Today was…
…long
Feels like a week has gone past but it has only been a day.
Aria’s seemed ok today pretty happy and perky at times. Her temp was back up though so that was very disappointing. We took her back in to Star for another dose of Gent, tough on the kidneys but it might help her liver. I just can’t reconcile this little girl laughing and pretending to be a snake in the middle of the supermarket with this little girl who is slipping downhill.
Lots of emails flying back and forth today. We have been in contact with our local MP Mr George Hawkins. His Executive Assistant contacted me within hours to say they were seeking an urgent response for the associate health ministers. Plus we have several other leads with the family that will help.
We are 100% sure that the MoH know the urgency and desperation of the situation and they said ‘please reassure them we are all working to make this happen as quickly as possible’ of course that came with a ‘but no promises’ tacked on the end but hey.
The elders and pastors of our churches came over this evening to pray over Aria, the 4th time in her little life. First when she was born, second when she was really ill for a week and no answers, third when she was admitted to PICU for the sodium OD and finally tonight. It was a massive blessing to have them pray over her and encourage her.
More encouragement came from my friend Christy who rang from OZ and prayed with me over the phone. Completely awesome and she spoke all the words my emotions can’t quite say correctly. She encouraged me greatly as we talk about our God and his purposes for our lives. There were several other phones calls today which lifted my spirits greatly.
Last but not least one of the pastors brought around an envelope. We opened it and were completely stunned. Pukekohe Christian School lead by Jes Sonneveld has been busy fundraising with mufti days and bake stalls. We had heard briefly the some fundraising was going on but didn’t expect the $560 that came in the envelope! Thank you Jes and all those involved, your timing is perfect, God’s timing.
God was very active today in our lives sending his people and still providing for our needs in Omaha. Even though Omaha looks far away right now and Aria’s life looks bleak still He still keep providing.
2 Responses to “Today was…”
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Progress meter: 75%
Links
- Gifts from Heaven
A group of kids who have had or waiting on bowel/liver/stomach transplants - Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 12 Nov at 11:01 am
That’s wonderful to hear about the fundraiser Pukekohe Christian School is doing! That is so nice of them! God is always active in our lives, whether we feel it or not. I truly hope that MoH will give you the go-ahead very soon!
# 12 Nov at 1:22 pm
To the Beautiful Macdonald Family,
my heart goes out to you guys everytime i read an update of how Princess Aria is doing.
I have just been to Visit with Josie and Missed seeing Aria today.
Hope to see her and Asher the next time I Visit.
My thoughts are with you and your family.
Big Hugs From Donna At PORSE Manukau xoxox