Aria is back? - Aria MacDonald

Aria is back?

Today was an interesting day.  It was the first full day with Aria’s trach and it was all about learning.

The sedation has been taken down and her personality is coming back.  Interestingly we have been able to hear her voice a little bit which we shouldn’t be.  I heard her say a few words like ‘Book please’ and of course ‘NO!’

Unfortunately it looks like the trach is in a funny place because she was spitting up a bit today.  She has been very thirsty the past couple of days and it has been pretty hard to keep her happy.  Every time she would drink something normally it would come out of her wound vac but today it would ‘sit’ somewhere (not sure where) and come up again a bit later on.  So ENT will be back tomorrow to check.

My big goal is to get her to smile.  Not sure how I will get that to happen but I imagine it will involve me pretend to fall over or hit my head- those jokes always got laughs from Aria.  It is kinda like having a newborn !!

We read an animal book together than she choose and she was making all the mouth movements the animals where to communicate how they were feeling.  She did really well.  Lots more communicating with her little voice and signs.

All and all it was a positive day I think and I enjoyed her company.

Someone asked about temps and injection I think in a comment.  Aria is still battling temps but all her cultures are clear so they think it is drug related.  Her white blood cell count is normal so that is a good sign and her heart rate and BP are good too.

29 Responses to “Aria is back?”

  1. Bronwyn says:

    Praying you get your smile soon – and the corner will be turned in the healing process. Meantime, you keep smiling and take care of you :)

  2. nyle says:

    I am sure you will get your smile :0) cant wait to read the post that tells us all that you did.

  3. Rebecca Breen says:

    She is such a super kid! What a legend. Miss you all. xxx

  4. Judy Palmer says:

    Praise God for clear cultures and normal white blood count. Great stuff! I am sure you will get lots of smiles soon. don’t worry about a scar from the trach. My husband accidentally pulled his out and had to have another put in but now we can’t see either scar (they disappeared in a couple of days). Praying for more improvements in Aria’s health.
    Judy.

  5. jen says:

    pleased Aria is being her own self again :)

    hope Aria smiles for you real soon

    praying as always :)

  6. Liz says:

    Hey! Thinking of you guys. Hope you get a big smile soon.
    Liz

  7. Erin says:

    As always, we are cheering for your girl through all of this. We can’t wait for the day that you replace the question mark in the title of this post with an exclamation mark.

    best wishes from Boston,
    Erin, Ben and Blaise

  8. Christine MacDonald says:

    Hope they get the trach sorted, Aria’s smile will come back, can’t wait to see it. Thinking of you all and praying for improvements lots of love

  9. Shirley Davy says:

    So lovely you enjoyed just hanging out…. will be lovely for you to hear communication soon…. X

  10. fiona says:

    how lovely- I do hope and pray that these glitches get sorted soon- and you can really have your Aria back

  11. Lisa Robertson says:

    Good stuff!! Hope you get that smile you are waiting for real soon! x

  12. Delwyn Cockrell says:

    Great news. So wonderful for you to experience something positive. Great that you enjoyed each other company yesterday. Praying for you all as always. Love to all.

  13. Lyaine says:

    Great Stuff, keep it up you lot you are all doin so well. glad to hear all the cultures and white cells are doing what they should. That’s an improvement. Keep on trucking!!!

  14. Samantha Sutherland says:

    Wow how cool that Aria can have her mouth free to communicate with you – so sweet! I hope you don’t hurt your head too much to get a smile but still it will be worth having a whopper headache for that one! Once that wound settles I’m sure she will be smiling heaps!

  15. Kathleen and Anita says:

    So happy for you! Lots of smiles are on the way. Just be patient and as well, do some funny acting!
    Hugs from us down here in South America

  16. Erin W says:

    Going by the relationship I watched shared by your husband son and yourself on the tv programme. even though little Aria cannot put her smile on or speak as before yet, the warmth you surround her with and support which she obviously before felt and was empowered with will sustain her through this time. Aria is so blessed to have chosen to be born to your family, love to you all from my 2 precious grandaughters and me

  17. Tiffany Keller says:

    I’m glad to hear that both you & Aria had a better day today! That’s always good to hear! I pray you have more days like today! God Bless!

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“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11