Pushing her limits
Hamish here, with our new laptop I’ve lost my password to enter these things under my own name. With all the new fangled technologies you end up with about 1541 passwords and if it is not the same as the other 1540 it’s pretty tough to remember.
Anywho, it’s Monday night here and we’ve had an interesting 24 hours.
Firstly Aria slept a lot yesterday during the day, we were putting it down to just being sick, WRONG, it was her preparing for being up till 4.45am without as much as a nap. I finally called it quits at about 4.30am and tagged Anita in. She finally got to sleep just after Anita arrived, phew.
Secondly we encountered the peculiarities of the american medical administration. In America they can’t prescribe IV Panadol. This has been a useful tool for treating temperatures and pain in Aria and similar kids for sometime, but for some reason the US Drug administration (USFDA?) hasn’t approved it’s use. Strange a country pushing the envelope in a lot of areas doesn’t allow the use of a fairly simple ane straight forward drug.
There was also some talk of trying to suck some of the fluid in Aria’s tummy region out this morning. An ultrasound was done but no word on whether they are going to proceed. Hopefully it would relieve some of the discomfort.
Finally the reason for the post title, today Aria did a lot of walking (well relative to her normal zip, zero, zilch). The physical therapist who has taken Aria on came to see her this morning just after her ultrasound. I was a little nervous about things, but Aria blew me away with what she was able to accomplish. She wasn’t necessarily happy about doing it but she did it none the less. The PT was really good with her, challenging, encouraging, manipulating and praising her to get up and about. It’s important Aria is as strong and resilient as possible for the transplant when it comes so we are glad to see some success in this area. Just now Anita reports Aria is on her feet again, YAY for you Aria.
The second to last point of note is that Anita and Asher are both a wee bit poorly at the moment, please add those two to your prayers to, for a quick recovery.
Finally, one of the transplant co-coordinators said she was shocked we didn’t get organs over the weekend. We aren’t; we’ll get them at precisely the right time in God’s eyes and we can live with that.
12 Responses to “Pushing her limits”
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# 15 Dec at 1:56 pm
Right with you guys… praying for health for all. Good on you ARIA! What a star! May you know peace and physical rest. Much love.
# 15 Dec at 1:58 pm
Thanks again for the updates…we all love getting on and seeing how your day/week has been…may God continue to encourage. Remember when your heart is over whelmed to go to the ROCK that is higher than us…God…He is there in all and His time is perfect. Praying for the needed health and strength, wisdom and joy of going through all that is happening. God bless
McLays 🙂
# 15 Dec at 2:14 pm
Good on ya, Aria – keep up all the good work! Trust Anita and Asher will soon feel heaps better – is it the orange cheese perhaps?!!
# 15 Dec at 2:43 pm
Sick bug hit our house this weekend too! Praying for you Anita (and Asher). And YEA for Aria and her walking!!!! Nothing wrong with a little manipulation now and then…..haha
# 15 Dec at 2:46 pm
Great news Hamish! Praying for Aria that she keeps on keeping on, and also for Anita and Asher to feel better soon too. xxx
# 15 Dec at 8:00 pm
Good to hear Aria was up and about, here’s hoping the exercise will help her to sleep tonight. Hope Anita and Asher are feeling better soon. Love to you all
# 15 Dec at 10:08 pm
The Billy Fury Fan Club are thinking about you & hoping everything you are doing will turn out just superb. RockOn Like Fury! Lotzaluv & XXX’s ~ Moya.
# 16 Dec at 6:04 am
Way to go Aria!!!! YAY for doing lots of good walking! We’re so proud of you! You are such a strong and brave little girl. Love you lots. Hope Ashie and Anita feel better real soon xxxxx
# 16 Dec at 6:06 am
P.S Did Aria and Tre` have a “let’s stay up all night for our parents plan”? Tre` did exactly the same hehe! The little man is teething big time.
# 16 Dec at 7:26 am
You all have been through so much! I hope all of you get a good night’s sleep! Yeah, it is weird that the USFDA wouldn’t approve that drug, but they are strange when it comes to things like that. I’m sorry to hear that Anita & Asher are feeling poorly! I pray they have a quick recovery! I’m happy to hear that Aria was walking! That’s great! I pray things continue to go well for your family! God Bless!
# 16 Dec at 10:47 am
I guess the differnce time frame will be effecting her too.
I hope they have had success at draining her tummy and that it has given some relief. Plus its great news to hear that Aria is walking.
Always thinking of you all.
# 16 Dec at 1:59 pm
Hi beloved Macdonald family. Thank you so much for keeping us so well updated – it is so much appreciated. We check your blog every day with much anticipation! God is really answering prayer for you guys and it is exciting to watch. We pray (and feel) for Anita and Ashie, that they may experience a super-fast recovery. Love you and miss you xxx