Photos
Firstly I will get this out of the way. Â Our honeymoon is over, Aria has spiked a temp to 38.4 today and 38 yesterday. Â So they have taken cultures etc. Â Yesterday her WBC was 7 which is AWESOME and down again today to 6.4 so all good.
Aria and I had a great day yesterday.  She didn’t sleep much, she was so busy.  There is honestly so much to say.  We did crafts and painting.  She found some sparkley letters and peeled off the back and stuck them on paper and I wrote down the names of people she knew, Nana, Josie, Dr E, Green Dolly, Nana Rose and of course A for Aria.  She gave me a smile when she thought of the person we were talking about.  It was really cool to see her remember people.
 We saved these ceramic things for her to paint when she was really sick knowing she would do it one day.  That day came!
She made 5 butterflies which are proudly hanging from her ceiling.
She asked me for the torch/flashlight and she spend ages shining it all around and thinking it was funny.
She has two balloons, one new one from Carol and Cordell and sadder looking one which has lost it’s air that Nana brought in Jan, but she loves it so we don’t throw it away. Â But I pretended the ballons were two doggies George and Kaylee (our friend Rebecca’s two dogs who Aria really likes from a distance!) and they were taking Mummy for a walk- she thought it was SO FUNNY and did little belly laughs.
The thing that struck me most was when the nurse came up to the side of the bed and Aria stuck out her finger automatically. The finger was for ‘finger bities’ a prick on her finger for her 4 hourly blood sugar test. It must hurt but Aria is so good at helping with her various cares. It wasn’t actually time for a ‘bite’ but it amazed me at how willing she is to embrace her world.
42 Responses to “Photos”
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# 17 May at 9:52 am
Oh what a precious post. Loved the pics as they make everything so real to me.Faithful green dolly always there with her and the art. Such a strong girl with lots of fight. Will just pray that fever away and pray for continued improvement.Thank you for sharing your family with us. We are all part of the family of God.
# 17 May at 11:30 am
Love the pictures, you did have a busy day, love the artwork Aria, you are very clever. Praying that the temps will come down soon and she will continue to improve. Love those smiles. Yay!!
# 17 May at 12:07 pm
What a beautiful wee girl you have. Everyday I wait for the update hoping so so much that everything will be okay. What a journey you all have to have to go through!!
# 17 May at 12:14 pm
Keep the light shining Aria! (Torches are such fun!) What a clever girl you are Aria!
# 17 May at 12:26 pm
Sorry that Aria had a temp., but glad that it wasn’t serious. I love seeing Aria’s smile in pics. She is looking much better, & I’m so glad that she is having fun! God bless!
# 17 May at 12:45 pm
Praying that temp gets under control. And for awesome cultures. The flashlight picture is so fun!
# 17 May at 1:44 pm
Sounds like an awesome day, Love the beautiful butterflies Miss Aria, Xoxo
# 17 May at 1:45 pm
Love it Anita!
# 17 May at 2:35 pm
Sorry to hear Aria had a temp. Praying it is nothing serious and she will contiune on the amazing path she has set so far. Love the pictures, especially the butterflies. Still praying for you all…xx
# 17 May at 2:47 pm
Oh I love seeing the photos. She is a darling!!! Hope the temp goes away
# 17 May at 3:09 pm
beautiful! so glad you are getting to have some fun together
# 17 May at 3:23 pm
Check out that smile!!!! 😀 😀
# 17 May at 3:24 pm
it’s so wicked to see her smile 🙂 it warms my heart.
She is an amazing little girl but you know that and I am praying she will continue to do well and that the cultures come back fine and that her temp comes back down to normal. Love to you all 🙂
# 17 May at 4:02 pm
Lovely photos!!! What a clever artistic girl you are Aria!!!
Hope that temp drops real soon and that the cultures come back ok….. temp aside it is great to read Aria is doing so well. Love to you all xxx
# 17 May at 4:13 pm
So glad you were able to have that very precious ‘normal’ time with your amazing little girl. Still praying…your little girl is in good hands.. and so are you. xo
# 17 May at 5:26 pm
Love this post…Love the photos 🙂 Thankyou for thinking of us Aria you are always in our thoughts and prayers – baby Violet loves your beautiful butterflies xxx
# 17 May at 6:38 pm
What a great post!!!!! Prayers that the temps go down and nothing nasty is growing inside.
