Off to Starship :(
Massive bummer 🙁
Aria chest is not clear as we had hoped and the GP reckons because Aria’s iron is low at the moment her oxygen levels might be compromised too. Low iron means oxygen isn’t getting around the body well anyway but if you add in trouble breathing as well it isn’t a good recipe. Update Aria’s O2 stats are 100%, that’s good news.
So disappointed for her. For regular kids this wouldn’t be too major. But because Aria can’t have oral antibiotics (her gut can’t absorb them) she needs to go to hospital. And if there is bugs in her chest they might start having a party and their chosen hang out place would be her central line. Yikes! That’s the last place we want bugs considering it is 9 months since her last line infection and we plan to make it a year.
Sometimes this is so hard and I just wish we were a normal family who didn’t have this stress all the time. I wish I didn’t have to watch my daughter struggle all the time with poor health. I am so proud of her cause she copes well but I wish it was different for her.
I am also not well with a temp and bad cough and was hoping to rest today and have Ham manage the kids. Well that’s not going to happen with Ham with Aria at Starship and Asher here with me.
I realise this blog is turning to the MacDonalds Moanings which I imagine makes for boring reading. Sorry about that! I hope there is some positive stuff to read soon.
4 Responses to “Off to Starship :(”
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# 1 Aug at 1:13 pm
“MacDonalds Moanings”? Behave! 😉 Its important to keep up with the news and hear the good with the bad, as we are in it with you all for the total haul, not just for the good news bits. One has to know what to pray for, as well as give thanks for! ‘Love you all!
# 1 Aug at 3:37 pm
I’m sorry that Aria is so sick! I pray she gets better A.S.A.P! I also pray that you get some much needed rest!
# 1 Aug at 6:51 pm
Hang in there buddy! This WON’T be forever but I know it must feel like it right now. One day you will have forgotten about this struggle and be living a new normal life. Wish I could come and look after you and Asher – just can’t risk the bugs ourselves but with you in spirit.
# 2 Aug at 5:48 am
NO!!! Don’t ever think you are moaning! This is life. And one that you have been given for a very specific reason. Even though it seems unfair to us….God sees the big picture. Stay strong! You VENT as much as you need to. Sometimes it’s the only thing that helps you get through tough days/weeks. I know and understand my friend.
We love you and PRAYING for good health!!!!!!