Coming to you live from… - Aria MacDonald

Coming to you live from…


Ok so this isn’t live but desperately trying to lighten the tone of the day a bit.

Hamish and I admitted defeat this morning and rang the team to say ‘we are bring Aria back’.  They said ok go straight to PICU.  So here we are.

Aria was doing all manner of strange things last night.  Getting out of bed, pulling her mask off, pulling her nose noodle out.  Well there is confusion about how the NG tube came to be out but it was out none the less.  All of this stuff was so strange.  She got little rest and woke up groggy and headachey.

So what do you do when your kid won’t lie down and falls asleep standing up and leaning her head on the bed?  You cry and your heartbreaks again at her tiredness (and yours) and your complete inability to put your own child to bed for rest because her little body simply doesn’t allow it.

Was she being naughty?  No she wasn’t, we are sure of it.  She was just positioning herself in a way so that her body could get maximum air.  But standing up and sleeping doesn’t work.

So we are back and she is currently sleeping.  Have tried a medicine to thin her airway mucous and that seems to have helped. But it seems like there is more work to be done to get to the bottom of all this.

It is quite hard watching Aria be so tired and listless all the time.  It is like the life has been sucked right out of her.

I have spent her sleeping time researching and being deeply moved by the story of Phil Vischer, creator of VeggieTales.  It started out of curiosity when the Bullis sent me a link to the story.  Finally got around to watching it and reading thru THIS and also watching the three parts of THIS.  It appealed to my business interest but more importantly my heart.  Read if you have time.  Our plans are not always God plans.  I have a lot of plans.

I plan on sleeping tonight, I hope Aria does too.

13 Responses to “Coming to you live from…”

  1. Ali/nerdygirl says:

    Oh Anita. I am so sorry. Sending you strength from across the oceans.

    Ali xoxo

  2. Lyaine says:

    oh anita how sorry I am to hear this. Has anythody thought of the odd sleeping positions particuarly of her head postion may have something to do with her headachess? as well as the size of her windpipe. I know with me I sometimes get headaches because of muscle tightness in the neck and at the base of the skull. A message or some Physio in that area has always helped more so at times than pain relief.
    I hope this might offer another avenue of thought for you. My prayers are for you all at this time.

  3. Davy Family says:

    oh, so sorry for you guys…. hoping you can all get some good quality sleep, it makes such a difference! much love. X

  4. Joyce says:

    Praying especially for sleep and rest for Aria and all of you. Hopefully they find that culprit soon and she can be herself again soon. Probally some little quirk to locate but God can take care of it.That is my prayer tonight.

  5. Liz Smith says:

    “Oh Sleep why dost thou leave me….” Anita, there is an exquisitely beautiful aria about sleep by Handel. Yes! – you named your beautiful daughter after this wonderful art-form. no wonder she is so special! Listen and enjoy. It might help you to relax – or give you a few moments of respite and serenity. You can find it here:

    I think about you and your troubles every day although you don’t know me at all, I feel as if I know you…

    With love

  6. lisa says:

    Stay strong Anita. It is sad to hear little Aria is struggling so much. You don’t know me at all but I follow your daily progress and pray every day – for Aria and for all her family. Love to all of you. I hope you get to the bottom of this soon. If not, I will pray you will have the strength to endure.

  7. Christine MacDonald says:

    sorry to hear Aria is back in PICU, praying for a good nights sleep for her and you and Ham too. Praying that answers will be found and she will be less tired. Lots of love to you all xoxo

  8. Helen says:

    I hope you managed to listen to the beautiful aria by Handel suggested by Liz – and that it gave you some relief. I too do not know you, apart from this through this blog, but send my very best wishes for better days ahead for you all. Thank you for sharing your ‘journey’ with so many others.

  9. Cousins Kathleen and Anita says:

    Keeping you in our prayers.
    Lots of love

  10. jen says:

    praying for all

  11. Samantha says:

    I am so sad to hear that sweetie is not feeling great and has gone back to PICU. I know its always the best place for her when her health is poor but I know its very hard for you to watch her when she is not well. I am hoping that the answers come soon and that she is recovering well at your next post. sending you lots of hugs xx

  12. Tiffany Keller says:

    I’m so sorry to hear this! Poor Aria, & poor you! I hope you all get sleep soon, and I hope they can get to the bottom of what’s wrong; once and for all! God Bless!

  13. Jane Smart says:

    Dearest Anita. I hear your broken heart, Jesus heals the broken hearted. His Name is as Ointment poured forth. Precious Jesus let your annointing rest on Aria and give her rest and sleep. For Mum and Dad I pray that they might be strengthend in their spirits and physically mentally and emotionally. Amen. Love you heaps.

Leave a Reply

Support Aria

There are many ways that you can support Aria.

  • Bank deposit
  • Cheque by post
  • Contact us directly
Subscribe to updates

Delivered by FeedBurner

Fundraising progress

Aria's support to date:

Progress meter: 75%

“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11