Sound asleep
Aria is sound asleep next to me, it is 7pm here and I am hoping she is out for the night. She had a good day, still not as happy as she was but doing ok. Hamish was at rounds today and got some more info about where she sits on the nationwide list for organs. Safe to say she is very very high but I must admit I don’t really understand all the ins and outs of listing. Keeping hoping that she will get transplanted so won’t have to ask them!
Interestingly (and stop reading if you are eating your lunch) they are testing Aria for c-Diff bacteria. I think she must of culture this ages ago in NZ, I can’t remember the details. But she has been in isolation since we have got here. I kept wondering why everyone was gloving and gowning up. But yet she is able to go on walks all around the hospital. Ummm I am confused. Anyway back to the stop eating your lunch part. They have to get a stool sample. Which she is actually doing regularly since they started the flushing up the back end. So for the first time in her life she is telling us she is doing poos. So they got a decent sample today which I am pretty sure will come back negative.
Anyway, nothing particularly exciting to report. We are still battling to get our internet banking going. I have been told that NZ has one of the most advanced banking systems in the world so I think we have been spoiled! We took Asher to McDonalds today so he could play in their playground. Apart from being able to get Dr Pepper from the drink machine it was pretty much the same as NZ.
Aria is no longer sound asleep. One of the frustrating things about being in hospital is the multiple people that come in and out of the room while you are trying to get your child to sleep. Anyway better go.
9pm update- Cute story.
Me: “Aria mummy is going to the toilet, I will be one minute”
Me: “Hi Aria, I am back”
Aria: “Mummy- Aria missed you!”
Me: “You’re sweet Aria, I was only gone a minute :)”
Aria: “Hold my hand now”
Aria nods back off to sleep
Ok now she is sleeping soundly!
15 Responses to “Sound asleep”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 14 Jan at 3:18 pm
I am sitting here picturing you holding your wee girl’s hand as she dozes off. Hope you both get a nice sleep tonight. Sweet dreams.
# 14 Jan at 3:48 pm
Awww! Doesn’t it melt your heart knowing how much she loves you. Bless you all.
# 14 Jan at 3:59 pm
Awww, you have a sweet, little girl. Just as you hold her hand so God holds you both in the palm of His hand! Much love and prayer coming your way.
# 14 Jan at 4:37 pm
ah Bless her, she is such a sweetheart. Hope it is a wonderful nights sleep for you all. xxx
# 14 Jan at 4:42 pm
How nice to be missed so quickly!! Hospitals really stink for sleeping, huh. My sympathies, and I believe I speak on behalf of all health professionals everywhere when I say “SORRY for waking you!” It was one of the things I most hated to do at Star.
Thinking of you always.
Ali xoxo
# 14 Jan at 4:58 pm
Aria has a beautifully warm heart just like her Mummy! Still in our thoughts every day. Much love from us both.
# 14 Jan at 6:21 pm
Aria is just so awesome, just like her mommy & Daddy, and little Asher, God bless you all, miss you lots, love & Big Hugs
# 14 Jan at 6:29 pm
That is so cute and typical of a three year old. Rest well tonight.Still praying for those organs.
Yours in Christ,Judy.
# 14 Jan at 8:44 pm
arrr sweet dreams
# 14 Jan at 9:02 pm
So lovely that you can hold her hand and she falls asleep, what a wonderful thought!Sweet dreams little one. We are always praying for you and your whanau.
# 15 Jan at 6:28 am
sleep well princess
praying the organs come soon
# 15 Jan at 8:34 am
Awww… she’s such a beautiful wee girl!
# 15 Jan at 11:45 am
Awwwwww – honestly, she is the coolest most thoughtful, kindest, selfless and brave wee girl I have ever met. I miss you so much Aria! Can’t wait to blow bubbles with you again soon! 🙂
# 15 Jan at 1:34 pm
Really cut, what a little gem. Thinking of you, and checking for updates all the time.
# 15 Jan at 5:19 pm
Aria is such a sweetie. 🙂