Limbo Land - Aria MacDonald

Limbo Land

Aria didn’t need morphine last night, that was awesome progress.  But she didn’t sleep very well and wanted to sit in her pram.  Unfortunately her feet are puffy from sitting up 24/7 so I wanted her to try and lie down but at 5am I got her pram from the hallway and got another hours sleep.

We had a meeting today with the transit nurse who might be travelling with us on the 1st of December.  It was a helpful meeting and good to know a lot of things are being taken care of for us i.e paper work and TPN stuff.

I sit here having just had a missed call from Starship on my cell.  Apparently I couldn’t throw myself down the stair quicks enough.  Needless to say my heart raced but it was just the ward calling Aria back for ABX and they didn’t realise I was at home.

Checking email has become an hourly activity, I just keep hoping the break thru might come from the right person saying the right thing.

But at the moment there is no news and no break thru.  There was a flurry of activity last week but we have used all our resources short of the media.  And now we wait.

Will we be moving to the US in two weeks or not?  Will my daughter get a chance at life or will she not?  These are just the two big questions.  There are a hundred little ones including- who will rent our house?  Just minor stuff you know 😉

Got the most beautiful card in the mail from Katherine with this amazing verse that stopped me in my tracks dead on the driveway

“I will make the Valley of Trouble a door of hope”  Hosea 2:15

Very much feels like we are in the Valley of Trouble and needing lots of doors throw open to give us hope.  God has amazing promises.

5 Responses to “Limbo Land”

  1. Nola Young says:

    A wonderful verse of what the Lord does. Indeed He is our hope. Will be connecting with you in a different sort of way over the next few days!!! Much in prayer. Love Nola

  2. Lisa Robertson says:

    Hang in there!!!! Dont imagine thats easy, but keep moving towards you goal. Thinking of you guys! x

  3. Rua Walters says:

    Keep thinking positive!!!We’re all thinking and praying that everything falls into place for you all.
    love Ruaxxx

  4. Tiffany says:

    That verse reminds me of Kind David, & how he had a lot of trouble in his life (some to his own making, some not). The book of Psalms is a wonderful book to go to, when you’re going through trials! Just keep relying on God! We humans a lot of the time want an answer right away, when for some reason unknown to us He wants us to wait. Then later on when God reveals the answer, we smack our heads (figuratively speaking) and say, “Oh, so that’s what you wanted me to learn! Okay, I get it now.” It often takes poking, proding, twists, turns, and weeding out of the sin in our lives. Just keep believing that God is in control, and that He has a plan for Aria & for all of you! Keep the faith that He loves you, and wants the best for your family! God Bless!

  5. Natalie and Cody says:

    strength, love light, hope, my prayers to you – you awesome family

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“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11