When is Aria going to transplant?
We get this question a lot. Which is fine because it is a perfectly reasonable question to ask.
 The answer: We don’t know.
We don’t know because we are waiting on some results for some kidney tests we had done in October I think. For one reason or another they have been delayed but hopefully we should get them some time early next year.
Also once we have these results and if it looks like we might go to transplant soonish then we will make an application to the Govt for funding for transplant. Well we won’t, that fun job goes to Dr E!
Anyway Aria is well and good. Today I found a Fisher Price doctors kit I used to play with when I was a kid. We wondered if it was bad taste giving it to her to play with but she seems to like it.
Also we are hoping like mad to avoid a trip to day stay this week. Aria’s iron was/is low and she might need a top up. This take hours and hours and sitting around the hospital with a perfectly healthy Aria hooked up to a pump is hard work. Anyway should find out on Tuesday.
Hamish and I have been married seven years today! Yay! We have survived the best and worst time in our lives together but we are still best buds. Still more challenges and joys to come (particulary in the next month or so!!) but we face the future with confidence.  Anyway enough of the soppy stuff.
Thanks for checking in on us.
8 Responses to “When is Aria going to transplant?”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 26 Nov at 1:38 pm
Congrats on the wedding anniversary!! You must have been married just a few weeks after Grant and I as we just had our seventh too!! Glad to hear that you are all at home, hope the Iron issue is resolved without a long day stay!!! Great to hear about the wonderful generous donations coming through from schools and clubs!! We off on holiday for a week, will check in when we get back to see if there are any new ‘additions’ to the website!!!! Hope Aria has a great week!! (Is she a profficient doctor yet with her new toys?!!) Take care, I keep you guys in my thoughts as always!
# 26 Nov at 2:49 pm
Congratulations and Happy Wedding Anniversary!
# 28 Nov at 1:23 pm
Happy Anniversary!!!!
Big hugs to Aria from us!
# 28 Nov at 7:36 pm
Congratulations to both of you on reaching the 7 year milestone! That is awesome news! Can’t believe it has gone that fast.
Your family is in our thoughts and prayers always.
Luv from Steph and family
# 29 Nov at 10:57 pm
Happy Wedding Anniversary!
We all enjoyed looking at Arias photo album the other day with us all crowded around the computer to see.
We continue to lift you all up in prayer to our faithful loving God. We read today Psalm 62 v8
Trust in him at all times, Pour out your heart to him, for God is our refuge.
Much love from us here in Japan.
Martin, Sam, Raffie, Elijah, Georgie and Talitha.
# 30 Nov at 12:43 pm
Will keep an eye out for updates about the transplant
# 30 Nov at 6:46 pm
Just had to tell you that one of Jakes favorite toys for a while in the bath was Lara’s oxygen mask and tube from transplant – yuk! I cringed inside but he loved it and was quite funny so no, not in bad taste if Aria enjoys playing doctors!
# 3 Dec at 8:43 pm
Congratulations on your wedding anniversary and I just have to add doesn’t Annie have a great head?!?!?! She kind of suits no hair 😀
I now have a great excuse to buy a girly mag too 😉