Sunday on leave
Aria’s temp was perfect overnight and she was pretty perky and happy this morning. It seemed like the right thing to do to ask to go home on leave between AB doses. The consultant gave the green light so Hamish and Asher picked us up.
We had a nice day at home. Asher went to spend some time with Aunty Megan and Uncle Bruce and the cuzzies. And Aria had a big sleep so Hamish and I got to de-brief which was nice.
The plan for tomorrow is an ultrasound on her liver to see if there is some sludge or blockage. The biopsy has been put off because apparently it isn’t a good idea to stick a needle in a liver if there is an infection. Makes sense really!
Then based on the results there will be a brainstorming with the big brains of Gastro to see what, if anything can be done.
Either her liver isn’t draining correctly or there is TPN related liver damage. Not sure which one we want. Neither really.
God has preserved her liver thus far. For that we are grateful and praise Him. So we keep asking Him for the green light for Omaha. We are so close!
Thanks for checking in on us.
6 Responses to “Sunday on leave”
Leave a Reply
Support Aria
There are many ways that you can support Aria.
- Bank deposit
- Cheque by post
- Contact us directly
Subscribe to updates
Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 18 Oct at 8:14 pm
Thinking of you all xxx
# 18 Oct at 10:13 pm
We prayed for you all at church today. Great you could have some family time together.
Continuing to pray for 1 December!
In Christ
Tony
# 19 Oct at 6:26 am
hope it is all okay and can’t wait to hear if you get any news on Friday about your departure!
# 19 Oct at 7:40 am
Praying for you, & all that you have to go through! I pray Aria gets to come to Omaha!
# 19 Oct at 8:22 am
Thinking of you and praying hard for you! xxxx
# 19 Oct at 7:52 pm
Thinking of you guys and praying you all. Let us know if there’s anything we can do xxx