Things Aria tells us
You may be aware that Aria has a breathing tube in her mouth and throat that passes between her vocal cords and into her lungs.  This is because she isn’t strong enough to breath by herself (yet!) because her right diaphragm is temporarily paralyzed.
Anywho, this is what Aria tell us without being able to speak.
Please read me a book
No not that book- that book
Please make sure my feet and legs are covered by the blankets at all times
Please stop messing with me docs and nurses
I am going to close my eyes and pretend I am asleep so they don’t mess with me or so they will go away.
I am ok with you messing with me but after too long I am going to get fussy
Don’t leave my side when someone is messing with me mum and dad.
I am sure you are really nice but I am really only interested in my mum and dad.
Please don’t go mum and dad
Please tell me when you leave the room and where you are going mum and dad.
Ooops the heart rate and oxygen probe has come off my toe!
Please give me a hat (a wet washcloth/flannel) for me and one for Green Dolly.
Here is the hat back, it did not pass my strict quality control standards for wetness, try again.
Thanks, that’s better.
Which movie/dvd/netflix I would like to watch but the Little Mermaid and Winnie the Pooh are my faves.
I really hate this breathing tube but I am doing my best.
I am finished sitting up and I want to go back to bed.
Can I hold your hand Mum?
22 Responses to “Things Aria tells us”
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Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 26 Mar at 5:51 pm
This made me giggle reading it… what a little personality! Can’t wait til she gets to chat with you whenever she so pleases.
There is a billboard on my drive home from work that says “We turned a boy who couldn’t eat broccoli into a boy who wouldn’t eat broccoli” advertising for Children’s Hospital. It’s been a reminder every day to pray for Aria!
Praying she’ll be a girl who won’t eat her veggies instead of can’t!
http://www.childrensomaha.org/body.cfm?id=1360
# 26 Mar at 6:19 pm
What good manners Aria has 🙂
Love the bill board!
# 26 Mar at 6:28 pm
LOL — its amazing how much our kids can tell us, even as newborns, without ever speaking, or even making a sound!! We’re thinking of you guys and praying daily for a speedy recovery for little Aria!!
# 26 Mar at 6:32 pm
What a smart little girl Aria is.Learning to communicate under her circumstances. It has to be a comfort to know she can express herself to you.She just has to know how many folks are praying for her each day and our prayers are being heard and answered.
# 26 Mar at 6:52 pm
Sounds like Aria has lots of energy despite being in hospital. We just wanted you to know several people, both old and young, are praying for Aria’s complete recovery. Thanks for sharing this information.
Belleuve Nebraska
# 26 Mar at 7:13 pm
Thats some pretty impressive non-verbal comunitcation. Maybe you should teach her sign language, some people never get the hang of it but I think she’d be a natural and its a handy skill even when you can talk.
# 26 Mar at 7:25 pm
I loved reading this! It’s great to know how her personality shines through, even though she can’t speak very well with the breathing tube! She is one smart girl! God Bless!
# 26 Mar at 8:27 pm
What a precious baby girl! Continuing to pray for each of you!
# 26 Mar at 8:44 pm
Glad to hear she is being bossy a good sign of recovery.
# 26 Mar at 9:23 pm
And congratulations Mum on being such a great interpreter of Aria the fighter!! It shows your great love and perseverance through all the challenges that get thrown at you. What an awesome team the four of you make. The Lord continue to give you much grace and strength for every moment. Our love xxx
# 26 Mar at 9:46 pm
oh she is precious and awesome
# 26 Mar at 9:51 pm
lovely girl – big hugs
# 26 Mar at 10:39 pm
Aria you are such a sweetie!!! Love to you all x
# 26 Mar at 10:59 pm
This is a good example of what wonderful parents you are (: Aria is a lucky girl! Talk soon (:
# 27 Mar at 12:08 am
A lovely post. She is showing heaps os spirit. Go Aria!!!
# 27 Mar at 1:19 am
Sweet to have and hold. Enjoy the little things that are coming your way with Aria and Asher as well…also enjoy each other 🙂 GOd bless and will be praying for you while away. McLays
# 27 Mar at 1:37 am
How wonderful that Aria has the strength of character to communicate with you in spite of the tube.It sounds like she is feeling much better than she was. Continually praying for complete healing for her.
Judy.
# 27 Mar at 3:10 am
Aria’s strong character is still showing through I can just imagine her getting across her wishes. Good for her and good for you two being such good interpreters, comes from a very special bond with Mum and Dad
# 27 Mar at 7:53 am
So proud of little Aria, and Mum and Dad too!! Praying for you daily! Love and Hugs!!
# 27 Mar at 2:43 pm
That really made me smile – Aria has always had such a strong personality and spirit and it is so great to hear it is still shining on through even with a huge tube blocking it! Aria is going to go far in life with a dynamic personality like that! Take care, always thinking of you all xxx
# 27 Mar at 3:45 pm
ahh see talking is so overrated..
# 27 Mar at 6:20 pm
As you know Anita, my Crystal cannot speak – but you are so right….the communication is right there without the need to verbalise. Sometimes it gets frustrating the lack of talking – for everyone…. but then again – sometimes it’s hilarious too!
So pleased to hear a lighter side of things today… bless Arias little cotton socks! Too cute!