Colour us concerned
Updating from Aria’s room where we have just had the next step in Aria’s continued struggle.
The Critical Care team has just intubated Aria.
This process is where they place a tube down her throat to enable a machine to breath with (or in the worst case scenario, for) Aria. This is due to the toxins in her brain effecting the normal processes which regulates things like being awake and breathing.
We weren’t expecting things to progress quite this quickly, so we are obviously concerned as to where this is leading.
The good news is that we have family from home, flying over to give us some support.
There are a lot of things going on at the moment, a lot of things could happen in the next days, hours or minutes, we are trusting that God knows and has prepared Aria and us for those things since before time.
We are hopeful that organs will come, she will recover fully and show no ill effects of these toxins in her brain.
Yet we do not know this will be the case, but we do know “that in all things God works for the good of those who love him, who have been called according to his purpose”.
Please pray for Aria, for us, for a donor, for our family travelling, for the medical teams…. just throw as much prayer as you can spare our way, it would be appreciated.
42 Responses to “Colour us concerned”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
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# 1 Jan at 11:40 am
am praying with all my heart that everything happens in time for darling Aria. I know there is nothing I can say that helps but I am thinking about you guys all the time at the moment and send all my love. Praying for a wondeful outcome to your journey and glad that at the very least you are in the best place for this to be happening.
# 1 Jan at 11:47 am
hugs, thinking of you.
# 1 Jan at 11:52 am
Praying continuously for Little Aria for a donor to come soon, & for your little family, within our church, and in our Prayer group. Hugs to you all.
# 1 Jan at 11:59 am
You are always on my mind at the moment and in my prayers. Big love xo
# 1 Jan at 11:59 am
Thinking and praying for you all. Much love to you all.
# 1 Jan at 12:16 pm
My prayers are with you at this time
# 1 Jan at 12:24 pm
praying for you guys – love and light – gods beautiful light is always there surrounding you comforting you – big hugs to you my thoughts are with you all constantly today
# 1 Jan at 12:26 pm
Hugs.You are in my thoughts.
# 1 Jan at 12:27 pm
Praying praying and praying! So glad family’s going over. Hope you’re able to recharge your batteries a little with some extra help. xxx
# 1 Jan at 12:37 pm
You know I’m not a praying person. I don’t have the faith that you have in God, though sometimes I wish I did. But I’m praying for you, for Aria, your families, donor families.. I’m praying.
xxxx
# 1 Jan at 12:48 pm
Praying and hoping and praying and so glad family are on their way. So much love… X
# 1 Jan at 12:51 pm
hoping and praying for organs to come. Thinking of you all.
# 1 Jan at 1:00 pm
My thoughts and Prayers are with you all. Fingers crossed that those organs that Aria so desperatly need come very soon. Sending all the love we can from NZ xxxx
# 1 Jan at 1:51 pm
You won’t know us but we have followed Aria’s story since Shirley told us about her. We are praying for brave little Aria and all of you. With our love.
# 1 Jan at 1:58 pm
Many many many thoughts, love and light for you and prayers that this part of your journey ends soon, that the right path becomes clear and the healing that is to come comes soon. I think about you all often, tears roll down my cheeks with every update and you are all so close to my heart at this time xoxo
# 1 Jan at 2:20 pm
Many prayers continue for you all. Much love and hugs, Karen (PNDU, Sydney)
# 1 Jan at 2:21 pm
Praying for Aria and family
# 1 Jan at 2:31 pm
Thinking and praying for you all, love to you all and big hugs,
# 1 Jan at 2:34 pm
Aria and you are in my prayers and we are thinking of you minute by minute.
# 1 Jan at 3:10 pm
Sending out prayers for you guys. xxx
# 1 Jan at 3:11 pm
Thinking of you constantly precious wee girl!!!
