I am obsessed « Aria MacDonald
“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.” - Jeremiah 29:11
I am obsessed
Tuesday, 12/08/08 at 2:05 pm by Anita MacDonald
I am obsessed with this darn ticker !! 
It sits on my google home page so I see it everyday and I keep watching for it to read 3 months!
It is crazy the amount of time I spend thinking about the fact Aria isn’t in hospital and wondering when we will be there next? It has been such a regular part of our lives for so long it is strange not being there. I know, I am mad, crazy and all those other words.
I need not worry cause we are back on Tuesday for the long day stay appointment. Aria’s TPN doesn’t contain Iron so she needs an infusion which takes 8 hours +. I think I was overdue with Asher when the last one was planned but for some reason her bloods came back good and I dodged the bullet.
This time, amazing, Hamish has annual leave planned on the week Dr E wanted it done. Can you imagine Aria hooked up to a pump in a room all day and me trying to manage Asher as well. No thanks!!! So the MacDonalds are off to daystay on Tuesday. They are lovely there, I got a yummy lunch last time I was there and they took great care of me and the kids. Anyone who has eaten Auckland/Starship Hospital food will know the food is far from yummy so I was pretty happy to get such a nice lunch. 
Anyway so from today on, it is time to start enjoying Aria’s good health and stop thinking about hospital! 
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About Aria
Aria MacDonald
Aria was born on Saturday 3rd June, 2006.
Two weeks later she was diagnosed with a very rare condition of the bowel known as total intestinal aganglionosis or total Hirschsprung’s disease. There is no cure and it means she would never be able to digest food.
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Aria MacDonald has an online photo album here at MyPhotoAlbum.com.
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Links
- Gifts from Heaven
A group of kids who have had or waiting on bowel/liver/stomach transplants - Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
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6 Responses to “I am obsessed”
Tuesday, 12/08/08 at 2:26 pm #
its brilliant that she has stayed out of hospital for so long and it must be nice even if it does feel strange
praying re Tuesday
Wednesday, 13/08/08 at 5:40 am #
Anita - I completely understand. I don’t have a visual ticker like you do but an internal clock which tells me we have been too lucky for too long - its not pessimism just reality! Way to go Aria for staying so well for so long - must be something in the air as Matisse is low on iron at the moment too and we are trying to avoid an infusion with oral iron -ha you can imagine how much of that is being absorbed!!!
Thinking of you guys all the time!!!!
Wednesday, 13/08/08 at 10:30 am #
That is fantastic! Thinking of you guys!
Wednesday, 13/08/08 at 12:54 pm #
Here here to Arias continued good health!!! Enjoy the rest of your week! Sounds like all is going great, I am thrilled for you!
Wednesday, 13/08/08 at 9:05 pm #
Yah! That is great that you have avoided hospital for so long - especailly over winter too! In our prayers.
Thursday, 14/08/08 at 8:43 pm #
I understand too!! Ha ha you have to get used to staying at home now! Such good news but I’m sure it does feel a little weird too. I am looking forward to three months at home with Lara - can’t be too far off!!!
Get well soon.
Lots of love xxx
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