Friday the waiting day
Channel One 8.30 AM Sunday 25th of October (set your alarm clocks!!)
Overseas people- it will be available HERE shortly after that time
4pm update:
Liver biopsy back! Good news! Turns out Aria’s liver damage is likely caused by the ABX she has been on rather than TPN related damage. So if we stop the ABX then in theory the liver should heal its self. There is a bit of TPN damage but nothing major. The downside is that she isn’t on ABX and she still isn’t well.  So we will have to see how she gets on.
Today is Friday.
Today we are waiting on the results for Aria’s liver biopsy AND for my Friday email from the business manager at Starship regarding progress for funding.
Two really big things to wait for. It is hard waiting.
We could walk away from today with no news or nothing special to share.
Or we could walk away from today with BIG news good and bad.
Or something in between.
Aria and Hamish got home yesterday around lunchtime. She had an unsettled night which was disappointing and she is a bit tired today. And still has a rumbling temp of low 37s.Â
So we wait for news, wait for Aria to get better.Â
Reminds me of a line in a song we know
‘Wait on the Lord, be of good courage and he will strengthen your heart’
Strength and courage- who doesn’t need that? We do- bucket loads of it!!
7 Responses to “Friday the waiting day”
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Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 23 Oct at 1:31 pm
Thanks for the updates. We wait with you, confident that God can and does do miracles. We pray for strength and courage and faith.
Loads of love xxx
# 23 Oct at 1:39 pm
hoping for big news good and GREAT!
# 23 Oct at 3:08 pm
Yes this waiting game is quite a challenge!! Reflecting on ‘waiting’ yesterday i found myself praying for all sorts of people who are waiting in all sorts of different situations and waiting for all sorts of different things – it certainly creates plenty of fuel for prayer!! Praise God that He continues with us in our waiting and already has the outcomes at hand and in control. Continue with you in the battle!!
Love Nola
# 23 Oct at 3:15 pm
that’s great – hope the next lot of news is also positive 🙂
# 23 Oct at 3:26 pm
I’m glad that you have a little good news! Thanks for the link too! I will definitely watch her story!
# 23 Oct at 6:38 pm
Yay! That’s pretty good news that it’s not the TPN which has caused the liver damage. I always thought that the liver is one of the best organs cause it regenerates. Hoping that it does this quickly in Aria and that she doesn’t need anymore of those ABX that caused the damage. Praying though that she does improve quickly, and that that phone call comes through any day now to say that the funding has been approved! 🙂 xx
# 23 Oct at 6:55 pm
Divine Trade Me Appointments « Aria MacDonald says:[…] might of missed my post this afternoon expressing my frustration at waiting for Aria’s funding and biopsy results and hoping today […]