Out of surgery
Just spoke with the surgeon. Aria did pretty well throughout the surgery, there were a few hairy moments when her blood pressure dropped but her heart kept beating the whole time and her lungs did great.
It was a real mess in there like last time although not quite as bad. The liver was pretty sick and the bowel wasn’t healthy either but we knew that. Dr Grant tacked down her diaphragm too, hopefully this will help.
The surgeon is happy although stopped short of saying she was excited, but she thinks these organs are good for Aria.
The hard work is about to start, this is the easy part. Please keep praying. Aria will be on lots of anti-rejection meds which are harsh on her little body which has been thru so much already.
Praise God for His provision again- He is Good, we want you to know that.
She is back better go!
WOW Her bili has dropped from 33 to 7. This liver is awesome. Her kidneys are peeing well to, she is a lot less puffy.
MIDNIGHT UPDATE
Ok we are going to hit the hay now. Has been a big day.
Aria was awake and opening her eyes and answering our questions with nods or shaking her head. She seems all there but they didn’t like her that awake so she is sedated now. Praying for a quiet night.
We couldn’t get a room in the Lied because it is full so we have had to come home but we feel good. We aren’t feeling overwhelmed right now and yes Dad you are right the reason for that. This morning I felt completely awful and sick about the whole thing but now I am feeling better and at peace. God is in this, we have such a strong sense our prayers have been answered. Aria looks better this time than she did last time.
According to the surgeon it will be a complete miracle if Aria avoids the OR in the coming days and weeks. But we are going to sure ask God for that miracle but accept whatever comes our way.
Good night. THANK YOU FOR YOUR COMMENTS AND PRAYERS!!!!!
58 Responses to “Out of surgery”
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From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 9 May at 8:44 pm
God is Good! Praying for Aria, praying for you guys too. Strength and peace at this time. xox
# 9 May at 8:44 pm
Wow she is one amazing little girl… Thinking of you all in the path that lies ahead for the family.
# 9 May at 8:46 pm
Ahhh!!! Had NO idea this was going on today! Wow…yes, you are right…what a Mother’s Day gift! (we know Dr. G….she seems very thorough.)
Thank you Lord for your provision yet again. We pray especially for those moms and dads who are mourning such a GREAT loss! Hold little Aria in Your arms, and begin healing every tiny cell in her body. Restore her!!!!!!!!! Please give Hamish and Anita a calm, a peace, and strength they didn’t know was possible. Be Glorified through this storm!
We love you guys!!!!!!!!!!
# 9 May at 8:52 pm
Praise God!
# 9 May at 8:55 pm
Ah more tears!! So thrilled the surgery went well, but know this is just the beginning for Aria, again. My thoughts will stay firmly with you. Thanks so much for taking the time to update us all. Love to you all x
# 9 May at 9:00 pm
He is good indeed – continuing to pray. Much love to you all xx
# 9 May at 9:04 pm
Best wishes for a speedy straightforward recovery for Aria, lots of hugs for you and Hamish.
# 9 May at 9:06 pm
Wonderful news! Prayers for the days and weeks to come…
# 9 May at 9:07 pm
Wonderful news! Prayers for the difficult days ahead…
# 9 May at 9:10 pm
This is fantastic to hear, Anita! I know the coming weeks and months will be tough, but Aria is such a little battler, I know she will get through this. Much love to you and your beautiful family xxx
# 9 May at 9:20 pm
Praise God for all He has done and will continue to do! Continuing to pray that Aria recovers well and that her little body copes well with all it has been through. Praying for strength for you and Hamish too! xo
# 9 May at 9:21 pm
Praise the Lord for getting through surgery! He has brought her this far by His grace, and will continue to be with you all! Praying for the next hours, days and months for much grace and God’s strength to be healing Aria’s little body!
# 9 May at 9:25 pm
Fabulous to hear she is through her second transplant safely!! YAY! Many prayers being said for the donor family in their loss and for a smooth recovery period this time for Aria.
