Sitting up - Aria MacDonald

Sitting up

Aria has had a good day as they continue to work towards getting Aria off her breathing tube. They did a couple of things today to help this become a reality.

Firstly they completed a procedure to drain some of the fluid which had built up in her chest cavity to help her breathe with a bit more capacity.  It involved a big needle into the space between her ribs and her lung.  Kinda scary for me and Hamish to watch but Aria did awesome.

Secondly and more excitingly Aria sat up in her bed this afternoon for about ten minutes. Anita supported her a little but she managed to hold most of her weight and lift up her head and look around a bit. Towards the end she fell asleep while she sat but after being out of it for two weeks, being sedated and having a lot of muscle damage in her abdomen she did amazingly well. This is good progress and will help clear out some more fluid…. we are hoping all this leads to the tube being removed in the next day or so!

27 Responses to “Sitting up”

  1. Robyn Verrall says:

    Great to hear the progress. Looks like you might be turning a corner with Area (Yeah!!!). Keep your chins up. There will be more positives than negatives. Have a good day. MNL.

  2. Ali says:

    So lovely to hear she is sitting up. Wow – your wee girl blows me away. She is an inspiration to me as are you two, Anita and Hamish.
    Sorry to hear about the missing organs though 🙁
    Love and hugs, as always

  3. Cecilia says:

    that is wonderful to hear about Arias progress, such a brave girl, im sorry to hear about Arias missing organs though 🙁
    God Bless

  4. Grandad - David says:

    … more progress…. good stuff. Aria’s a real superstar…. bad news about the organs, the hosptial must have been in “automatic mode” is the only mitigating defence, during which must have been a huge procedure with dear little Aria’s life the centre of their attention. Hang in there!

  5. jen says:

    “Aria sat up in her bed this afternoon” WTG princess

    and such a shame about the organs

  6. Carol and Cork says:

    So glad for Aria; must renew the confidence that progress is really happening despite the bumps. Sorry to hear that the lost was not found and hoping the investigation will bring conclusive findings and a sincere apology from those responsible. On a better note, seeing Aria on Sunday and her more restful sleeping was a giant encouragement for me. Her color is getting better. We are excited about the days to come.

  7. joyce says:

    Exciting news on Aria’s progress.Will keep her in our prayers. God is so Good.

  8. Priscilla says:

    Yay go Aria! 🙂 Very encouraging, she is doing so well.

  9. Lisa Robertson says:

    ah real sorry to hear about the loss of Aria’s organs, imagine Grandad David probably nailed it in his comment above – especially as you have mentioned it is so uncommon for families to ask for the organs back – was likely just someone working on automatic drive and just ‘not thinking’…… doesn’t excuse the error or make this any better though, it is such a shame and must be very disheartening for you guys – but stay very heartened, your most important ‘piece’ is still here and sitting!!! Go Aria!! You really are a super little fighter honey!!! Am sure that awful tube can’t last much longer!!! Love to you all, this Kiwi family keeps you all in our thoughts as always! xxx

  10. Christine MacDonald says:

    Wow that is great news that they have drained some fluid and that Aria sat up for a while, she is an amazing wee girl. Sorry to hear about the organs not being found, hope the enquiry brings some closure and some answers. Praying for continued improvement and for the tube to be out soon. lots of love

  11. Nola Young says:

    I didnt even get asked if I wanted my organs! But what great encouragement that Aria has been sitting up. All go! Yea!

  12. Judy Palmer says:

    Praise the Lord that Aria was able to sit up. Progress indeed. I am also sorry to hear that her organs were not found but I beleive God has a reason for everything that happens even if we are upset. God bless you all, Judy.

  13. nyle says:

    wow what progress she has made. Wonderful she could sit up for a little bit.

    Am sorry Aria’s organs couldn’t be found. I hope you find some closure.

  14. Samantha Sutherland says:

    Wow that procedure must have been scary for you as mum and dad to watch. Good to hear there is progress being made with the clearing of fluid though – Well done Aria.

    Will say a little prayer for Aria’s organs (wherever they are)to send them on their way with love.

    Thinking of you xxx

  15. Liz says:

    So glad to hear that Aria managed to sit up for a while today. What a strong girl!
    Sorry to hear about the organs, it’s a real shame.

  16. David & Jill Marshall says:

    What password do we need to read your next post?

  17. joyce says:

    Cannot get to the next post

  18. Jaime says:

    Hi wondering how to get to the latest post

  19. Nyle says:

    HI Anita…how do we read the new post? hoping all is going ok

  20. Natalie and Cody says:

    Hope is all ok there

  21. Anne says:

    Hi i follow the blog as I also have a toddler with HD. Glad to hear Aria is doing so well! I’m interested in being advised of the password so I can keep reading if possible! Thanks
    god bless!

  22. Ross An Hill says:

    Is Aria ok? I cannot ge to the new post because it requests a password.
    I hope all is well.

  23. Lisa Raymond says:

    Hi I also follow your blog – I cannot access the new post as it requests a password – just wondering what the password is or is this update private? – Hope all is well

  24. Larry says:

    Same as the past 3. Understand if there are some things you wish to keep private, but hope you keep updating some stuff so we can see.
    Love and prayers

  25. Yvonne says:

    Hi Anita, Hamish, Aria & Asher

    I’ve been following Aria for the past 2yrs & also cannot read latest post cos I have no password as I’ve never posted a comment before. Just read & felt your joys & sorrows throughout your journey.
    I’ve just ‘subscribed to post’ which has apparently been ‘confirmed’ but no where can I find somewhere to enter or give you a password. I’m not a pc whiz & just keep your site in my favourites & read everynight.
    I’m from Auck NZ.

    My prayers & thoughts with you all.
    Bless you all.

  26. Sharls says:


    Great to hear that some progress us being made. I too can’t access the next – but understand if it is meant to be kept private. You all continue to be in my prayers.

    Sharls (Ellie’s mum from liver families)

  27. Sharls says:


    Great to hear that some progress us being made. I too can’t access the next – but understand if it is meant to be kept private. You all continue to be in my prayers.

Leave a Reply

Support Aria

There are many ways that you can support Aria.

  • Bank deposit
  • Cheque by post
  • Contact us directly
Subscribe to updates

Delivered by FeedBurner

Fundraising progress

Aria's support to date:

Progress meter: 75%

“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11