Elation and Deflation - Aria MacDonald

Elation and Deflation

We were elated late this afternoon when Childrens rang to say they had a cancellation at their sleep study clinic TONIGHT!  YAY we thought- answered prayers!  Praise God!  Finally this sleeping issue would be studied and analyised and the surgery done at Childrens to fix it!!!!  Lets pack our bags we are off!!!

In case you are not aware, Aria is treated at the Nebraska Medical Centre, a large multi disciplinary hospital for adults and children.  The main childrens hospital is called Omaha Childrens and it where most peds hospitalisations and care is done.  They are completely separate hospitals.

Also, America is run by an insurance system, rather than by the government.  We get asked a lot of our ‘insurance card’  We don’t have one.  Aria care is covered under a contract between NMC and the NZ govt.

Not wanting to be asked for an insurance card at Childrens Hamish wanted to check the finance side of things was sorted.  We give our respiratory supplies from Childrens so we didn’t think it would be an issue.  WRONG.

We assumed all care was covered under the contract but any care Aria receives outside of the walls of NMC needs to be ‘pre approved’ Insurance speak.   So we had to decline the opening and now have to wait for it to be approved by the NZ Govt.  Which of course they will do, without doubt.

We were really upset and so hurt.  We prayed hard hard hard for that hour while all the discussions were taking place.  Please God overrule!  Please don’t let Aria suffer until the 19th.  We believed He could, we KNOW He can.  Why didn’t He?

Funny, that VeggieTales story I mentioned yesterday really spoke to my heart about the same issue (obviously God was preparing my heart for today).  Why wouldn’t God want a Christian Disney?  Why wouldn’t he want these amazing talking vegetables who impact the hearts and minds of children to grow and take over the media world, winning souls for Jesus?

Why didn’t He make Aria’s first transplant a success?

This is the answer to the questions with no answers

Isaiah 55:8,9

8 “For my thoughts are not your thoughts,
neither are your ways my ways,”
declares the LORD.
9 “As the heavens are higher than the earth,
so are my ways higher than your ways
and my thoughts than your thoughts.

So once again we hold on to the fact the God has the VERY best in mind for Aria.  Our ways do not reconcile with God’s ways and we are obviously sad and disappointed.  This sleeping, breathing, headache and blood pressure feels like a heavy burden.  Ok- yes I know, we have done worse, I get that.  But it is still hard regardless.  We box on in faith.  God is still good.

14 Responses to “Elation and Deflation”

  1. Tiffany Keller says:

    I would be fustrated & hurt too, if I was in your position. God knows or fraility, and our shortcomings. I’m glad He knows them, and still loves us & comforts us anyway. There is a poem by Russell Kelfer called, “Wait.” It helps during the difficult times. Praying That God will provide, as He always does, for you. May God Bless you!

  2. Brian and Sandra says:

    Very frustrating.

  3. jen says:

    praying the NZ govt approves fast and that there can be another opening soon

  4. Jeannie Overall says:

    i honestly dont know how you manage to go on at times but yes i do know-by God’s grace and in his strength! we can only keep on praying and believing and beseaching the Lord on your behalf. Hang in there again and again and again-God bless-Jeannie

  5. Cousins Kathleen and Anita says:

    There it is again: THE TRUST OF THE UNEXPLAINED. Jesus could explain everything but He explains nothing.
    Jesus said there would be tribulation but He never said why. Sometimes he spoke of suffering being to the glory of God but He never said how. In the Bible there is no explanation of trial. We are trusted with the Unexplained. Check out 1 Peter 1:6,7,8

  6. Rod & Margaret says:

    Dear Anita & Hamish – we feel your disappointment. My prayers are that the Lord would intervene in every which way to bring a speedy solution to Aria getting to the sleep clinic. Lord we thank you for your faithfulness! xx

  7. Samantha says:

    Oh, Anita and Hamish, we feel your pain. What a huge disappointment that must have been. We are praying that the NZ Goverment approves it super fast and that there will be another opening for Aria really soon. It’s so wonderful to see how you can still just keep on keeping on and holding onto your Faith. That is the most important. Remember, God will make a way where there seems to be no way. You’re all in our thoughts and prayers :) xxx

  8. lisa says:

    I really feel for you. What a huge blow. Hang in there. There are so many people routing for you!

  9. Mary says:

    Once yet again I am moved, humbled and amazed by your steadfastness and your faith in God. So at this time as well as prayers for the beautiful Aria and her recovery I will offer prayers that you, Hamish and Anita, are strengthened to maintain this faith which at times is surely and sorely tested.

  10. Shirley says:

    Dearest Anita, I read your blog with sadness and yet such gratitude that you write… you inspire and encourage me…. with prayers from this hospital bedside to yours – may you know patience and sleep and peace and strength for all 4 of you at this hard time. Arohanui my friend. X

  11. Joyce says:

    Stay strong for God has a plan and in his time it will be done. Praying for strength and peace as you wait.This site is such a strength for me daily and I thank you for doing it.May God answer soon for Aria’s needs.

  12. Jan says:

    hi guys once again just to say I am still walking this with you and feel your pain and frustration and the feeling of helplessness but you are doing great Aria could not have picked better parents or brother to have. My prayers and thoughts are with you. Jan

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“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11