# 1 Jan at 3:38 pm
thinking of you all continuously x
# 1 Jan at 3:48 pm
MASSIVE HUGS
praying for you all
words cant begin to express what I want to say
Lord Jesus come into this situation right now
Lean heavily on Him Anita and Hamish He can be trusted
# 1 Jan at 4:21 pm
We feel deeply moved by your current situation and have you constantly in our hearts and before the throne of heaven and earth. So glad to hear family support is arriving. A favorite Scripture: “God is our refuge and strength, an ever-present help in trouble. Therefore we will not fear, though the earth give way and the mountains fall into the heart of the sea”.
# 1 Jan at 4:23 pm
Lord, you created Aria’s inmost being, You knit her together in her mother’s womb.
We praise You because Aria is fearfully and wonderfully made; Your works are wonderful, we know that full well.
Aria’s frame was not hidden from you when she was made in the secret place.
When she was woven together in the depths of the earth, your eyes saw her unformed body.
All the days ordained for her were written in Your book before one of them came to be.
How precious to us are Your thoughts, O God! How vast is the sum of them! (From Psalm 39).
Our thoughts and prayers are with you all.
# 1 Jan at 4:38 pm
praying alot for you guys
# 1 Jan at 4:44 pm
God is too good be unkind. He is too wise to be confused. If I cannot trace His hand, I can ALWAYS trust His heart. (C.H. Spurgeon)
Holding you all up in prayer continually.
# 1 Jan at 4:45 pm
I thank God that you have Him to lean on- this is SO hard- but wuld be even harder if you did not have the assurance of His love- His plan and His arms around you all. It is easy to say when I am not involved personally- but I am heartened to hear your words of faith. Awesome people- know that you are loved by many- and especially by HIM
# 1 Jan at 4:45 pm
Praying, praying, praying & thinking of you guys lots…
xox
# 1 Jan at 4:48 pm
from a card I recently received
“When you are the neediest, He is the most sufficient.
When you are completely helpless, He is most helpful.
when you feel totally dependent, He is absolutely dependable.
When you are the weakest, He is the most able.
When you are the most alone, He is intimately present.
When you feel you are the least, He is the greatest.
When you feel the most useless, He is preparing you.
When it is the darkest, He is the only Light you need.’
When you feel the least secure, He is your Rock and Fortress.
When you are the most humble, He is most gracious.
When you can’t, He can.
Continuing to battle with you before the throne of Grace. Much love
Nola and Andrew
# 1 Jan at 5:36 pm
Thinking of you loads, praying for you all, and so glad that you will also have more family with you soon.
# 1 Jan at 5:50 pm
My heart and thoughts are with you and I am sending the Universe a BIG plead to help you in your time of need. Much love.
# 1 Jan at 5:51 pm
Amazing – just read one of your first posts in june 06. you are both amazingly strong, even if you dont feel it! You have not wavered from your opinions in the first month of her life. You are strong. Thinking of you so much xx
# 1 Jan at 6:13 pm
sending you lots of love and positive thoughts. May the next few hours/days bring the best for Aria and all the family.
# 1 Jan at 6:14 pm
Thinking and praying for you all the time and believing that in spite of what things seem, God IS STILL THERE AND WILL NOT LEAVE YOU DEAR BRAVE PEOPLE.
# 1 Jan at 6:35 pm
Sending you our best wishes xx
# 1 Jan at 7:51 pm
I am so pleased to hear you have family coming to stand with you at this time, we keep you so firmly in our thoughts. Sending you tons of love xxx
# 1 Jan at 8:34 pm
Always thinking of you all, and sending my love.
# 1 Jan at 8:57 pm
Precious Aria, created, fearfully and wonderfully made, We are praying for you all and the family that are on their way. Family is awesome, may you be blessed with their comfort.
# 1 Jan at 11:01 pm
Thinking and Praying for you MacDonald family, hope all goes well, showers of blessings 2u during this time… much love xox
# 2 Jan at 6:36 am
My thoughts & prayers are with you all the time! I pray she will recover, & I pray God will give you comfort!
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