# 9 May at 9:43 pm
Glad to hear she is out. Will continue to pray for her.
# 9 May at 9:54 pm
thanks for allowing us to share in this with you. Its a privilege to be able to join with so many in praying for you at this time. Hope you can get some deep sleep tonight ready for the long haul of these next days. Our love
# 9 May at 9:55 pm
So good to know you are all being held in and by God’s hands. Much love and prayers as Aria fights on. Hoping you can sleep well my friends, refreshed for tomorrow. X
# 9 May at 10:04 pm
Thank God – So relieved that she is safe – Will be praying for her Sleep well Anita and Hamish – My thoughts are with you
# 9 May at 10:09 pm
Glad to hear she has new organs and the surgery went well. <3
# 9 May at 10:27 pm
Have been thinking about Aria all weekend and was glad to read that she has new organs – all the best little girl – be strong. We all love you in New Zealand
# 9 May at 10:28 pm
Good to hear all has gone well. Praying this time round will be a much easier road.
# 9 May at 10:30 pm
Much love from our family to yours xxxx
Keeping hope as your anchor X
# 9 May at 10:30 pm
God is good
:D:D Will keep up the prayers for your awesome little girl!
# 9 May at 10:31 pm
PRAISE GOD! I HOPE THAT LIVER STAYS WORKING AMAZING AND THAT THIS IS IT FOR HER!!!! I PRAY THIS IS THE BEGINNING OF AN AMAZING FUTURE AND THAT IS SHALL NOT BE AS ROUGH AS WHAT YOU HAVE ALREADY ENDURED!!! BLESS YOU GUYS!! I CAN NOT IMAGINE WHAT ITS LIKE FOR YOU BUT I KNOW THERE ARE THOUSANDS PRAYING!!!!
# 9 May at 10:31 pm
we are right there with you anita and hamish and wee asher-praying for little princess aria and her doctors nursers helpers
may the peace of His holy spirit pervade aria’s room
God bless-jeannie
# 9 May at 10:32 pm
I don’t mind admitting that I am overwhelmed. Anita, you sound as though you have it together. There can be only One source for that. Go Aria Sweetie! We love you!
# 9 May at 10:36 pm
This is the first step on a journey to wellness, which I’m sure will go well.
# 9 May at 10:37 pm
My thoughts and prayers are with you. Come on little Aria show us how wonderful you are.
# 9 May at 10:40 pm
all our love and prayers for this next journey.
# 9 May at 10:57 pm
Well done Aria for getting through the surgery so well. Keep fighting little princess we know you can do it – you are such a miracle already. Anita and Hamish – thinking of you and hoping you get some rest in the next couple of days while Aria makes her way forward with her new organs hugs xxxx
# 9 May at 11:01 pm
Wonderful news for Aria..sending loads of love and hugs to you all, especially Aria!
# 9 May at 11:11 pm
thanks be to god…. praying profussly for “little miss sunshine”.
# 9 May at 11:27 pm
Glad to hear that her new new organs are doing what they should long may that continue. Great to hear that she has been awake. Dear Lord Please keep infections away from tis little this time, please can she just go from strength to strength this time. Lord.
# 9 May at 11:52 pm
Great to hear that things are looking good. We have been checking all day to see how Aria was doing. Continuing to pray for you all.
# 9 May at 11:59 pm
wonderful that the surgery went well… excellent that she has been awake… glad that you are feeling at peace… you have one heck of a stong fighter for a daughter… I pray she keeps fighting the fight… hugs…xx
# 10 May at 12:00 am
We are just so happy that things are looking good. Thanks so much for the updates.
# 10 May at 12:00 am
So much has happened in 24 hours! Our prayers are with you on your journey; may God’s presence be especially tangible in the coming days.
# 10 May at 12:02 am
wonderful- praise God
# 10 May at 12:06 am
Praise God that things seem to be going well so far. You guys will continue to be in our prayers and we’ll also be praying for the miracle that Aria avoids the OR this time around.xxx
# 10 May at 12:16 am
Fantastic!
