Another busy day
Things here are hectic. Needless to say the shine has come off and we certainly don’t enjoy living our lives at such a frantic pace. Just managed to eat today only twice though!
More importantly it is Asher’s birthday!! So glad he has no idea because he would be feeling fairly ripped off. But we did manage a cake care of the play team and decorations and presents. He was pretty happy. He is such a good little boy and doing really well.
Aria is pretty grumpy and I am dreading the night shift. She is just so unwell and it is really difficult to deal with. There are just meltdowns and nothing we can really do but stand there and watch it. And of course they always come when Hamish and I are busy with people. The psychologist came today and of course I was alone with both kids and Aria was having a meltdown. Couldn’t of been worst timing, talk about pressure to perform.
We had a final meeting with the transplant co-ordinator. It was not pleasant but nothing we hadn’t heard before. They are wanting to get her on the list tomorrow, that is a big deal. Who know when organs will come but for some reason I hope not to soon because we need some normal. That is crazy to say because we are desperate for organs and quickly.
The film crew have finished now which is a big relief. It has been more difficult that I thought it would be mainly because it has mostly been me filming and talking. And it has added another complicating factor to an already difficult situation.
Anyway being that there has been no time to eat here has been no time to communicate either. There has been high level negotiation with Aria for a moment to type this blog. We desperately want to touch base with our new Omaha friends but it hasn’t happened! Sorry everyone! Have got lots of nice messages and emails but barely had time to fully read them all let alone reply! Sorry everyone!!
Anyway hopefully the next blog will contain news she has been listed! Great stuff.
12 Responses to “Another busy day”
Leave a Reply
Support Aria
There are many ways that you can support Aria.
- Bank deposit
- Cheque by post
- Contact us directly
Subscribe to updates
Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 11 Dec at 12:17 pm
You are so good to keep us all updated!! I’m sure I speak for everyone who reads this blog when I say we understand if you’re too busy!! So good to hear from you tho, they sound really keen to get things moving for Aria which is fantastic. Wouldn’t worry about the meltdown in front of the psychologist either – it’s a good window into what your life is really like! Take care, and happy birthday Ashie!
Ali xoxo
# 11 Dec at 12:29 pm
Thank you Anita for taking the time to update us all. Do what you need to do with your family and don’t stress what others think…GOd is with you, wanting you to be His servant in this. So often we can put pressure on ourselves or others and really it’s our walk with God and our family that are important and others understand and help through. We are continuing to pray for you all as you walk this difficult journey.
Happy birthday Asher…great that he’s settling in with the flow…
“Be still and Know that I am God” 🙂 May God’s peace and comfort surround you all.
With greetings,
McLays 🙂
# 11 Dec at 12:59 pm
Hang in there sweetie – this time just before transplant is going to be stressfull and hectic for you. It will get better it really will. Just remember to take a deep breath every now and again and once the assessment process has taken place you will be left alone a bit more to get on with things.
Take care and thank you for updating – we love hearing about you!
# 11 Dec at 1:18 pm
You are doing great!! Stop and breathe though ok. Thanks so much for finding time to keep all of us watching updated, but we do understand that it is not always possible and we cant wait.
Huge hugs to you. It will be amazing to hear that Aria is on the list and ready to receive.
# 11 Dec at 3:06 pm
Sorry things are SO crazy for you. It’s times like these I wish I were there to at least bring you some food or watch Asher. And I can completely empathize with you on the “bad timing meltdowns.” Oh…do I ever remember!!!! They are emotionally and physically EXHAUSTING!!! Praying hard for you my sister!!
# 11 Dec at 4:12 pm
Howdy McDonald family..
Was talking to some family today about Chocolate and I thought of you guys, yall might have all kinds of chocolate in USA but I doubt you gonna find any that will measure up to the size of Cadbury Chocolate here. Keeping you guys in our prayers.. thanks for the updates!!
# 11 Dec at 10:30 pm
Hang in there my friend … take a deep breath and relax… everything is going to be ok 🙂
Sending you loads of cyber hugs
Jacqui and Kavahn
xxooxx
# 12 Dec at 12:45 am
Happy (belated) Birthday Asher!
# 12 Dec at 6:54 am
Hang in there! You’re doing great! I’m glad that Aria will be on the donor list soon, but like you said…you need normalcy. I’m sorry to hear that Aria was in a grumpy mood.
# 12 Dec at 7:48 am
Happy birthday Asher! God’s blessings to you all!
# 12 Dec at 10:41 am
Health professionals we are a demanding bunch, and fixated on achieving what often seems the impossible. It is ok to say hey stop for a second…let us catch up – you and Hamish have always been good at this don’t be afraid to let your voice be heard. It is heartening to know that the team want to get Aria listed ASAP, from that point on life will be unpredicatable – hopefully you will have a window of opportunity to adjust and enjoy both Aria and Asher, but you also may find that this will be a quick process with no real way to prepare for the emotional roller coaster. Stay strong in your faith it has always served you well, and remember to do the basics – be nice to each other! Parenting in public is hard work – but remember the teams won’t be afraid of Aria’s behavior and will be nothing but understanding – it has been a big week… and you are so much closer to your dream for Aria hang in there and be kind to yourselves.
# 12 Dec at 1:11 pm
Belatted happy birthday to asher.Just as well we had a family one before you all left.Hard to get around the fact we are infront of you.Great you could go to target,every thing there would be bigger than big larger than large.I found that in europe/uk.The pressures you both are under are huge may God grant you extra of all you need