Sunday morning update
Nothing much has changed overnight. Currently Aria is 37.2 which is a great temp. Although it is hard to get excited because this mystery illness cause her to go from 36.8 to 40.8 and back again with a 24 hour period.
Her blood sugar is doing crazy things and we are nervous. It is going from 32 to 2.5 within hours. 32 is a very very high number and 2.5 is about a low as you would want to go.  There is no explanation for that either 😕
Hamish and I are hoping to get out together this arvo. Fingers crossed because we are fairly desperate to get out. Hamish has had nothing but hospital and work for a week now. That is very challenging mentally and he is tired.
7 Responses to “Sunday morning update”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 31 Aug at 12:44 pm
praying for you all
I pray God can keep you strength and preservance
# 31 Aug at 2:24 pm
Hugs to you all.
# 31 Aug at 3:13 pm
Hopefully the temp has broken. I hope you two get some time together this afternoon, it’s so important to look after yourselves as well as everyone else.
Much love,
Ali xoxo
# 31 Aug at 10:17 pm
Thinking of you all! I hope Miss Aria is on the up now and you will get to go home soon, with no ill effects from her bugs
Love to you!
xoxo Natalie
# 31 Aug at 10:18 pm
Just letting you know we have been praying for you all – hope you get back home soon. You are amazing , strong parents, Aria is blessed to have you.
# 1 Sep at 12:20 am
And we are all blessed to have Anita and Hamish in our lives. Yes, Janet and Steve; they are amazing people, and Aria and Asher are amazing children. Their strength could be coming from only one Place.
# 1 Sep at 9:11 am
It’s such a beautiful sunny day today and it made me think of you Aria. You bring such sunshine to our lives…
Josie & Simon and Izzy and Ella are sending their love and prayers to you today. Your photo is on the welcome board and Izzy gave you a kiss this morning and said “Awa”….Can’t wait to see you soon princess! Lots of love always xxx