Princess Aria - Aria MacDonald

Princess Aria

Today was a good day

Aria woke up happy and gave me kisses this morning.  Apparently she woke at 5am (spiking a temp booo) and blew kisses to her nurse!  Funny girl.

Anyway she was in a good mood and we gave her a bath washed her hair.  Lindsey (who we brought the car off) had given Aria a little pink princess crown and some beads.  Aria eagerly fished them out of my hand bag and put the crown on her head, she thought it was awesome.

So we got her up into her wheelchair were she sat with her green butterfly gown and pink princess crown and her Dora blanket on her lap.  Honestly I am so stinkin mad at myself for having the camera at home.  We cleared the bed and ‘stuff’ aside and she held court in her room for the morning.  Big grins at rounds from everyone seeing her looking so bright eyed and rocking her princess crown.  Dr Botha said it made his day and it is the best she has been since she arrived in Omaha, the team all happily agreed as they when off down the hall chatting about her progress.

Today on dialysis they took off 1245mls!  YAY!  Her BP got a little low at the end but they gave her a saline bolus and that perked it up.  Her WBC is down from 39 to 24!  Yay.  She looks great.

On the flipside we had a terrible night with Asher.  He woke every couple of hours yelling and crying.  Our theory is he was hungry but got confused about which was tummy pain and which is hunger pain.  In desperation Hamish walked over to the donut shop and got him a donut and chocolate milk and he ate it and was heaps better.  I know- questionable parenting- but it was the only thing he would eat!  The rest of the day he had a couple of meltdowns which is sooooo unlike him I almost didn’t know how to handle it.   Hopefully tonight he will sleep and feel better.  He slept from 4pm to 7pm (when I had to wake him to go pick up Hamish- last time now we have a 2nd car YAY) and I am pretty sure he will sleep thru tonight.

Today was a good day.

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“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11