# 17 May at 7:03 pm
Lovely photos! So nice to see her toothy grin with the torch! Praying for her body to fight off infection and keeping that temp down. Much love. X S
# 17 May at 7:14 pm
Wow! What awesome photos. I especially love the last one with the torch where Aria is smiling! It’s so nice to see her smile. What a great day she had yesterday. Praying for many more like this. And GO AWAY! temps!
# 17 May at 7:58 pm
.what a sweetie she is! Sounds like such a great day, it is heartwarming to get days like that with your precious girl. Sounds like cheeky Aria is showing herself again. Bummer about the temp but I guess it happens. Heres hoping she bounces back over that temp and is feeling a lot better soon.
# 17 May at 9:53 pm
Love those photos, and that smile is so precious. Thank you so much for sharing them with us. Praying for cultures to come back normal and for those temps to go down. Blessings,
Judy.
# 17 May at 10:16 pm
You have such a beautiful precious girl and im praying that she gets better soon. God Bless
# 17 May at 10:25 pm
She’s an amazing girl — am praying that this is just a hiccup and that her recovery will speed ahead — sweet dreams to you all
# 17 May at 10:52 pm
what a busy and good girl
# 17 May at 11:48 pm
Brilliant big smile from Miss Aria!!! Wonderful to see the photos today and the video last week. Wishing that temperature down and no cultures to form and stay. Looks like Aria might be the artist of the family. Hold the ceramics to sell on eBay (TradeMe) in the future – you have a super star in the making in so many ways!!! XXXX
# 18 May at 1:46 am
Fabulous photos! It makes Aria’s journey so much more real to those of us at home. Thank you for taking the time to share these precious moments with us.
# 18 May at 4:04 am
Aww bless her, Aria looks so happy in the last pic with the torch. So sweet. Hope the bugs go away and Aria continues to improve.
# 18 May at 2:39 pm
It is so lovely seeing your gorgeous smile in the photo and the ceramics are awesome
# 18 May at 4:36 pm
What an awesome little smile Aria – lovely photos of you – hows Asher going – Keep those temps down Aria and keep improving – we all love you in New Zealand and can’t wait to see you again on the television.
# 18 May at 10:25 pm
wow! She must be one TOUGH kid!! Of all Caed had done to him….those “finger bites” are still the things he remembers most! (in a highly negative way…..haha) Thanks for all the pictures!! They are beautiful!
# 21 May at 7:42 pm
Hi there – I was just told about your web site and was looking around. I wanted to say that if the sad-looking balloon that she loves is a mylar one, it can be reinflated! Have someone take it to a place that sells balloons. Assuming the hospital would allow this, of course…
I’m praying for your daughter and your entire family. It’s always heart-breaking to read of little ones who had to go through so much.
# 22 May at 2:54 pm
Hi there, I am watching your struggle on the programme Attitude. I just wanted to say stay strong, noone can truly understand the highs and lows as a couple and parents you must be experiencing. All our prayers are with your family, Emerson is proof the spirit is strong xo
# 22 May at 3:13 pm
I have just watched the Attitude programme, and want you to know that my Heart, Prayers, and Kind Thoughts are with your family and with Aria for a full recovery, and a happy future for you all when you return to NZ.
# 22 May at 3:35 pm
Hi Aria
I’m 10 years old,and live in Dairy Flat Auckland with my brother, Mum and Dad. I have just watched you on T.V with my Mum. We just want to say we are thinging of you, you are amazing. Keep strong you have a great family.
Love Alexis
# 22 May at 10:16 pm
I watched little Aria’s story this morning on tv, with my 4 year old son and 5 year old daughter. They asked lot’s of questions and I explained all I could as best I could. They have asked to find out more about her, which is how we came to this site. They have been drawing pictures for her and making cards, and I am amazed how much concern and interest they have shown for little Aria. So in short our whole family is thinking of this brave little girl we don’t know and our prayers are for her safe recovery.
# 23 May at 2:47 am
Hi, We thought we had it bad when our twin girls were born tiny and prem and the NICU was our home for 6 and a half weeks (that seemed like a lifetime) having watched your story this morning with our now 2 1/2 year old girls we were struck by how brave you all are. Your family are in our thoughts – take one day at a time, you have come through so much already use the past to make you strong enough to continue fighting for your futures.
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