An average night
Poor Hamish had the night shift at hospital last night and had a terrible migrane at about 2 am 🙁
Thankfully I had arranged with my sister to take Asher today and I will head in very soon to relieve him so he can rest.
Aria had an ok night but this morning had quite a big nose bleed which was a bit upsetting for her. Thankfully the nurse and consultant were there to see it and help Hamish.
The plan is for another blood transfusion tomorrow because of the nose bleed and an ultrasound on Monday. Her temp is mid 37s which is a bit better.
The nose bleed is a bit unsettling for Aria particulary but us as well. New symptoms are always difficult to interpet particulary given the fact we aren’t doctors!!  We feel the sicker Aria gets the more she belongs to the hospital and less useful we feel as parents. Yuck. But the worst part is watching her struggle and decline, her life is really tough.
Anyway enough of that! The more she struggles the more we cling to God and His promises to us. And the fact Aria is His child and He has given us the special task of being her earthly mum and dad.
Lori- Aria has been on Omegaven for about 2 years now. Perhaps that helped her liver from declining further or quicker. We aren’t sure if we will be able to access it in Omaha though, do you know if Caed was on it? I like your comment on the class photo- awesome!
4 Responses to “An average night”
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# 17 Oct at 12:46 pm
Aria is continuously in our prayers, God is with you, praying Aria feels better love you all
# 17 Oct at 1:07 pm
Migraines are horrible to have! I hope Hamish is feeling better now! I really wish I could help you somehow! I wish I was a doctor that could help Aria! May God lay His healing hands on Aria!
P.S. Remember the girl Marcie Sower I told you about a while back? She was at the top of the transplant list here, but was taken off of it, because she has an infection that won’t go away. This is very bad, because that basically was here only hope to get better! Please pray for her, & her parents! I don’t know her parents, but the mom’s name is Katie. I forgot her dad’s name.
# 17 Oct at 1:08 pm
I meant it was *her* only hope.
# 18 Oct at 3:09 pm
ha!! I’m sorry….feel kinda dumb telling you about that. NO, Caed was never on it. He was only on TPN 5 months. About the time his liver #’s were looking bad….we began weaning him off of it, so never a need for it really. I am not sure about it in NE…..but do know LOTS more hospitals in US now are using it. I saw something somewhere the other day that the University of NE was doing some research on it, etc…..I could ask the transplant team next week when we see them. 🙂
Still praying for little Aria!!!