2007 October « Aria MacDonald

Wow it feels like life with Aria has changed hugely in the past week or so!
Why?
She is finally mobile!!!!!
She has bum shuffling down to a fine art and can get places pretty quick. Crawling for Aria just isn’t a happening thing. She has always hated being on her tummy and who wouldn’t with [...]

Well we have managed to stay out of hospital for a whole week!! You know things have been rough when you start to count the number of weeks rather than months in which you are home.
One of the things to come out of the hospital stay(s) was a story from one of our nurses [...]

Hello everyone,
We just got back from an amazing fundraising event for Aria.
The Lioness Club of Papakura put on a trivia night for Aria that raised an estimated $5000.00!!! Attended by over 200 people and supported by many local businesses, great fun was had by all.
Special thanks go to Shirley and Tracy of the Lionesses who [...]

…what exactly to write in these posts? Is the purpose of this website to inform you all of Aria’s health and progress and timeline to transplant? Is it also a tool to help us with fundraising? Is its purpose to bring you all a glimpse into the life of a family with [...]

We are home, again!  Will we stay here?  We hope so!
It is great to be home, Aria’s temp was perfect last night as per Dr E’s instructions.  Aria got shown the temperature chart, which was due to start a new page that night and firm instructions (which included the use of Aria’s full name!) to behave [...]

Today our Dr told us that Aria is far too happy to be in hospital.
The deal they gave us is that if Aria’s temperature is normal all night she can go home tomorrow. So lets pray that she stays under the magic number 37.5 and we get to bring her home.

Aria’s temperature still murmurs away, normal one minute and not the next. They aren’t severe but they are very troublesome because we don’t have a good answer for what is causing it. I would think that they will want to send us home to we do know whats going on or they go away for good. [...]

Aria’s temp remained normal all night until this morning where it is now around 37-38.  This is very strange to us.  Normally her temp gets high during the night and then drops in the morning.  When she is sick it rages away once getting as high as 41!!
I am sure the Docs have their theories, [...]

Unless you have checked Aria’s site in the past 12 hours you might of missed this post.  The post was rejoicing over the fact Aria was home.
It was not to be.
Aria’s temp spiked during the night and this morning and we have had to take her back.  Because she was only discharged overnight her room [...]

We are home! 
We spent most of the day getting Aria’s iron levels topped up.  Iron infusion appears to be a dirty world in Aria’s world.  Dr E always books us in to have an infusion done and what do you know Miss Aria gets sick and we have to cancel it.  Bugs love iron so [...]