Slow and steady wins the race
Just a quick update to say that Aria has had slow and steady progress over the day. Â Her vent settings are down and she is managing them pretty well. Â They are still pretty high but better. Â Her pee is still steady, maybe picking up a bit when we left. Â Her stoma had a bit out of it which is good, but we don’t want to much out though.
To answer the question about her kidneys she has her two originals that she was born with and now two new ones. Â The first transplanted set were removed along with her first transplanted rejected bowel (which are safety in the hands of the funeral director for cremation)
Hamish and I are off to the movies tonight! Â The first time we have been on the movies in the US together!! Â There is a cinema across the road from our house so we don’t have to go far. Â One of the many perks of Aunty Alex being here.
31 Responses to “Slow and steady wins the race”
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# 25 May at 7:51 pm
Great News, slow and steady is good, Enjoy the movie you soooooooo deserve a night out. love & prayers as always
# 25 May at 7:52 pm
Your daughter is an inspiration to me and my family.You deserve a break out for yourselves.I read your blog everyday and now have seen both screenings on Attitude just amazing.
Thank you for sharing your daughter and her fight!
All my strength and prayers coming your way
# 25 May at 8:00 pm
Have a great night out you two – yes you certainly deserve some time away in fantasyland – I hope the movie is just great! Good news about Aria’s progress.
# 25 May at 8:19 pm
How lovely to have Alex with you… have a lovely time out together.
# 25 May at 8:24 pm
Enjoy that movie, hold hands and eat popcorn together!!!!!
Love to Alex too.
# 25 May at 8:28 pm
Great to hear good steady signs for Aria. Wishing and praying as always for her recovery and strength for you two. Enjoy date night at the movies. Wonderful that you have Aunty Alex to support with Asher and for practical and moral support to you.
# 25 May at 8:31 pm
We are SO happy about this good news AND that you both are going out! Thanks Alex! We hope to catch up with you soon!
# 25 May at 8:32 pm
Glad to hear Aria is on the up and up.
Hope you enjoy your time together tonight.
Prayers with you always 🙂
# 25 May at 8:41 pm
Oh enjoy your night out!!! My prayers continue for Aria and it’s good to hear there are some improvements. Keep it up little one.
# 25 May at 8:42 pm
I’ve been reading your posts often, with many of us from 26B back home, and just want you both to know we think of Aria and yourselves often, and send our wishes!!! Have a lovely time out, and I hope you get a few hours to relax.
# 25 May at 8:44 pm
dont roll to many jaffas down the isle,take care and enjoy your time together.will keep praying for you all,God bless,christine.
# 25 May at 8:45 pm
Wonderful news. Enjoy your movie time together. You deserve it.
# 25 May at 9:01 pm
Yay for the slow and steady progress. Enjoy your night out!!!
# 25 May at 9:03 pm
Wonderful to know you and Hamish are getting some time out of the hospital together. Enjoy!
# 25 May at 9:42 pm
Thank God for Alex — hope your night out is great and you get to chill out totally 🙂
# 25 May at 9:42 pm
Hope you enjoy your night out together!
# 25 May at 9:43 pm
So happy Aria is slowly improving. Great you two can have a night together. It will refresh you both for the long haul. God is so good. Enjoy this time.
# 25 May at 10:04 pm
That is good news that Aria continues to improve! I’m also glad to hear that you & Hamish got to have a date night! I hope you had a fun time! God Bless!
# 25 May at 10:36 pm
Thank you for answering my question. So pleased she still has her own ‘faithful ol kidneys’ along with the assistance of the donor ones. Pleased all is well with safe keeping of organs, they learnt from the first error eh??!!
Yay, slow & steady is the way to go Aria, keep it up sweetie, you will win this marathon.
Wow popcorn or Jaffas??!!! whatever, relish in each others company, making the most of this rare event. Thank You Aunty Alex.
# 25 May at 10:54 pm
yea, yea, yea to all of the above. have a great night and we praise the Lord for little signs of encouragement. Go girl
# 25 May at 11:45 pm
lovely to joy in your email-going out on a date with your husband! how lucky can you get! wonderful to read the news on princess aria-what a gal! love and God bless-jeannie
# 26 May at 12:39 am
Yay for a night at the movies together – hope you have a lovely night!!!
# 26 May at 1:10 am
hope you both enjoy the movie
# 26 May at 1:26 am
God is sooo good, a night out AND improvement for Aria. Blessings,
Judy.
# 26 May at 2:17 am
So pleased to hear there is some improvement in Aria’s condition. What wonderful caring parents you both are and what a strong little daughter you have. Have seen you on attitude, what a great little son you have and what a wonderful job you are doing with him in such a difficult sitution. my love and best wishes are with you all
# 26 May at 2:51 am
Hope the movie is good and ur together time is as awesome as u remember back in the day
# 26 May at 4:19 am
Aria is doing just what we have come to witness in times past from the strong little girl that she is. Way to go little one, and way to go Mummy and Daddy – enjoy your night out. Love to you all.
# 26 May at 7:46 am
Okay I have been stalking your blog and not commenting much, but I just wanted to let you know that I am praying for your sweet little Aria. I am glad to hear things are looking up for her. Enjoy your movie.
# 26 May at 11:26 am
Glad to hear she is doing good, such an inspiration, she came so far, and she will go a lot farther! <3 My prayers continue
# 27 May at 5:04 am
Oh my goodness your story on tv back here in NZ absolutely blew me away. Its 11pm back here and I cant sleep for thinking of your little family, so brave over there. Watching Aria just made me want to jump through the tele and give her all the love I have to give. I am soooo going to give you guys money towards your journey and pray every day for you and I will be telling everyone I know if they can do the same. I dont know you guys but my heart is there with you. You are amazing and you have humbled me at a time I thought I was being tested in life. All my love and prayers , Kate (and my baby girl Mila).
# 27 May at 6:02 am
hey guys, remember me from old st Andrews days. I have been following your story since it aired on tv, and reading your daily entries. It is so heart warming to see the two of you again, even if it is on tv. I hope and pray Aria continues to make continual progress, be it small but nonetheless important. i work in ICU/HDU at middlemore so all the stats you give Anita is awesome to follow. May Gods blessings continue to be upon you both. Keep the faith, with love Doreenxxx NZ