Go Uncle Bruce
http://www.fundraiseonline.co.nz:80/BruceLevi/
Aria’s Uncle Bruce is doing a half marathon and raising $ for Aria. Go Uncle Bruce!!! Stop by and support him, such a great idea.
We had clinic yesterday and that was interesting. We brought Rebecca with us which was fab because we actually got to talk to Dr E and hear what she said without having to entertain two children. Anyway a mixed bag of stuff.  We are off to transplant hopefully this year which is ‘good’ news but Aria’s kidneys are starting to struggle and it was the first time we have heard the word ‘dialysis’. This would be a bad development in her health and we are praying we can avoid this.
5 Responses to “Go Uncle Bruce”
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Go Uncle Bruce
http://www.fundraiseonline.co.nz:80/BruceLevi/
Aria’s Uncle Bruce is doing a half marathon and raising $ for Aria. Go Uncle Bruce!!! Stop by and support him, such a great idea.
We had clinic yesterday and that was interesting. We brought Rebecca with us which was fab because we actually got to talk to Dr E and hear what she said without having to entertain two children. Anyway a mixed bag of stuff.  We are off to transplant hopefully this year which is ‘good’ news but Aria’s kidneys are starting to struggle and it was the first time we have heard the word ‘dialysis’. This would be a bad development in her health and we are praying we can avoid this.
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Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 18 Feb at 8:49 pm
Oye…. hugs to you guys. That’s some heavy thinking there, but I know you have strength. Please give the kiddos a hug for us.
# 19 Feb at 6:36 am
praying for you all and especially Aria
off to see what uncle is doing 🙂
# 19 Feb at 10:31 am
Way to go Bruce! Good stuff!
Praying for you all as you contemplate what the future holds this year.
xxx
# 19 Feb at 12:03 pm
WOW!!! Shot to Bruce and yes hope all goes well thoughts and prayers going out to your family esp Aria. Take care God bless.
Keep the faith thats all where it lies
love the Sulusi and Taliu family xOx
# 19 Feb at 6:15 pm
Ahh poor little Aria, the kidneys make things so hard, as many of the anti rejection drugs they use after transplant can be really toxic to the kidneys…… We’ve done this where we’ve put people on a stint of dialysis to help rest/recover their kidneys, either pre or post transplant to help them cope with the anti rejection drugs amongst other things.
As always we’ll keep hoping and praying for the best and will keep up to date with developments