# 10 May at 12:18 am
excellent news – praise God
our prayers are with you all
big hugs
# 10 May at 12:25 am
Wow.. God moves fast!! I have only just now been able to check your blog today to catch up on the news. So happy for you that Aria has been given another gift of life and that everything has gone smoothly thus far. Will pray for peace and strength for you guys as a family and the donor family as well during this crazy bittersweet time. Love & prayers!
# 10 May at 12:27 am
Prayers and thoughts are with you all, good days ahead
# 10 May at 12:45 am
Wow, what a fantastic Mother’s Day present. Go Aria, you can do it. Praying that all goes well in the coming days.
# 10 May at 12:45 am
Keep on keeping on, you are all simply amazing to cope with one of lifes most difficult challenges!! Go well and take goood care of yourselves.
# 10 May at 12:48 am
Thank you God! I will be praying for THAT MIRACLE. Isn’t it awesome that we have a God that loves us so much he answers our prayers for the seemingly impossible!?
Love from just down the street!! Thank you for the wonderful updates, Love the bili levels, how encouraging. Lifting you up to our Almighty God, who will carry you through.
# 10 May at 1:59 am
Wow! So thankful that God provided once again! Awesome to hear that Aria is recovering well and that her bili levels are really good. May God continue to grant you with peace and total trust in knowing that He holds Aria in the palm of His hands. You are all so amazing! Will continue to pray for Aria, your family and the donor’s family! Much love, the Verheijs.
# 10 May at 3:02 am
God is so good!!!!! Joining with many others in prayer for you and your sweet daughter, also for the donor family(s).
Sleep well my friends. xxxxxx
# 10 May at 3:09 am
praying praying praying
God truly is good and I ask Him to be right there with you all
# 10 May at 3:17 am
Praise God for good results already. Praying for the miracle that Aria won’t need to be rushed to the OR and for comfort for the donor family.
Judy.
# 10 May at 3:21 am
Wishing you all the best for the days ahead.
# 10 May at 3:28 am
God is so good, He is so good to you….
Praise Him forever. Pray you will be able to have a deep refreshing sleep. May God shine His light upon you. Love the Sonnevelds
# 10 May at 3:34 am
Thank you to the donor family for their gift of life for our precious grand daughter Aria,praying that God will comfort and strengthen them in their grief. Praise God for bringing Aria through the surgery and for positive signs already. Praying for that miracle. Stay strong sweetie, we love you heaps. Ham, Anita & Ashie may God surround you with his peace, love and sustaining strength, lifting you up in prayer before our Almighty God.Much love
# 10 May at 3:47 am
Wow. Ditto to that all has been said by others. I am so happy for you all. Be strong. Aria will be gutsy for sure and will battle again. Xxxx
# 10 May at 4:38 am
Wow don’t check in for a day or two and see what happens…
that’s awesome news about the second transplant… and so far things going well. we will pray for the miracle that she doesn’t need to go back to surgery. Anyhow i hope you guys have an awesome sleep… and that things continue to go well and head in the right reason…
# 10 May at 5:37 am
Wow! I’m really happy to hear that little Aria got another new set of organs yesterday! I have a 3 year old with HD as well – though not as severe as Aria’s. I will continue to pray for your daughter, your family, the staff, and the families who gave Aria such a wonderful gift!!
I did have one question if you have a second to reply:
– Is Aria back on the vent? Or is the trach enough at this time?
Cheers for Aria!!
# 10 May at 6:15 am
Thank you God for your answer to our prayers. May rest and peace be with you today.Thanks to the family who made this possible and be with them.
# 10 May at 12:54 pm
Praise the Lord that Aria is doing well so far! Aria is a miracle in herself! I pray that these organs will stay a good fit for her, that there will be no rejection, or infection! I also pray that you get some sleep! God Bless!
# 10 May at 6:53 pm
ANITA!! HAMISH!! I have been away from my computer and I’m in SHOCK!! Good and happy shock! What a testimony we are all watching unfold. God’s timing just blows me away. Praise Him!!