A mixed bag
Today was a mixed bag for Aria. Â Some bright spots and some rough patches.
She is a pretty happy girl and sharp as a tack. Â You can’t pull the wool over her eyes that’s for sure. Â She knows exactly what is going on and tells you without a doubt what she wants (or doesn’t). Â You can’t even trick her by using different words cause she know what you are talking about.
Her NuNu popped out a few times today so that was a bit yuck. Â Looking forward to getting rid of that when transplant comes. Â Although not keen for it being replaced by an NG tube on her face. Â But the site is getting yuck- enough said. Â Also she had quite a bad nose bleed so that was a bit of drama. Â But her HB didn’t drop at all which was weird.
Got another organ offer last night. Â These organs were ‘good’ and Aria was the runner up and missed out to another child. Â So this means organs are very very close for Aria. Â Please keep the three (!) families in your prayers that have lost their little children in the past 7 weeks, it is very sobering.
Ok- only a quick update. Â A tub of Ben and Jerry’s Maple Blondie is calling my name 🙂
7 Responses to “A mixed bag”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 28 Jan at 2:18 pm
please the organs are so close
praying for you all as always and also the families that lose their child
# 28 Jan at 3:07 pm
May the organs come soon and the results be good is my prayer for Aria.
# 28 Jan at 3:56 pm
Getting close!
# 28 Jan at 5:36 pm
Phish food is the best – closely followed by cookie dough – or is it brownie?? we went through tubs and tubs of the stuff in the uk!!! Wish we could get in Aussie supermarkets!love xx
# 28 Jan at 7:39 pm
Ben and Jerrys is the best part about the USA!! Half baked is the best. Keeping fingers crossed perfect organs come soon x x
# 29 Jan at 6:07 am
I will continue to pray for Aria and that her transplant will happen soon. Love you guys!!
# 29 Jan at 8:45 am
I will of course keep praying for her! I know organs will come! They are so close, & I know God is in this!