A new day
So Aria is re-intubated. Â Disappointing but overall the message is positive that she worked really hard and gave it a good go. Â The biggest thing holding her back is that she isn’t strong enough to cough. Â And it could also be painful for her because of her wound. Â Hard to explain to a 3 year old to push thru the pain and cough anyway. Â Humans are hardwired to stop when something hurts. Â I remember reading that pain is a gift from God to protect us against further harm. Â But in this case Aria just needs to get stronger and we will try again next week.
The hardest things has been seeing her disappointment at the tube being back in and trying to explain to her why she needs it. Â Please pray for her peace.
Her temps seem to have settled a bit but her heart is still racing.
There is a lot going on right now. Â Things are tough, really tough. Â I woke this morning with a big headache and an anxious heart. Â My dear friend Laura gave me a coffee mug that I brought from NZ with us. Â It is big and holds lots of coffee. Â BUT the best thing about it is this verse :
“For I can do everything through Christ who gives me strength” Â Phil 4:13
Yes- EVERYTHING. Â Even the very very hardest thing that anyone could think up or imagine- We can do it! Â In the past hour I have really felt a supernatural peace come over me that I can’t explain because my circumstance tell me to stress and worry. Â Praise God.
Our girl is amazing. Â She is a fighter thru and thru! Â So is our boy too for that matter. Â Love them both
19 Responses to “A new day”
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From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 17 Mar at 2:01 pm
You are all amazing xoxo
# 17 Mar at 2:19 pm
It would not be possible not to love all of you. You are all truly inspirational xo
# 17 Mar at 3:32 pm
Praying for that ongoing peace for you all…. may Aria know angels with her, caring for her body and spirit…. much love and prayers to you all. X
# 17 Mar at 4:15 pm
Lots of hugs and best wishes for Aria dn for you and Hamish and Asher. I am sure she is very disappointed and I hope the tube can come out again soon, permanently!
# 17 Mar at 4:19 pm
Keep going there are many of us behind you ….. uplifting you in prayer and love to our heavenly Father.
You as a family inspire me and encourage me. Thank you.
With Love ……… God bless you
Eve
# 17 Mar at 4:29 pm
It isn’t amazing that the children are amazing- cos their parents are amazing- and so is their Heavenly Father!!!
# 17 Mar at 4:33 pm
May you and your family and especially Aria feel the love of God each step of your way as we lift you all up in prayer. He WILL give you strength and we must believe his word.
# 17 Mar at 6:10 pm
Isn’t that a super verse! And the best bit is that YOU don’t have to do anything. He does it through you. It is all about HIM.
Like this: Lord I can’t face this. You face it for me please.
Lord this decision is too tough for me. You decide please.
Lord I don’t know what to say. You do the talking, I’ll just be your mouth piece.
Hugs for you all
# 17 Mar at 6:10 pm
You do have amazing children!! Sending you all lots of love and thoughts your way. xxxx
# 17 Mar at 6:36 pm
Yes YOU truly are inspiring! I’m so happy that you are feeling at peace after such a traumatic time. Your burden has been lifted from you so you can have a break. Sounds like Aria did great – good for her, even though that tube is back in for now, it is really wonderful that she had a taste without it and can now push forward in her own mind to get it out again. She is a strong willed girl and I’m sure this will just motivate her. Well done I am in awe as usual of how you are coping! (yes you are!!!)
# 17 Mar at 7:23 pm
my prayers are with you Anita…. know that He will not put something across your path that you will not be able to cope with..He promises this in His Word…. He is as close as the mention of His Name…. ]
Reminds me of this hymm…
“the steadfast love of the Lord NEVER seizes…
His mercies never come to an end,
they are new every morning
new every morning
GREAT is THY FAITHFULNESS OH LORD
GREAT is THY FAITHFULNESS!!!! “
# 17 Mar at 7:44 pm
Phil 1:19
# 17 Mar at 9:14 pm
praying for peace strength and faith to believe God will see what He has started through
# 17 Mar at 9:17 pm
Next time that tube comes out, Aria will remember what happened this time and I am sure she will try harder and SUCCEED. Wonderful that you felt God’s peace. Praying for you all,
Judy.
# 17 Mar at 10:23 pm
thanks Anita and you are a wonderful Friend, You will always hold a special place in my heart, as will Aria, Hamish and Asher, God Bless you all. and praying for you all.
Big Hugs and love to you all
God is great
# 17 Mar at 10:39 pm
How beautiful experiencing the holy spirits embrace – praying for you all and sending our love and support
# 17 Mar at 11:01 pm
You dont know me, but I’m from Nebraska. I dont quite remember how I came across Aria’s blog, but I wanted to say I pray for you every night. Your a strong family and amazing! I know I may be biased and I know from reading that there have been some pretty low points, but I hear UNMC is a great place for what you are going through. Stay strong and there are more people thank you think pulling and praying for you all! Hang in there!
I’m also a Respiratory Therapist, so know many things you are experiancing right now. As Aria gets stronger she will be able to fly high off that ventilator!
Stay strong Aria! I know you can do it!
# 18 Mar at 4:32 am
Sending lots of love and best wishes to both of your amazing children Anita, and to you and Hamish.
P.S I am still giggling about how the nurses were trying to pronounce Hamish’s name! I never thought about it until you said that it was a hard name to work out over there…….too funny! 🙂
# 18 Mar at 5:07 am
Psalm 57
God sends his love and his faithfulness. …
I cry out to God Most High, to God, who fufills his purpose for me…..
My heart is steadfast, O God, my heart is steadfast.
I found this Psalm encouraging when I was struggling very much with the loss of our little baby girl.
May you know the love God says He sends!
With our love and prayers for you all.
Sam Seccombe