Leaving it
THANK YOU FOR PRAYING! LOTS OF UPDATES !!!
Update Lots of you will know about my friend Lou’s fundraising effort on Facebook. But now her efforts have caught some media attention
Please join support Aria and Lou on Facebook HERE. Louise is an amazing photographer and participating in this fundraiser will be win win for you and Aria.
Hamish and I managed to get out again tonight for tea/dinner/supper. It was really nice and we were very conscious that they days before the family goes are quickly dropping away. This time next week they will be gone.
Our hearts are heavy with many things.
We have been given an excellent recommendation for a preschool for Asher that is very close to the hospital. A lovely nurse tech used to work there and knows a family that still goes there. But we know that the best schools often have waiting lists and we need something for Asher now rather than in months. God provided our lovely carers in NZ and we know He will again. I will be ringing first thing in the morning! Please pray.
UPDATE Rang the school this morning and looks like they may have a space for two day a week! Perfect! We have a tour and a meeting with the director on Monday morning at 10am.
We are also putting our feelers our for a car. Currently a very kind person has lent us his mustang! Super cool but we feel nervous driving it in the snow. Getting a car is such a big decision and we want to make the best and wise choice knowing we are spending Trust money. Do we lease/buy/long term hire? We have a contact at the local Ford dealership who has been very understanding of our situation plus we have others looking too.
Most importantly our hearts are heavy at the wait for organs. We so desperately want them to come while the family is here and have been praying and praying that this might happen. I can’t fully communicate the ins and outs of the situation but the team are working hard to make sure Aria is in the best possible place for getting the right organs. We are overwhelmed at the idea of doing transplant without the family but we pray equally as hard that if that is God’s choice for us He will strengthen us.
UPDATE Aria will get another transfusion on Saturday and will remain Status One for another week. Phew! We don’t want her to drop down the list. Aria had a good sleep last night and is pretty good this morning. Lots of funny photos which I will post soon.
Aria has had a so so day. A few moments of smiling and happiness but all and all not a happy chap. We so want a better life for her and it is so hard to watch her suffer.
Anyway- those are the issues on our hearts. Please join us if you will in petitioning our God for our needs. We are leaving it in His hands.
Thank you as always for your support!
13 Responses to “Leaving it”
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Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 15 Jan at 5:02 pm
It’s so hard, and I wish it wasn’t. Thinking of you.
Ali xoxo
# 15 Jan at 5:19 pm
Am praying right now! xx
# 15 Jan at 5:23 pm
Wow a mustang! Cool!
Lots on your mind, Ali hit it on the head, wish it wasn’t so hard for your family. Am truly amazed at your ability to keep on – keep on, and praying for it all to fall into place for you and for easier days. Love to y’all xxx
# 15 Jan at 5:23 pm
I pray that God would grant you a yes answer to your prayer, of getting organs while your family is there to support you! God Bless!
# 15 Jan at 5:51 pm
nice that you were able to go out to dinner
I pray that you may get something sorted for Asher
continuing to pray fr the organs
May God strengthen you both
# 15 Jan at 7:36 pm
Praying for you and thinking of you often. Thanks for all the specifics – it’s good to have specifics to pray for.
# 15 Jan at 8:00 pm
As Julie says it is good to have specifics to pray for. We know that God answers prayers but we get a bit impatient at times.I pray that He will strengthen you while you wait for His timing.
God bless, Judy.
# 15 Jan at 8:01 pm
Just as God has gone to Omaha before you, he will also have Asher’s care situation in his hands…and luckily we know that Asher is such a cool adaptable and social little guy, that as long as there is a sandpit, something for him to climb on, and food – he’ll be happy! But I’m sure you’ll get a feel for the place and the teachers and you’ll know you’ve found the right place 🙂
The Little Playhouse is certainly not the same place without the Macdonald family that’s for sure!!!
Praying for your needs, LOts of love always xxx
# 16 Jan at 1:48 am
And my God will meet all your needs according to His glorious riches in Christ Jesus!!! (Phil. 4:19)
# 16 Jan at 6:47 am
Thank you for the specifics. Praying for you heaps as I know it isn’t easy. I lost my son to similiar disease and I pray you all know Gods peace as you wait for organs.
Lots of love and prayers
# 16 Jan at 10:33 am
A day at a time! Great updates on the preschool for ashie and transfusion for Aria. Lots of love xxx
# 16 Jan at 6:48 pm
yay for the school space, yay for another week at status one…… so glad to hear the day is going well x
# 16 Jan at 6:49 pm
I pray quietly everyday for organs for precious Aria and truly hope these do arrive before your family return to Aotearoa as their support will be utmost for a speedy recovery for you all.
Kia Kaha e hoa
Jacqui, Kavahn and whanau