Clinic yesterday
Clinic yesterday was long, mainly because I ask too many questions. Most of which I don’t really want to hear the answer too.  Coupled with the fact that I don’t think well on my feet. I find myself saying Yes I understand when really I don’t. I don’t know why I do that, it annoys me cause I feel like I am not telling the truth. But at the time I believe I understand but as I drive home have time to think and realise the conversation raised more questions than answers.
Aria was really good and let Dr E feel her tummy which was nice and soft. Then she headed to the playroom with Asher and Rebecca and had a great time there. Thanks Rebecca. Most mums will tell you that having peace to have a conservation is such a gift, more so in a hospital environment.
We got some more feedback on the sodium error, some answers as to how it happened. I thought this would help but it didn’t. It just brought the whole ordeal crashing back. Yuck. And was more upset to learn final answers and a published report will be up to a year away.Â
We also had a conversation about Aria’s survival post transplant. Yuck. Emerson is heavy on my heart at the moment, things are difficult for her post transplant. Please pray for this little girl and her family, they are in need of a miracle and hope.
Oh- and the MRI – no answers there either. It was normal. So why Aria’s liver is misbehaving and her bile isn’t draining is still and may always be a mystery.
Update Phew- just had a phone call from the service manager at Starship. Thankfully it should be another six weeks before we get answers or a final report anyway. I am starting to realise that this issue is going to be painful and difficult regardless of how much we don’t want it to be. I can see how it would be easy to get bitter and angry. Which is the last thing I want to be.
12 Responses to “Clinic yesterday”
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# 6 May at 12:07 pm
Thinking of you. Have you contacted devin’s mum for some support? Emerson is on my mind too. She seems to have a real battle with her immune system as well as the new organs. Please call me if you want to chat or meet for girls night ok. I’m always here.
# 7 May at 3:57 am
I’m sorry your day was so tough. I too have been OVERLY burdened for Emerson….can’t imagine how it’s affecting you! But….then you can look at Devin and see a completely different side! I understand what you mean about saying “yes, I understand….” when later you realize you really have no clue what the drs. were saying. I am the EXACT same way!!!! Please know we are praying for Aria and your sweet family. GOD is good….He is faithful!! We just have to take each day as they come. One step at a time.
Now may the Lord of peace himself give you peace at all times and in every way……………. (2 Thess. 3:16)
Your friend in Texas
# 7 May at 8:48 am
Thinking of and praying for you guys. I guess it would be easy to be bitter and angry but require even more strength to be the opposite. Not having been through anything remotely similar I admire your courage and please know that people are praying for you guys everywhere. xxx
# 14 May at 8:12 am
Hummm êtes vous certain de ce que vous nous affirmez ??
# 16 May at 3:53 am
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# 17 May at 12:23 pm
Excellent post : comme d’hab
# 21 May at 2:50 pm
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# 7 Jun at 4:03 am
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# 20 Jun at 11:34 am
Je remarque tout de suite que vous connaissez très bien ce que vous dites
# 24 Jun at 5:11 am
Excellent article, comme d’hab
# 10 Jul at 9:37 am
Poste super attrayant !!
# 7 Aug at 11:19 am
Јe suis clairement en accord avec vous