A mixed day at the races
Aria had her second day of sprints today. She had mixed results.
The first attempt we had this morning did not go particularly well. They let her initiate the breaths herself but Aria decided not to breathe. After trying to prompt her to breathe and giving her some support it was decided that she needed to go back onto the vent which was a little discouraging to see. The theory that was floated is that some medication she received prior to the sprints starting may have left her too sedated to get going with her breaths.
This afternoon however we went for heat two and results were better. Initially Aria responded quite similarly to this morning, not initiating breaths. The respiratory nurse put her back on the machine to get Aria oxygen levels back up and we discussed why she wasn’t do as well today when she did great yesterday. While we talked the respiratory nurse took the support away again and Aria kicked into gear slowly but surely and went for the full 90 minutes she was scheduled for, YAY Aria. We only had one little patch where she stopped breathing when the nurses were checking her vitals. We came to the conclusion that when she gets ‘messed’ with she holds her breath and forgets to kick into gear again. I guess when you have been breathed for, or at least got a lot of help with your breathing your body might forget how to do it by itself.
In other news regarding Aria, the contrast study wasn’t quite as successful as we initially hoped. None of the contrast was going down her bowel, it was all leaking out from a spot they can’t operate on. Good news is that the drains she has in place cleared the majority of this from her abdomen, bad news is that it means intestinal feeds are on hold for a while. Seriously it feels like, one step forward, two back, two forward, one back….
As always, your continued prayers are coveted and appreciated.
13 Responses to “A mixed day at the races”
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# 10 Mar at 9:38 pm
I know you desperately want big steps forward for Aria and rightly so, but it really is normal for things to be slow at this stage. She is making teeny tiny baby steps forward, sometimes so small that it seems like she is going backwards. It will get better and I know it is pretty useless me telling you this right now because you can’t see any further ahead than right now so I will just send you plenty of hugs and love instead xxx
# 10 Mar at 10:32 pm
Great to get some results but like a lot of things it all takes time. Continuing to uplift you all and we trust you’ll continue resting in the fact that God is working and HIS will may be done.
McLays
# 11 Mar at 2:10 am
praying
HUGS
# 11 Mar at 2:43 am
Hang in there, things will get better. May God give you peace and patience.
Judy.
# 11 Mar at 3:06 am
Hi Anita. Tonight I am remembering the day, six years ago tonight, when I went into labour 3 months early. Over the following months we watched our daughter struggle to learn to breathe without the ventilator that kept her alive for so long. Now, I have a daughter who is 6 tomorrow, who is beautiful and healthy and strong. The pain we went through seems so long ago. One day your pain will seem so long ago too.
I wish you all the best.
Rose
# 11 Mar at 3:37 am
Praying for healing and strength for Aria.
The words of this song came to mind
One day at a time sweet Jesus, that’s all I’m asking from you.
Just give me the strength, to do everyday what I have to do.
Be encouraged by the little steps.
Lots of love
# 11 Mar at 7:49 am
Praying for all of you.
# 11 Mar at 11:43 am
Hang in there. We are walking every step of this journey with you.
Ali xoxo
# 11 Mar at 3:09 pm
Hi Anita and Hamish!
Here we are right with you in this loooong slow adapting-healing-coping-struggling-trusting-wavering-trusting again process.
There is not even one tiny sigh-tear-wish- that escapes the loving concern of your heavenly Father. He can be trusted with our precious Aria her darling wee brother and their special mum and dad!
Kathleen and Anita xxxxxx
# 11 Mar at 3:16 pm
Hugs and blessings to you all- and I pray that it will start to feel like more steps forward than backward- even little steps are good.
# 11 Mar at 4:22 pm
my puter finally has let me get on internet its been on major go slow last few days – Big hugs to you guys. I have been praying every day for Aria and you guys – Every day is blessed and love is with you from us and the invisible great love of god and the angels
# 11 Mar at 5:43 pm
this week I have found myself really struggling with my own lack of progress after my own surgery which was only a fraction of what Aria has been through. It takes effort to grasp hold of the promises of God (and what wonderful words have been sent to you over these last days) and to fix our eyes on Jesus but so good to know that He is the one who is holding us. Continually upholding you, even as my own struggle drives me to pray all the more earnestly for you. Love you guys.
# 11 Mar at 5:51 pm
As always, continuing to pray. God is working…
In His love,
Carolyn O’Cain