Neutral territory - Aria MacDonald

Neutral territory

26 May at 6:13 pm by Anita MacDonald

Well today has been neutral in terms of Aria’s vent settings, in fact just now they turned one of the settings up 🙁 They did some changes this morning to bring them down but Miss Aria was not impressed.  It is a little disappointing not to have made progress today in that dept.

However her urine output has increased to 1.9 per kg per hour up from .9.  So that is really good.  There has been a steady flow all day which is great.

They turned off the paralytic medicine at 9am this morning but now at 7pm we have yet to see movement from her.  Perhaps it might take awhile.  It is only a ‘holiday’ when she moves she will be put back on it.

It is going to take a long time to recover from this.

In other news Asher had some filming of his own today.  The hospital is promoting the music therapy program to get some more funding for it.  Both Asher and Aria love music so we were more than happy for them to film us.  Asher loves to jump and jump to the songs so it is quite funny to watch.  They came and filmed with Aria too and asked me some questions.  We were hoping the music might wake her up but no joy there but we know she can hear so it was nice to do a session with her anyway.

Anyway- please would you take a moment to register to vote for the KIDS foundation to win a big cash donation.  This is the charity that supports our family so very well.  I feel bad because I have forgotten about it and May is nearly over SO PLEASE VOTE.  Will all the people that read Aria’s site we could totally win it for them.

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11 Responses to “Neutral territory”

  1. # 26 May at 8:21 pm

    Christine MacDonald says:

    Great that her urine output has increased, Go Ashie!! you are a star. Voting done. Slowly and surely one day at a time. Love & Prayers

  2. # 26 May at 8:34 pm

    Paula says:

    I’ve voted too! Fingers crossed they get a few more 🙂
    Saw you guys on TV, I’ve been trying to explain to hubby about Aria but I don’t think he “got it”, now he does! Big hugs to all xx.

  3. # 26 May at 9:16 pm

    Tiffany Keller says:

    I voted too! I’m glad that her urine has increased, but I’m sorry that Aria didn’t wake up from her medicine yet. Hopefully she will tomorrow, & that things will go wonderfully! God Bless!

  4. # 26 May at 9:23 pm

    Kathleen and Anita says:

    Hi Anita and Hamish!
    Keep trusting and waiting on Jesus for His strength.
    Love and hugs

  5. # 26 May at 10:15 pm

    Samantha Sutherland says:

    How lovely for Asher to have the limelight with his dancing and love of music. Good news about Aria’s urine output increasing – every step forward is a good one – I know it seems so so slow but you are still moving forward.

  6. # 26 May at 10:27 pm

    Kelli says:

    Have voted and have asked everyone I know to vote as well.
    Glad to hear somethings are on the up and up and I will be praying everything else catches up soon. Praying for you always 🙂

  7. # 27 May at 12:28 am

    Sarah Duncan says:

    Hi Anita, thinking of you all and sending healing energy your way! xx

  8. # 27 May at 12:59 am

    Lisa says:

    I follow Aria’s post everyday. What an amazing family you are – a real inspiration. It is always a joy to read how Aria is going, no matter if the news is good or bad. Thank you for sharing your story with us. Would you be able to explain about the paralytic medicine? What was it for and what does it do? My thoughts and prayers are with you all. Keep fighting Aria! Lisa

  9. # 27 May at 1:37 am

    Judy Palmer says:

    I too have voted,so pleased urine output is up and sorry Aria didn’t rouse for the music shoot. I am praying as always for you all,Judy.

  10. # 27 May at 3:46 am

    Jane Phelan says:

    I am one of the people you mention who usually reads your posts but doesn’t quite know how to comment and what to say.. You are a truly inspirational family and Aria is the most amazing little girl, I follow her story with awe. As a NZ Taxpayer I can’t think of anything better for my money to be spent on than helping a little girl get better. Thinking of you always xxx

  11. # 28 May at 6:07 am

    EVE GILKES says:

    Haven’t commented for a few days/weeks now, been busy …… but still hanging in with you there and praying.
    With love …… God bless you …..
    Eve
    P.S. ‘They’ wouldn’t let me vote for the KIDS foundation because I live in the UK.

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“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11