Subdued day - Aria MacDonald

Subdued day

UPDATE.  Aria is going in for a skin and colon biopsy.  There is a storm coming so lots of out of towners have cancelled hence there is a spot for her.  Got half an hour to get there!!  I didn’t mentioned before but she has had a rash for awhile now.  Comes and goes but it flared up today.  I think they are testing for Graft V Host so hopefully it isn’t that!!

Today is a subdued day.  I don’t want to call it a sad day cause I am choosing not to feel sad, or at least trying to choose not to be sad.

Aria has been off feeds over the weekend and has continued to dump out of her stoma.  Her liquid volumes aren’t good enough to start feeds today either.  We are waiting on an update from the team but feeling sure that a bag of TPN is likely going to be delivered to our house tonight.   Still we have no reason to be long term concerned about this bowel.  It is still likely the result of the norwalk virus and it has improved at times but not for a long enough period of time.  But is it is hard.  This bowel is so precious and I have to remind myself it is also precious to God.  Aria is precious to God.  And too trust Him completely with it and her.

Aria has been home a whole week now!  It has been a pretty busy week and stressful at time knowing how to manage her outputs and replacements.  But it has still been at home and that is good.  And it has been a week of many lovely blessings.  Hamish and I every got to go to the national tour of the Broadway show Mary Poppins which is here in Omaha.  It was really good and such a treat!!  We were so thankful to Carol and Cordell for thinking of us and inviting us along.  And for Christine for babysitting the two kiddos and for Poppa for staying on skype for 4 whole hours ‘helping’ Nana :)

Speaking of Nana she is now safely deposited at the Omaha airport waiting for her flight out to Dallas to begin the trek home.  Another reason for the subdued day.  Me and the kids said goodbye at home.  Asher said ‘not go Nana’ and after she left said ‘I like Nana’.  Aria did ok to saying goodbye and managed ok but did just have a massive meltdown and is now in bed.  It has been totally amazing having another set of hands and for Hamish and I to get out and spend time alone.  Last weekend, while Aria was still in hospital we got a whole night to ourselves!  Brad and Steph took Asher and Christine held the fort at hospital.  Amazing people!

Christine is such a hard worker and pitches in without being asked or expecting a thank you.  In fact when I do say thanks she seems almost surprised, like ‘of course no problem’.  Oddly enough, if you asked Christine will claim she had a relaxing time and got two books read.  Not sure how that factors in with all the loads of washing, dishwasher emptying and kid entertaining but it does!  Anyway, it is hard to see her go because she was the link for three weeks to NZ.  The hardest thing about being here is being so far away from our family and friends, it is amazing when they visit.

Anyway.  Not being sad today.  Cause I know there are others in tougher and harder positions than me today and my heart is with them.  We have A LOT to be thankful for.

15 Responses to “Subdued day”

  1. Samantha says:

    Anita, your strength and courage (as well as Aria’s of course) are an absolute inspiration to us! Well done :) Sorry to hear about Aria’s biopsy but praying and trusting that everything is well and it is just due to the virus that hasn’t worked through totally yet. May God continue to walk this long journey with you and your precious family. Sometimes it is really hard and we don’t have the answers, much as we’d like to, but God knows why and, hard as it is, we just need to place our trust and faith in Him and know He knows what’s best. God bless you and your lovely, precious family, Anita and may He continue to protect and keep Aria from harm :) Many prayers and blessings xxx

  2. Bracefield family says:

    Praying for you all. We showed the picture of Aria you had in your last post to Redeemer and people were all encouraged with the progress she is making.
    love the Bracefields

  3. Tiffany Keller says:

    So sorry that Christine had to go home. Sounds like you & the kids had a great time with her, while she was with you. I’m not a doctor, but I think you’re right that it’sjust the norwalk virus. That can be a hard virus to get over sometimes. So with Aria’s delicate condition, it’s just taking longer to go away. Praying that isthe case anyway. Sorry to hear that she has a rash now. Praingha goes away oon too. So you got to go to the Broadway production of “Mary Poppins” huh. That must have been amazing fun! God Bless!

  4. Rod & Margaret says:

    You are one amazing family Anita. Our love and prayers are with you for a complete recovery for Aria and a speedy return home. God Bless you all!

  5. Joyce says:

    So thankful for your 3 weeks of family with you.Also for such wonderful friends in Omaha to help you out.
    May answers come soon and things go well.
    Praying for needs.

  6. Jess says:

    can Aria take probiotics? Maybe she can’t I am not sure but Finn was in starship with a bowel obstruction (intussuception) before Christmas and then got an infection post reversal and then another hospital bug while in the 2nd time and probiotics were absolutely great! He was on IV ABX and then reg ABX at home which ended up starting to damage his intestines but after a week of probiotics he was all better.

  7. stephanie says:

    love to you all. that 4 hour skype session makes me smile. :) praise God for loving family.

  8. Samantha Sutherland says:

    Oh bum! Sorry to hear of another bump. And I am sorry you had to say goodbye to Nanna too! It is such a blessing to have someone who is unconditionally there for you, who understands and just supports you in the best way.

  9. Judy Palmer says:

    Praying that this bump will be short lived and Aria will get much better soon. Blessings to you all, Judy.

  10. iliganoa says:

    Dear Anita, thanks so much for choosing not to be sad for the joy of the Lord is your strength. Youre such a wonderful model of faith, I am touched by your sincere faith in the Lord and strengthens me, thank you so much for your emphatic trust in our Papa, praise the Lord, He sure is to be trusted. Praying for best outcome for Aria, pray for strength for you all and great healing from our Lord, in Jesus’ mighty name amen, amen, amen.

  11. Bland family says:

    Thinking of you Anita, all the time. Because of you I will remember to choose not to be sad and to trust in the Lord for my tough times…which are nowhere near as tough as yours. With much love. XXX

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