prayers are with you.
Lori, mom of HD daughter, 21 yrs.
Nearby Gettysburg, PA, U.S.A.
# 19 May at 12:47 pm
Correction on previous comment: Email address is ODolls4HD@yahoo.com .
Lori, mom of Hirschsprung’s Daughter
Pa., U.S.A.
# 19 May at 3:49 pm
Hi guys, what a heartbreaking story. Clearly you are such wonderful parents to Aria, she is a beautiful and happy little girl. I have made a small donation as I hope everyone else does if they are able and I have added the link to your site onto my daughter Bethany’s caringbridge site. Hopefully we can drum up some support for Aria’s much needed lifesaving transplant. Hang in there and know that you have plenty of love and support in NZ!
Rachel Thomas.
# 20 May at 1:48 pm
Dear Mc Donald Family
I heard about Aria from my Dad who had watched your story. Last August we had twins, one of whom has Hirschsprungs. We were fortunate to have an early diagnosis and he went on to have the pull through operation, however we still have on going issues. I have tried to find out as much information as I can but there is not that much nor are there any support groups that I am aware of. I can only imagine the struggle that you must face with Aria’s illness. We have donated to the appeal for Aria and I have asked all my family and friends to do so also. We wish you all the best, God Bless, arohanui na te Levi Whanau
# 20 May at 2:12 pm
Just seen the story (I go to youth group band practise on Thursday nights) so nice to see you all
I pray she gets the operation soon
big hugs
# 23 May at 12:48 pm
Hi Aria,
My name is Finn, I just turned one and I’m sorry to hear about your terrible condition. We saw you on TV last week.
My mum and dad have just donated money to your appeal and we are wishing you the best with the surgery. Hopefully you will get it very soon and you’ll be able to recover and have a very long and hppy life.
Big hug.
xx
Finn
PS I hope you have a great first birthday, I loved mine.
# 23 May at 2:44 pm
Dear Parents of Aria,
I was touched when I saw it today on the TVNZ Website
It made me stop and think about her it was not right,
I’m very sorry about her, I was heart broken,
So I’m sending this message as a heartful token,
It’s sad how people like her don’t get a chance
But it will be fixed and we’ll make sure we will get you cash in a flash. It’s just a poem or rap I’m sending you
Remember you have a few
That support you in everyway
Because one day she will be cured and I asure you
Remember you’ve got people behined you!
looking out for her and you, looking at the state of aria she will be just fine, but in time just relax and have fun with her it will be better, I hope you get to read this letter I’m trying to support and she will be okay remember I’m going for her in everyway and thats all I’ve got to say.
sincerly yours
-Rueben.
P.S: I’m wishing you luck in the future, remember that.
# 23 May at 8:43 pm
Hi, Just read about Aria in the Property Press of all places. I was born in June 1973 with partial Hirschsprungs disease. I spent the majority of my life in hospital until I was 7 1/2 & had 13 operations. I am now 33, Maried with two beautiful daughters, Nikita who is 4 & Madison who is 2. Neither had HD which I was lead to believe could be hereditory. Good luck with everything & I wish there was a support group for people with HD, as it is a hard road for everyone, the parents , the friends & the potentially embarrising times for the child until things get to normal. If I had the money I would pay for Aria’s operation in full!! Everone deserves a good chance at life.
Keep smiling. I now know what it is like to be a parent with a sick child & I am sure ther are many other parents out there too who feel for you.
# 23 May at 9:40 pm
Hi Anita, Hamish and Aria,
Hope you guys have had an amazing week and wee Aria is doing fabulous! You guys are in our thoughts – we are still passing Arias story on to friends and colleagues!
Robertson family
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