PICU Spa
Aria is awesome. After the drama of this morning she recovered pretty well. Actually she was fine, it was me that was dramatised, Aria seems to take it in her stride really well. I continue to learn from this brave little girl.
She needed a bath so Aria had a PICU spa day. There was the nurse and two other nurse techs and myself. I joked to her that people pay good money to have four people pamper them at the same time. We washed her and then washed her hair. She did really well and let two nurses work on her hair while I read her a book. They managed to get the big dreadlock out of the back of her hair. I was so grateful cause I wasn’t looking forward to tackling it. But now it will be easier to manage.
We had had visitors, Carol and Fran which was really nice and we took them on a ticky tour of the hospital.
Now Aria is sitting on the hotel bed and her and Asher are watching TV. It is a tiny taste of normal, really nice.
Thanks for all the beautiful comments, they really lift our day and remind us we are not alone.
Those organs need to come. We are nervous to ask the big questions and just want to know Aria has time to wait. I think she does, she didn’t need a blood transfusion today, so that was great news, particularly after such a big bleed.
God has brought us so very far. I have this stubborn peace in my heart, that is almost annoying, that Aria will get organs. Annoying because it is just a waiting game.
We got lots of brilliant presents this year, Laurie who is a friend and supporter of Aria’s painted this awesome picture of the kids, I will post a picture of it. She painted this verse around the sides.
Psalm 34:4
4 I sought the LORD, and he answered me;
he delivered me from all my fears.
Thank you Laurie, this means a lot. This is an awesome verse, we pray for deliverance.
13 Responses to “PICU Spa”
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Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 28 Dec at 1:25 pm
Great to have the support of the hospital staff and enjoy a spa!!! So many experiences to share together. Even getting dreadlocks out.
Have a happy evening together dear cuzzies.
# 28 Dec at 1:57 pm
Ah, so glad you get a few brighter moments today. You are doing amazing, x
# 28 Dec at 2:39 pm
Wonderful that Aria is feeling better and enjoyed her spa treatment.
We are all thinking of you and following you on this journey. You both are amazing and are so so strong, both in heart and in your faith. Always remember to take a moment for yourself to breathe.
huge hugs to you all.
# 28 Dec at 3:04 pm
Wonderful that there are moments of sunshine in your days. Yay for no blood today, for kiddies enjoying each other’s company, and for the little things like untangled hair. Thinking of you all often.
xxx
Sheryl
# 28 Dec at 3:24 pm
Praying for your family tonight.
# 28 Dec at 3:53 pm
I’m glad to hear that the day ended well! Oh, you have more gifts coming. I wasn’t able to send them before Christmas. I hope you will enjoy them, when they get there. Aria is one blessed little girl to have a spa day!
# 28 Dec at 6:45 pm
Oh I am so proud of you for remaining positive! Don’t ask questions the doctors can’t really answer – it won’t make you feel better. I have always felt that Aria will get her transplant.
# 28 Dec at 7:23 pm
Continuing to lift you up in prayer. I can’t imagine how frustrating the waiting game must be. But am so glad you can know God’s peace throughout all this. Patience is such a hard fruit of the Spirit to learn! I feel like God is continuously having to teach me it! Love to you all
Jo xxx
# 28 Dec at 7:42 pm
Nup! You aren’t alone! That’s for sure:-)
The bath sounds great!
Our love as always
xoxo
# 28 Dec at 8:50 pm
Glad Arias is doing better 🙂
God is good 🙂
Praying those organs come very very soon
HUGS
# 29 Dec at 10:40 am
nice one Anita, you’re a good mum!!loving you guys so much at this time
# 29 Dec at 5:50 pm
the light of god is strong within you and surrounds you – much peace and love
# 29 Dec at 10:10 pm
The best hair care solution I have ever tried using was and is scalpure. I just don’t want to buy 2 or 3 separate solutions to do everything.