Comments on: Clouds

By: canada goose

canada goose — Wed, 14 Dec 2011 16:54:30 +0000

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By: Jo

Jo — Mon, 16 May 2011 12:24:01 +0000

Big hug to you guys. Will continue to pray. You sound absolutely exhausted. I pray you get quality rest when you rest your head – more than is the norm in the short times you are allowed. I pray for Aria. Lord, please can Aria’s counts be much better when the tests are done so that this amazing family can look forward to home soon.

By: Joyce

Joyce — Mon, 16 May 2011 01:56:55 +0000

Praying tonight for whatever needs there are. May the Lord be very near to you and you be able to feel his presence.Lean on him.

By: Jane Smart

Jane Smart — Fri, 13 May 2011 07:01:14 +0000

Anita, Hamish, Aria and Asher.
Loving you, cant begin to fathom the depths of your angst, but am standing with you. Praying that The God of Heaven and Earth will continue to Strengthen and uphold you in His Grace and Love. Remeber your High Priest was touched with your infirmities to the point of feeling totally rejected by his father. So he can intercede for you at the right hand og the Father and He is dear ones. Blessings

By: Jessica Gibson

Jessica Gibson — Fri, 13 May 2011 06:55:52 +0000

hugs for you Anita and for wee Aria. Hey not long till the big 5.0. Hope she is home for it!

By: Cousins Kathleen & Anita

Cousins Kathleen & Anita — Fri, 13 May 2011 04:45:18 +0000

Isn’t Isaiah a wonderful book for lifting ones spirits! And yes! God does know what He is doing. He redeems the negative situations that are part of living in a fallen world. Hugs for all 4 of you.

By: Joyce

Joyce — Thu, 12 May 2011 21:47:15 +0000

Just here praying and believing in his word.

By: Valerie Kolb

Valerie Kolb — Thu, 12 May 2011 19:42:33 +0000

Hello MacDonald Family,
I recently heard about Aria and read her whole blog, yes the whole thing! I live in Green Bay, Wisconsin, Super Bowl Packers territory, and mostly understand what you are going through. My granddaughter, Havalah, was born with Biliary Atresia, a liver disease where bile ducts needed to drain the liver were not present. She would die without a liver transplant. At just 6 weeks of age she had the Kasai surgery which is 30% successful. The surgery involves attaching the intestine directly to the liver with the hopes of getting drainage. Her operation did not work and she was listed for transplant. Fortunately, with a lot of meds, and an NG tube for nutrition, she stayed stable for two years. Her bili kept rising, though, and two months after her 2nd birthday she received “the call.” Her transplant only took 2 and 1/2 hours, producing bile before she left the operating room. Unfortunately, the next day an ultrasound showed that she had developed an hepatic artery clot and the surgeons said that there was only a 10% chance of fixing it or she would have to be relisted with only days to live. Thank God that the surgeons hands were guided from up above! Havalah recovered and her liver was ok. Havalah had several acute rejection episodes that were resolved mostly with steroids and then she had another major surgery at Christmas, 4 months after transplant. She had been getting episodes of cholangitis, liver infections, so the surgeons undid her original Kasai surgery and fixed some bile duct constrictures.

I only tell you all this history because I understand all the bumps in road that happens after transplant. While Aria has a much more complicated case than my granddaughter has please know that the rollercoaster ride has to eventually ease! I was horrified when I read that Aria has PTLD but I also know about lots of children who have made an excellent recovery from it. Luckily, Havalah has been spared this complication.

Anyway, Havalah celebrated her 5 year transplant anniversary last August. She is 7 years old, soon to be 8 in June. She is a happy, smart, charming little girl in second grade and is doing so well. Her only meds are prograf twice a day and a baby aspirin 3 times a week! Our whole family thanks God for the miracle of her second chance at life. We pray for her donor family.

I am following Aria’s blog every day and I am praying that your precious little girl follows an easier path and that she gets well soon so you all can go back to New Zealand. God bless you!

By: Peter Thies

Peter Thies — Thu, 12 May 2011 19:41:47 +0000

We’re with you in prayer. The Holy Spirit, the Comforter, is with you and your dear family.

By: Tiffany Keller

Tiffany Keller — Thu, 12 May 2011 18:02:55 +0000

Aww…Anita I wish I could be there to encourage your whole family! God does know what He is doing, but it’s hard when you have to wait for answers. You know that more than anyone else. Praying that God will lift your heart up, & may He give you some reasurring (sp?) answers soon! God Bless!