2008 January « Aria MacDonald

For those of you who are familar with Mr Strong from the Mr Men series, this is a word he says a lot.  He is always breaking things because he is so strong.  Mr Strong is Aria’s favourite Mr Men character, with Mr Daydream a close second.
Anyway sorry to all those who thought Aria wasn’t [...]

Pinky Pie is the name of Aria’s My Little Pony that she got for christmas from her Aunty Megan and Uncle Bruce.  It is super cute, it comes with a little babies bottle which you can fed it and it makes sucking noises.  It talks and says things like ‘I love you mummy’ and ‘Pinky [...]

…you know that feeling you get in the pit of your stomach when you know something bad is going to happen.
Aria is not herself, she is currently lying down in bed, awake at 11am. I am happy to leave her there cause I know she will tell me if she isn’t happy and wants [...]

I am enjoying a moment of quiet while both kids are asleep at the same time!  Yes it is 9.30 and Aria is asleep. She has started this habit of waking up in a real grump at 6am and demanding to get up.  Yikes, we get her up for about 2 hours, which is as [...]

In case you missed my last post entitled Grumpy click HERE. It contains an update about transplant timing or lack of it!! Ignore the rest of it though because we had a great weekend despite me being convinced antibiotics would keep us chained to the house and poor Aria chained to the pump.
After [...]

Grumpy.  Sometimes I feel grumpy (don’t we all).  I was telling Dr E I was a grump.  We still don’t have any answers to Aria’s kidney function.  The transplant date will be set when we have some idea of Aria’s kidney function whether it be good or bad.  We had hoped to get test results [...]

Phew, what a busy few days!
We are home, yay!  On once a day antibiotics which is nice although the process is a bit more full on than our past home antibiotic experiences.  Still Starship has worked hard to get us home and have made provisions for us so that is nice.
Gosh it has been a [...]

Good news, Aria has a ‘nice’ type of Staph infection in her line.  Nice being that unlike Staph Aureus (the one she had last time), this Staph, Staph epidermidis doesn’t seed.  That is, it doesn’t spread around the body and attach itself to heart valves and bones etc etc.
 Bad news it that it is treated [...]

Miss Aria had a pretty good night last night.  Her temp was down to normal except for a little spike at 2am.  Pretty normal, it seems as though the bug muster a final attempt in the wee same hours and then go out with a bang.
So far the blood culture we took last night isn’t [...]

Well we feared the worst and the worst has happened.  Aria has a line infection.  It is that darn Staph bug again and we are just waiting to find out which version of staph it is.
It is quite disappointing as we have manage to avoid line infections fairly well up until recently.
Tonight is a key [...]