CVL Wednesday?
Ok so we didn’t really expect it to happen today but we are hoping it will tomorrow. Aria is on the acute list for surgery tomorrow. But it does mean she will get bumped for emergency or more critical cases.Â
Today was ok, again we lost another luer and again she had to have a new one put in. But this time we gave her some stuff that makes her a bit sleepy and lets her forget. To be honest it weirds me out a bit but it made a big difference and it wasn’t nearly as tramatic for her. The docs use this elastic thing which they tighten around her arm to make the vein stand out. Yesterday she screamed when she saw it today she picked it up and asked me to put it on. I couldn’t figure it out and ask her if we should get a doctor to do and and she nodded!!!! So I did and the doc came in and she didn’t freak out.
Hamish and I asked if we could take some of that magic stuff home with us. Sam- that will help us forget the last week!!
Anyway so CLV tomorrow and home on Thursday? I hope so. We are so tired and miss being home together.
6 Responses to “CVL Wednesday?”
Leave a Reply
Support Aria
There are many ways that you can support Aria.
- Bank deposit
- Cheque by post
- Contact us directly
Subscribe to updates
Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 13 Feb at 3:21 am
Allan says:Hey I want some of that stuff too 🙂
Really good to hear things are picking up a bit. Hope you all get some good rest soon.
# 13 Feb at 5:56 am
Jodee & Matisse says:HI Anita
Pleased you decided to go ahead and give ‘it’ to Aria. I think it will pay off in the long run. And I agree parents should be aloud some too!
# 13 Feb at 7:00 am
jen says:hang in their
praying for you all
praying you will be home soon
# 13 Feb at 10:13 am
Samantha says:I think anything that makes it less traumatic for you all is good. And really in the scheme of all the toxic meds we have to give our kids its not one of the major’s! Sounds aweful to say that but Aria’s mental wellbeing and yours is more important.
Will be hoping you have your ‘family reunion’ at home very very soon.
# 13 Feb at 5:20 pm
Ali/nerdygirl says:Hey Anita!
Sorry I havent visited, clinical has been more intense than I expected. I will try again tomorrow but hopefully you will be gone by Friday!
Ali xoxo
# 14 Feb at 10:21 am
Steph says:Hi Anita & Hamish,
Thinking of you guys at this frustrating time. It sounds like Aria has everyone under control though :)-
Praying that you will all be able to be home together soon.
Steph VG xxxx