Improvement!
Firstly thank you for all the beautiful messages and comments yesterday- they mean a lot to us. Â Please read the update HERE if you missed it.
Aria is doing better this morning. Â Her O2 stats are back at 98/99 and staying that way. Â A big huge PHEW! Â They changed her trach appliance at 5am this morning when her O2 dropped into the 70s and that seems to have fixed the problem. Â Also she hasn’t had any water for 12 hours and that has helped too. Â We are going to have to be strict with giving her water- please pray cause it is going to be hard.
Her heart rate is 150s which isn’t great but her temp is around the 38s- that isn’t great either but not terrible.
We have also put her NG tube on free drainage so the contents of her stomach is coming back up and that is stopping the vomiting. Â When they did her transplant she lost her gtube to drain her stomach.
But today we feel better because her O2 dropping yesterday probably wasn’t due to infection. Â Yay.
A couple of people have asked why she is getting all four organs again.  There are two reasons.  First up the organs come in a block, all attached together, not sewed in separately, better to use the donors original plumbing and blood supply.  Also we know for sure the bowel has rejected but perhaps the liver and kidneys have rejected too.  We don’t know for sure unless we biopsy them which requires a trip to the OR and a GA.  But there isn’t much point doing that because it doesn’t change how we treat Aria and puts her thru something not needed.  Hope that makes sense.
UPDATE- Aria has been sitting at 100% since this morning! Â Excellent- back to normal
36 Responses to “Improvement!”
Leave a Reply
Support Aria
There are many ways that you can support Aria.
- Bank deposit
- Cheque by post
- Contact us directly
Subscribe to updates
Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 28 Apr at 10:39 am
Thankful for the small encouragements. What a girl. Keep fighting, Aria! And we’ll keep praying!
# 28 Apr at 10:46 am
I am pleased that the news of Aria is somewhat better today, but I still remain devastated that Aria needs another quadruple transplant. If her liver and kidneys are working, why is there the need for a quadruple transplant, couldn’t they just do a bowel and pancreas transplant? Or maybe it is that the four work better together if done as a foursome. You can see I don’t understand these things, however my love, my prayers and thoughts are continually with you, and uplifting you all before the throne of our amazing God, who works in ways we cannot comprehend.
God bless you all and all those who are in any way connected with looking after Aria and the rest of you.
Eve
# 28 Apr at 11:27 am
Yay thankful for some improvement today, stay strong sweetie.
Continually praying for you all
# 28 Apr at 1:37 pm
Pleased there has been some improvements
pleased and praying she has been relisted at status one praying the organs come quickly
# 28 Apr at 3:27 pm
Praying for ALL you needs and that Aria is more comfortable with her procedures. Stay strong as we are all lifting your family up and trusting God .
# 28 Apr at 3:49 pm
Kia Kaha MacDonald Family – know you are loved and thought of from NZ.
# 28 Apr at 4:20 pm
Praise God for normal readings again
# 28 Apr at 4:23 pm
Have been praying so hard for all of you. I’m so glad to read of Aria’s improvements. Praying that her “new set” comes soon!
Love, from a fellow transplant mom,
Laurie
# 28 Apr at 4:24 pm
Great news. The sun is shining here too. Have a wonderful day.
# 28 Apr at 4:34 pm
I*’m so pleased Aria is doing better today. Will keep praying hard for new organs to come soon and also that you and Hamish will be uplifted. Blessings from Christchurch,
Judy.
# 28 Apr at 4:38 pm
Thanks for all the up-dates- it is really good to be a part of this with you- even in a very small way. Praying for God’s peace and blessings for you all THIS day- This IS the day that the Lord has made
# 28 Apr at 4:40 pm
Praise God for Aria’s improvement; we are all praying here for you all today.
# 28 Apr at 4:49 pm
phew – thank god. I hope that she stays stable and am praying for a miracle healing
# 28 Apr at 5:03 pm
We rejoice with you in every little encouragement and continue to pray against the bumps!
# 28 Apr at 5:04 pm
Isn’t she just incredible? – getting herself prepared for the next part of her journey. Much love from us both
# 28 Apr at 5:05 pm
Encouraging news.. may it all just keep on going that way. I posted a link to this page to my facebook friends yesterday, and asked them to pray too….. God will have to hear us all, won’t he? Thinking of you all and praying for you always.
# 28 Apr at 5:12 pm
oh yay! that is great news, i hope a donor becomes availiable really soon while she is nice and strong, go Aria, you can make it!
# 28 Apr at 5:30 pm
Glad to hear she has perked up a bit 🙂 You are such a strong girl Aria.
