Pretty bumpy morning
Aria is worse today and we aren’t going anywhere. Â She had a rough night and poor girl could only sit bolt upright and couldn’t rest.
She is back on the Hi Flow O2 and it is up to 80% and 10 litres.  There was serious talk of intubating her at rounds and the Intensive Care team are back on the case after discharging her yesterday.
They decided to do a blood gas before any action and thankfully it came back normal. Â Everyone was quite relieved particularly us.
Her chest x ray today was really wet and she is almost weighing in at 20 kgs. Â So she has a lot of fluid on board which is the likely reason she is having such trouble breathing. Â She is a delicate flower is our Aria.
We are praying for lots of pee!! And to avoid the dreaded intubation until she can get some fluid off.  Her immune suppression drug is running a bit high and her kidneys don’t like it, so she is going to skip a dose this evening.
Thankfully now she is lying right back and actually sleeping, thank you Lord!
7 Responses to “Pretty bumpy morning”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 5 Nov at 1:20 pm
jen says:praying for dear Aira
# 5 Nov at 1:56 pm
joyce says:Praying that a solution is found and thankful Aria is getting a little rest. Please Lord give them peace and answers,
# 5 Nov at 2:27 pm
Jeannie Overall says:hang on tightly in there-prayers for rest and healing for Aria x xjeannie
# 5 Nov at 2:47 pm
Samantha Sutherland says:Thinking of you and wee Aria – she is such a great kid and battles through everything even when she is struggling.
# 5 Nov at 3:59 pm
Cousins Kathleen and Anita says:May the presence of our dear Lord Jesus be there with you in this situation
# 5 Nov at 4:18 pm
Tiffany Keller says:Poor Aria! I hope the doctors find a solution very soon! I hope she will be feeling better tomorrow! Hope all of you can get some rest! God Bless!
# 5 Nov at 6:15 pm
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