Hello Aria Fans
We keep hearing about the many people checking our blog daily. So we try to please you Aria fans with the latest news.
Except that we know the perhaps ‘pleased’ isn’t the word the we might use. Then maybe it is. Aria had another blood transfusion today which means she stays Status One for another week and at the very top of the list and another week in PICU. But the downside is is that she had another blood transfusion today because it appears as though she is bleeding thru her stomach. When a person has a hard scarred liver the body redirects the blood flow thru less used veins and back thru the stomach. Actually I know there are doctors and nurses reading this and they will probably give my explanation a 1/10!
So they are trying a new med to slow down blood supply and there is another one they can use if that doesn’t work. Beta blockers for those in the know. So I commented that ‘at least we have a few cards to play’. The reply came ‘yes we do but we are playing them earlier than we would of liked’ The nurse practitioner rang the transplant surgeon and informed him of Aria’s new developments and told him Aria needed organs tonight. Even though he is the Professor he isn’t God and only God know when they will come.
There is a snow storm coming to Omaha and we are pleased to be safety tucked away in hospital. Still haven’t checked the cafe is open for christmas dinner!
Hamish finished the bank account opening and we now have accounts. We have internet banking and debit cards. The lady at the branch asked we would like some temporary cheques (or checks) and we said ‘Ummm no’ Of course Hamish being the cheeky pants he is said wanted to say ‘Umm no is this the 1980s who uses cheques anymore’ Ha ha. At home we rarely used cash and now we are juggling heaps of one cent pieces and strange notes that all look the same.
Aria managed some smiles yesterday and even a wee giggle thanks to the antics of her crazy little brother. There are these drinking fountains around the place and Ash likes to try and turn two at the same time and splash water on his face (will post a pic later so you know what I mean). And he likes to ride baggage carriers, standing up while we push him (slowly- don’t worry). All very funny to Miss Aria.
Uncle Bruce- yes we think an extended whanau trip to Disneyland would be epic and O for awesome! I can imagine all five kids on the teacups ride until someone lost their lunch. ha ha
14 Responses to “Hello Aria Fans”
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From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 23 Dec at 3:22 pm
Yes we have had the same problem with the greenbacks as they call them!! And those tiny coins that don’t buy anything! Oh well nothing like travelling the world to appreciate one’s own country.
We’ve been seeing snowstorms on the news. keep inside! Very nice to look at through the window.
We open the mail several times a day just to see if Aria’s website has been updated. Yes we are definitely Aria fans!
Love you heaps
# 23 Dec at 3:27 pm
Hi Hamish & Anita (& kids)
Our family along with the many others are remembering you much in prayer at the moment. We ask that God would sustain you through the ups and downs and give you wisdom as you make decisions for the health and wellbeing of your family. We are also praying that the Lord in his goodness might see fit to provide Aria with organs soon. It is so hard even praying when we do not know what his wisdom is on these matters or even the timing and yet still we ask trusting that He is our Heavenly Father that cares for all our needs.
I was reflecting on your mention in previous posts about Aria’s acting out and particularly when she is in pain. It made me think about the fact that when we are “squeezed” by the struggles around us that is when our true heart comes out. There is no wonder that the trials she is going through will bring out some heart issues and struggle. I guess the parenting challenge is how to gently help her grow from this. We will pray for wisdom for you guys as we plead for wisdom in dealing with our own sleep deprived 2 year old!!!!
Trust in the Lord with all your heart (Prov 3:5-6).
Jess & Mark
# 23 Dec at 3:32 pm
Saw little Sam this arvo – and he’s looking so lovely and handsome, even gave me a smile and made my day – thinkng of you all lots, and praying the organs are not far off.
# 23 Dec at 7:13 pm
Hi!
I read your blog everyday but hardly comment because i never know what to say!
Just wanted to let you know i’m thinking of you all.
Liz
# 23 Dec at 8:44 pm
We are all just waiting for the joyful day when Aria gets organs!! I check in here everyday, but I don’t expect you to update every day!! It’s just nice to see you on the road to transplant, finally. Merry Christmas!
Ali xoxo
# 23 Dec at 9:09 pm
thinking of you all.
wishing you peace and joy this christmas.
hugs
xxx
# 23 Dec at 10:02 pm
I have often looked in on the blog since Clare and I bought your keyboard, but it’s been a while and now I see you guys are finally in the US!!!! My heart is with you all, and I’ll give God a bit of a hurry-up on your behalf 🙂
Stay strong, but don’t ever be afraid to voice your fears and doubts either….He understands.
# 23 Dec at 10:15 pm
I’m another who checks in daily. You are amazing for managing to keep us up to date so well, despite having so much to cope with. Will keep praying for you all. With love xxx
# 23 Dec at 10:35 pm
Hi, guys, I check in daily too. Just wanted you all to know I’m thinking of you, and hope Christmas is as good a time as possible for you (of course, organs for Aria would be the ultimate Christmas present – that, and a speedy recovery!).
Stay strong.
# 24 Dec at 10:20 am
the photos of you guys in the snow brought tears to my eyes – keep up your strength wee aria – praying hard for you and your family – i hope that christmas brings special love and joy to you all
# 24 Dec at 4:29 pm
I’m glad that Aria was able to smile and laugh a little today! I’m sorry that she had yet another transfusion. I pray she will get organs very soon!
Lol, about the pennies. I like them, because I can give the cashier exact change. The U.S. Gov. have talked about weening them out, but they’ve done that a few times & it never goes anywhere, lol. While Omaha gets that snowstorm, Michigan (where I’m from) will be getting freezing rain, then the snow on Christmas. I hope you stay warm & cozy! I hope you get a nicer Christmas dinner than cafeteria food from the hospital. Have a very Merry Christmas! God Bless!
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