The H word.
Aria had a great night and continues to do well. YAY!
This is her at 11.30 last night! Clearly not sleeping and breaking one of the long list of rules they make you sign when you are admitted! You know, lights out at 10.30, don’t bring inflatable furniture or beer to the ward etc.
Hamish and I were trying to decide last night if, here in Litigation Land, they would let us do IV ABX at home. Guess they let people do TPN at home so they must. So we asked and turns out they are fine with it. So fine you don’t even have to get special permission. At home, even after doing TPN for months, we have to get observed and signed off by two hospital staff. So, goes to show you never know. Anyway it has been also a year since we have done anything with Aria’s line we are keen for a refresher. But after 3 and a half years I guess it isn’t something you can’t quickly forget. Thankfully it is a 12 hourly med running over half an hour, totally manageable at home.
If Aria keeps doing well then we should be home by Sunday or Monday! Although this is the third time home has been mentioned so we aren’t going to get to excited just yet.
22 Responses to “The H word.”
Leave a Reply
Support Aria
There are many ways that you can support Aria.
- Bank deposit
- Cheque by post
- Contact us directly
Subscribe to updates
Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria

# 11 Nov at 5:17 pm
Great news. Praying you get to go home this weekend.
Aria should be so much more comfortable with all the family together.Such a happy looking little girl.
# 11 Nov at 5:22 pm
wonderful news guys!!! Aria looks great and happy
# 11 Nov at 5:40 pm
She looks happy and wide awake.
She looks great, & I love Aria’s pigtails. Praying she’ll get to go home! God Bless!
# 11 Nov at 5:48 pm
Fantastic Nurse Anita!!!! Aria just looks fantastic – so much so it is very weird seeing her in a hospital bed!!! She looks ready to go home! Hope the weekend goes wonderfully for you all! xxx
# 11 Nov at 5:49 pm
YAY! I really hope you get home soon! What a classic photo – looks like she’s trying to escape. Much love. X
# 11 Nov at 6:07 pm
Yay for home! I can’t beleive how well Aria looks – she is such a miracle girl in so many ways!
# 11 Nov at 6:26 pm
Praise the Lord for Aria’s progress.
The bracefields
# 11 Nov at 6:27 pm
Lookin gorgeous Miss Aria – so hope and pray you can go home soon xx
# 11 Nov at 8:54 pm
In my defense the lights were out… not that Aria cared two hoots.
# 11 Nov at 9:51 pm
Aria looks great!! I think Aria’s body clock is getting ready for being back home??? Our God is awesome! Keeping praying.
# 11 Nov at 10:27 pm
Aria – you are just the coolest!
# 11 Nov at 10:45 pm
Lights on or lights off, looks like Aria is full of life. No idea of the time and less idea that Dad wanted to sleep! I wonder what was going through her little mind at the moment the flash lit up the scene. Hey is that Blue Dolly who is lying exhausted on the bed? So dad kept his word that Green Dolly is now strictly a Home Dolly after she was nearly lost forever???
# 11 Nov at 10:51 pm
Green Dolly was at home getting washed. Green Dolly lives wherever Aria sleeps so she does come into hospital for sleepovers.
# 12 Nov at 1:22 am
Praying that Aria is well enough to go home this weekend. She sure is looking well. Blessings to you all, Judy.
# 12 Nov at 1:54 am
Wow! Aria looks so well … and so ready to go home! Praying that your dream comes true and that you can return home. Praise God that He has worked such miracles in precious Angel Aria’s life. I pray that He continues with the healing that is taking place. God bless you and your family Princess Aria. Please continue to keep us updated on her progress. Thank you
# 12 Nov at 2:01 am
Good to hear shes had two good days in a row breaking that pattern, Yah. Good news all round my son got off oxy after 3 months too!!! Hope shes gives you a bit more sleep tonight!!!
# 12 Nov at 3:11 am
Aria looks like she is ready to get out of there, hope you all get to be together at home very soon. Lovely pic.
# 12 Nov at 3:16 am
Great news.
# 12 Nov at 6:42 am
Praise God amen!!!
# 12 Nov at 5:34 pm
So glad Aria is feeling better – also, love the black cats on the pyjama’s, and the black nail polish – Aria, you WORK those accessories, girlfriend!!! Lots of love and Happy Thanksgiving, Nikki and Rob. x
# 13 Nov at 5:09 am
Go Anita! You are amazingly creative and seem to think outside the box.
What a gorgeous photo of Aria! The Lord is answering our prayers…thank you Lord!
I pray that home will happen soon, and that guys are able to catch up on some much needed sleep.
# 14 Nov at 2:08 pm
I have not had a look at your web site for a few weeks and i can’t believe how good Aria looks, it appears you all have had yet another hard journey over the past few weeks, my thoughts and prayers are with you all every day Kindest regards Stuart