A New Week
Monday here in Omaha Nebraska and a new week is upon us.
Tomorrow Aria has pulmonary clinic. We are really hoping they will decide to remove Aria’s trach. This will require a GA and a trip to the OR and likely an overnight stay. Of course frustratingly we haven’t made any progress last week with getting a pulse ox machine that will give us an accurate reading. But today there is a new company coming with new equipment and together with our home care nurse we are hoping we will get one night of good readings before clinic.
Another good session at PT today with no time outs! Awesome. Hopefully she will be feet walking soon.
Make A Wish are visiting on Friday. We have filled out all the paperwork and hopefully might get some idea of time frame. Gosh- so exciting.
Please pray for Emerson, Ashley, Sophie and Sam. These kiddies are having tough times and their parents supporting them are too. It is a hard road for sure.
8 Responses to “A New Week”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 2 Aug at 2:59 pm
I hope the new machine comes thru for you and Aria’s readings are great. I imagine her throat will be so much more comfortable without the trac.
I am so thrilled for you guys that Make a Wish have come to you. What a celebration that will be for you guys – tons of fun, and I hope a huge Well Done Guys for all your hard work, grit, perseverance and determination.
Hope you all have an awesome day. Cheerie, Jo
# 2 Aug at 3:46 pm
Good to hear things are still going well. Hopefully the new machine will give good readings. Continuing to pray and adding the new names Emerson,Ashley,Sophie and Sam.
Praying the Disney trip will work out. It would be so great for the entire family.
# 2 Aug at 9:01 pm
A new week! And each new day there is something new waiting for you. What could that something be? The AV calls it “His compassions” but I like the Living Bible which reads: “His lovingkindness begins afresh each day.” WOW! That’s worth waking up to isn’t it!
# 2 Aug at 9:02 pm
Wow am so excited for you all, God is soooooo goood amen. Praying for you all and all your friends there – its so good to connect with many more families who are walking your walk yes, Papa please carry and heal all Emerson, Ashley, Sophie and Sam and all their families acknowledging you as their creator and Papa who loves them so much amen. May all your hearts desire come true in Jesus amen. Love you heaps, Noa.
# 3 Aug at 12:18 pm
So pleased the PT session went well, Go Aria you will be on your feet and chasing after Ashie soon. Lots of Love
# 3 Aug at 6:07 pm
Hope you get the O2 machine soon!! I can only imagine how good it will be to get rid of the trach. Anita do you know of any websites that show how to care for a trach?? Is a long story but 1 of my potiental kiddies might be getting a trach to come home with.
lots of love…xxx
# 3 Aug at 9:23 pm
I hope the new machine helps! Good for Aria, with the no time-outs! I pray that God would comfort the families in this trying time, & I pray God would Bless them! May God Bless your family too!
# 4 Aug at 3:55 am
GOD is good! I pray that He will hold these precious ones and their families in His loving hands- that He would bless them in every way- and that they would know His presence through these difficult times.