Safe and sound - Aria MacDonald

Safe and sound

23 Jan at 12:19 pm by Anita MacDonald

The family made it back to Auckland safe and sound which was nice to hear.  Alexandra text me to say all was well.  We will miss them, it was nice to have them over and hard to say goodbye.

Speaking of Alexandra- wasn’t her post just great!  I must of read it about 5 times, I was so proud of her and her insight into the situation.  Everything she said was spot on.  And we would echo her thanks to the many people that have embraced our family and now our extended family.  Thank you so much.  A special thanks to Carol and Cordell for hosting them for three weeks!  You guys are awesome.

Today our little family got back to a semi regular day.  Hamish spent the day with Aria and me with Asher but we meet up and swap over and hang out a bit.

Aria is due to come of Status One tomorror at midnight.  So we are hoping her hemoglobin(HB) drops overnight so they have to transfuse her.  I know- it is seriously weird, it is the exact opposite of what we hoped for at home!  They have also stopped her epo, which was a med to help her make red blood cells, in an effort to keep her HB dropping.  Bizarre!  The theory being better to have to transfuse her (and keep her Status One) than to drop down the list.

If her HB doesn’t drop and she doesn’t get transfused tomorrow then looks like discharge on Monday 🙁 This doesn’t thrill us.  We know she will drop down the list if she comes off Status One but what isn’t clear is if she starts from the beginning again.  The longer she is on the list the higher she climbs so will that be re-set if she comes off Status One? Hopefully I explained that correctly.  Hopefully tomorrow we will get more answers at rounds.

Aria is doing pretty well.  She is tired and a little grumpy at time but she does manage smiles and laughing at Asher’s funny antics.  She even managed to write her name yesterday!  It was actually really good.  The R was a little funny but you could tell it was A R I A.  Will take a photo and post her work soon.

In other news we finally got access to our internet banking!!  The vice president of the bank had to get involved.  It took us a whole month and many phones calls.  Then once we got access we had to request further access to get online bill payments!  I thought perhaps we were in for another month long battle with that but got access to that within an hour or so.  There was no way I was doing stamps, envelopes and cheques!   Still waiting for eftpos card which we now can have (you have to wait 30 days) and they will arrive in the mail in 5 working days!  Honestly the whole process has done our heads in.  But we are finally sorted which is great.

Anyway as I have been typing Mr Asher has fallen asleep in front of his fave movie Cars!  Better get him sorted.