Are we doing ok?
Aria is back on the 24/7 med to help stop her bleeding. Â She had had quite a bit of bleeding on Tues/Wed/Thurs. Â We are disappointed that she is permanently hooked up to the pump all the time without a break but it is better than blood gushing everywhere.
I found myself surprised as how well we handle the blood.  I was remembering this day and glad things are better now.  Not that we are happy about Aria’s bleeding, perhaps we are used to it.  And we know it could be worse.
Aria of course handles everything well. Â Mostly she just gets annoyed when we hold her nose to stop the blood and she can’t see the TV. Â Funny girl.
Of course all the bleeding meant that Aria had a transfusion yesterday and remains Status one for another week. Â Really really hoping this is the week. Â Not that we don’t pray for that every week.
Actually it was funny, this weekend both the Bullis’s and the Arm’s families are away. Â We joked that transplant better not happen cause some of our Omaha friends won’t be around. Â Not that we expect them to drop everything and rush in if they weren’t away but it is nice to have the backstop. Â Interesting about how God provides. Â One of the hospital staff members who we know well gave me her cell number and said she would be offended if we got the call and didn’t call her this weekend 🙂 Â She has two little ones and was kind enough to offer to take Asher whenever. Â So kind. Â Honestly, Americans are super nice people.
BUT overall I think we are doing well. Â We are not jumping around with excitement about the fantastic situation we find ourselves in. Â But we are managing day by day, enjoying moments and managing about 8 hours sleep a night. Â Everything feels better when you are rested. Â Aria is actually doing ok. Â Hasn’t had pain meds for weeks. Â Dare I say it the washouts have helped. Â They are every second day now. Â She is happy and chatty. Â Asher is a wild boy full of energy and life, such a good boy. Â Currently wanting to feast on butter out of the fridge so better wrap this up.
11 Responses to “Are we doing ok?”
Leave a Reply
Support Aria
There are many ways that you can support Aria.
- Bank deposit
- Cheque by post
- Contact us directly
Subscribe to updates
Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 31 Jan at 1:08 pm
Ali/nerdygirl says:What a cool post! I get a real sense of hope!
Love you guys
Ali xoxo
# 31 Jan at 1:50 pm
jen says:praying this is the week
and bless that nurse
# 31 Jan at 2:25 pm
Rolf and Helen says:Wonderful people attract wonderful people! Love to you all.
# 31 Jan at 2:27 pm
joyce says:Praise the Lord.I thank him for what he is doing in yours and Aria’s life. He is so faithful.
# 31 Jan at 3:30 pm
Tiffany Keller says:I know she will get those organs soon! God is with you! I’m so happy that you have great friends in Omaha!
# 31 Jan at 3:54 pm
Tony says:Praise the Lord for a more stable situation.
Praying for you all.
In the Redeemer
Tony
# 31 Jan at 6:07 pm
Samantha Sutherland says:Thinking of you all. You are doing a fantastic job and coping extremely well.
# 31 Jan at 9:51 pm
Haz and Roi says:Our youngest son Deveroux is always reminding us we need to pray for Aria. Praying on your behalf continually and always amazed a how amazing you both are!
# 1 Feb at 8:08 am
Natalie and Cody says:This week will be awesome for you guys – i feel it in my bones hugs from us in NZ
# 1 Feb at 11:36 am
Kathleen and Anita says:Hi Hamish and Anita!
We are back after a week away out of reach of internet. Sorry to have missed your birthday Anita, but there is something special about late greetings and it’s never too late to tell you we love you! Remember there are folk down here in South America who pray for you and ask after Aria.
You are doing a fantastic job there just being the MacDonald family, normal folk with an OUTSTANDING GOD.
We both send our love and lots of it.
# 2 Feb at 3:59 am
Cary says:We have not met, I go to GRC here in Omaha. I continue to pray daily for Aria and your family. May God provide for all Aria needs.