Success or failure?
So many times in this journey I am reminded we are on God’s timetable and perfect planning. He KNOWS. He answers prayers with a no and gives us gifts we didn’t ask for.
Technically our goal and prayer for Aria trach removal was that she would come home on no O2. In fact God answered our prayer with a no and the result is that she is on 24 hours O2. It would seem like a failure……. Or is it?
Instead what we have now is a radically different Aria. We are so amazed. She is happier, brighter and more physically active. Seems like the trach was holding her back and maybe obstructing her airway instead of helping her. She was off o2 during the day with the trach but when she did need it it was at 3 litre sometimes more. Now she is on .25- .5 litres 24 hours and doing great.
We are so encouraged. Truthfully the past 5 weeks have been a bit tough at times with her behaviour and yelling for us. But we are hoping this new happier Aria is here to stay. We asked her if she feels better without the trach and she says YES! very enthusiastically.
This whole journey has helped us redefine what is success and failure and what is good and bad. If you have time read this short story. And this verse.
Thank you friends and whanau for supporting us.
18 Responses to “Success or failure?”
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# 18 Aug at 6:43 pm
sounds like a success to me, if Aria is happier and more comfortable that’s great.
# 18 Aug at 6:52 pm
oh I am glad she is much happier – sounds like you guys are too
# 18 Aug at 8:28 pm
It certainly sounds like the removal of the Trach was the right thing to do. I’m so glad she is happier now and I would certainly consider it a success.
# 18 Aug at 8:50 pm
I read the short story and made me pause.. how often we forget God orders everything in our lives.
Bless you and yes God new what she needed.
# 18 Aug at 8:53 pm
I was so overwhelmed when Evie came home on O2, but it becomes part of life so quickly. She is on .25-.5 liter too, I will be praying that Aria AND Evie are both off quickly (: Love you guys.
# 18 Aug at 8:56 pm
I am so glad to hear Aria is happier, she has come such a long way and I am thankful you continue to share your story with us all
Thanks xxx
# 18 Aug at 8:58 pm
“Hallelujah! For our Lord God Almighty reigns!” Rev. 19:6 He truly is in control. So thankful that Aria is feeling better. Thank You, Lord!
In His mighty love,
Carolyn O’Cain
# 18 Aug at 9:18 pm
Love to you all. We trust God to know what is best. And He is totally worthy of our trust!
# 18 Aug at 9:45 pm
I’m glad to hear that she is doing well without the trach! That is wonderful! God always knows what’s best.
God Bless!
# 18 Aug at 10:00 pm
Hey- well done you guys- excellent way to look at things. Even tho we know God is in control and He ALWAYS knows best- it is easy to try to ‘correct’ what we see as His mistakes! bless you all heaps
# 18 Aug at 10:15 pm
LOVE the story!! Just what I needed to be reminded of today (especially). And that verse is one of my favs…..has become Caed’s theme verse these past 2 years. SO glad to hear how “spunky” and happy Lil’ Miss is! What an answer to prayer…..
# 19 Aug at 2:33 am
Success is my thinking as another ‘foreign object’ gone & she needs a wee bit of O2 as she adjusts & to cover for her extra energy she is feeling without it.
Well done you little miracle, seems nothing is going to hold you back as you get on with being a typical 4yr old!
# 19 Aug at 3:00 am
God is Great! What a massive amount of healing He has done in Aria’s little body and now she only needs a small amount of o2. Amazing!
Praying as always for you all,
Judy.
# 19 Aug at 3:34 am
Praise the Lord of all glory and sovereignity, grace and mercy who answers yes and amen, praise God and may all your hearts desire be met by Him who says yes, and amen!!!!!!!love you family, God bless.
# 19 Aug at 6:34 am
Love the story. You now have a happy little girl and that is what matters.Enjoy it all and we thank God for giving her the peace and happiness she seems to have.May each day be better than the day before.
# 19 Aug at 1:42 pm
We are so glad Aria is happier, she is such a strong girl, Happy for yous all,
# 19 Aug at 10:36 pm
I can feel the weight being lifted off you guys as Aria responds so well post-trachy. It’s great to read she’s more ‘herself’ and you are able to enjoy each other more. I really was inspired by that chinese proverb, thanks for putting it up. Hope you have a nice weekend. X
# 18 Dec at 9:28 am
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