Warning: This post only contains good news
Another great day in blizzardy Omaha.
Where to start, Aria had a great nights sleep last night. She went to sleep at about 11pm and slept right through to 5.30am in the morning. For a long while Aria’s nights have been very disturbed by pain and discomfort, but last night she slept like a baby.
This flowed onto an energetic and adventurous morning. For the first time since we got on the plane in Auckland, Aria was fully dressed today!! Now there are some of you that find that surprising to hear, but Aria normally rocks around the hospital in a onesies and blanket or a hospital gown and blanket. Not today, Aria asked for her purple shoes and some socks so she could go walking on her feet. She also chose some pants and a top to wear and topped it all off with her favourite hat.
Aria then got up and walked to her pram. The new rule is that Aria has to walk to her pram and back to get walks off the ward. This arrangement is working beautifully and Aria is up and off racing.
After our walk while we waited for rounds, Aria and I got her tool box out and we stood at the end of the bed for about ten minutes ‘fixing’ her bed. I was amazed at her increased stamina and ambition.
Just before lunch we left Aria with Auntie for a while so Anita could satisfy her BBQ craving. When we got back Auntie and the physiotherapist has Aria doing even more walking. Aria walked up and down the halls of PICU in front of the nurses station while all the nurses ooohed and aaahed and cheered her on.
It has been a great day, Aria is as good as we’ve seen her in months. All this walking is building her strength which is vital pre-transplant, so while we eagerly anticipate transplant this delay is serving well to get Aria into the best possible shape for it. Just another example of God having a plan for each and every circumstance.
28 Responses to “Warning: This post only contains good news”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 8 Jan at 10:47 am
So happy to hear this! 🙂 🙂
# 8 Jan at 11:09 am
Wonderful news, answered prayer. Thank you Father.
Love and may God continue to bless you.
Eve (England)
# 8 Jan at 11:16 am
What awesome news!!
# 8 Jan at 11:31 am
Great news. It will certainly give all of you an emotional boost and show God’s wonderful hand in your lives.How proud Aria must be to feel so good today after all she has been through recently.Prayers continuing from Texas
# 8 Jan at 12:06 pm
Wow – Fantastic news, though not surprised coming from Aria – All it took was for the team to get rid of the “nasties” and her amazing personality burst out again!
# 8 Jan at 12:12 pm
Hope the bbq food was great! I am so happy to hear Aria is getting her strength back and doing all the normal things she was doing before she arrived! She will be in the best possible shape for transplant which will make her recovery all the better. She must feel so awesome after her rough start to being in America so is making the most of her energy! This is the best atmosphere you need to wait in !
# 8 Jan at 1:03 pm
awesome
# 8 Jan at 1:35 pm
YAY!! *SO* good to read! GO ARIA!!!!!!!!!
Thinking of you all often!
# 8 Jan at 2:23 pm
So great to hear of the improvement as well as you being able to get the refreshing you need. How Great a God we serve and we continue uplifting you all to Him. Blessings at this time,
McLays
# 8 Jan at 2:32 pm
Awesome Aria! You are such a trooper! Such great news xxx
# 8 Jan at 3:03 pm
Go Aria! So lovely to come and read such good news. (it’s the 2nd best news I could have read)
# 8 Jan at 3:07 pm
So very true. God surely does have a plan . . . and its PERFECT!Keep walking Aria!
# 8 Jan at 3:48 pm
YEA!!!!! LOVE to read good news? (what’s a ‘pram’….btw?)
# 8 Jan at 4:05 pm
Such fantastic news! Go Aria!
# 8 Jan at 4:26 pm
Such a pleasure to know! You go Aria!
# 8 Jan at 5:36 pm
awesome stuff – go girl. go god
# 8 Jan at 5:54 pm
pleased its been a great day 🙂 🙂 🙂
# 8 Jan at 6:10 pm
wow, go Aria!! thats just awesome news.
# 8 Jan at 6:11 pm
what a blessing to hear this news-Truly encouraged. hope you get that BBQ-even if its a sausage on a stick over someone’s fireplace-(you guy are probably saying what a blues?) worth a try hehe.Love you guys xoxo
# 8 Jan at 7:12 pm
Great news, Aria sounds like a lovely little girl. Praying that she keeps well getting stronger for transplant.
Judy.
# 8 Jan at 7:33 pm
Oh how fabulous to hear this news. Your little Aria is going to be one of life’s battlers. Watch out universe she is a force to be reckoned with!!!! All the better now to be ready for the organs. Ooxx
# 8 Jan at 10:27 pm
Fab! So great to read your blog today…. how wonderful. YES!!!
# 9 Jan at 1:03 am
🙂 🙂 🙂
# 9 Jan at 5:49 am
Aww…that is wonderful news! I am so happy that she is doing so well right now! Praise the Lord!
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