# 28 Apr at 6:32 pm
Glad to hear Aria is better today. Praying for the donor family, that the Lord will prepare the way for a quick transplant. Praying for you all.. xx
# 28 Apr at 6:52 pm
Hooray for good news. I didn’t comment on yesterdays post, I’m still stunned and saddened by the rejection. Your explanation of why replace all the parts instead of just the bowel is great. Here’s hoping some new organs come soon. Kia Kaha Aria, Anita, Hamish and Asher.
# 28 Apr at 7:33 pm
I am saddened too but awed by your strength and unity as a family. I am hoping for the very best for you and your sweet girl.
# 28 Apr at 7:42 pm
Be encouraged that there are so many more of us reading and praying than typically comment – know that my family and I are thinking of you and praying. Love to you all xxxx
# 28 Apr at 7:59 pm
Great news about Aria improving today, every bit helps get her stronger for re-transplant and for being happier while she is waiting.Anita, you sound a bit lighter today and I hope that all our thoughts and prayers are lifting your burden a little. It is a lot to ask of any person/parent to carry this but you both are doing such a fantastic job. How is Ashie doing? what is it like living in a bigger space now? Lots of love x s xxx
# 28 Apr at 9:18 pm
I want to let you know that many of my friends and I are praying for Aria and your family! I pray that God’s healing hand would be on Aria and that your family would experience that peace beyond all understanding that only he can provide.
# 28 Apr at 9:44 pm
Thanks for the explanation as to why she needs all four organs transplanted. very simple very complex!. God is amazing in his hanywork isn’t he.
# 28 Apr at 10:02 pm
I’m glad that Aria is feeling better today, & what you said about the transplant makes sense. I pray that this transplant comes sooner than the other one, that it will keep, be a smoother operation, & that Aria will be able to be a healthy & happy little girl!
# 28 Apr at 10:44 pm
Sorry, I too was unable to comment yesterday cos I was so stunned & shocked at the news even tho ‘part of me’ was having this ‘suspicious feeling’ over bits I’d read (time frames & fact she could not hold down even water etc etc) & esp the previous day when you told us Aria was being given insulin…trouble is a retired kiwi RN reads between the lines!
What a major decision for you both, but at the same time easy to make as any parent only wants the best for their child.
Anita & Hamish you are both so amazingly strong & you leave me in awe.
Aria is just so incredible how she is working her way thru all this, something a wee girl should never have to do but again she shows how strong & determined she is to get thru this, she is a little miracle. If anyone can do this Aria CAN. Bravo sweetie.
Little Asher also such a brave, tolerant & patient wee soul at his tender age, his is another little miracle.
Altho I do not comment very often you are constantly in my prayers & thoughts. When I turn the pc on the first thing I go to is Aria’s site.
Bless you all & thanks soooo much for being so open & honest & willing to share with us albeit at tmes very hard. You are an inspiration to us all who follow you both we ol regulars & newcomers.
THANK YOU WE LOVE YOU
# 28 Apr at 11:30 pm
Oh wonderful Father who never rests! Dear little Aria-what a fighter and what a miracle child you are! And you 2, mummy and daddy, what amazing parents you are! And of course, what a neato lil brother Asher who Aria has beside her!
There are times when some of us don’t write but we are still all constantly praying for you and holding you up before the Lord. We wonder what God is up to at times and feel like His plan is not a really good or fair one but who are we to question His ways! We just have to keep the faith and lean on Him no matter what. He
DOES have a plan for you all! I hope one day that you can share your journey with thousands upon thousands-God bless you and keep you- jeannie
# 28 Apr at 11:32 pm
Always love a wee bit of good news for a good wee girl!!
# 28 Apr at 11:40 pm
I pray that Aria gets a new transplant soon. Just like Yvonne says I am also a RN who reads between the lines I just got to the computor today and send my best wishes to all the family.
# 29 Apr at 1:08 am
Dear Aria, I wish you could be back in Auckland.I think of you every day and pray for you every meal. love from Candace
# 29 Apr at 2:27 am
I was so saddened yesterday i couldn’t comment, glad Aria is doing better today, what a strong girl she is. She gets her strenght from yous and all the love and prayers around her, stay strong, Love and hugs to yous all.
# 29 Apr at 2:57 am
I just don’t know what to say. You guys are incredible, Aria is incredible. All my love and hugs flying from all the way down here. Mwah!!
xxx Lou
# 29 Apr at 4:42 am
Go well, look after yourselves throughout this devastating ordeal, too much for one wee innocent girl and her very caring family!!
# 29 Apr at 11:35 am
Dear MacDonald family, people in Omaha are very generous. Please let us know how we can help locally to make life easier for you.
# 29 Apr at 3:41 pm
Could you please let us know what Aria would like sent from New Zealand for her to play with in the hospital – my little girl Tegen has saved up her pocket money to buy Aria something but we are not sure what she is allowed to play with or if a book might be beta. You are such an amazing family and we wish you all the best for the next few days – keep strong – God loves you all.