Progress in pictures-update one more
Look at this smiling face- isn’t she CUTE??
Aria has become very interested in our food and we encourage her all the way. This is some of my soup I had for lunch and I gave her a little bit. She listened carefully when I said she could eat like Mummy and Daddy now and didn’t have to spit out her food.
She took more tastes and didn’t spit it out. Even tried crackers and didn’t spit them out and tried to chew. For her first class at Eating 101 I think she did really well.
Can you see these IV pumps- They are OFF!!!! That pole used to be burden with pumps- two sets (8 meds runnings) and green lights everywhere. The bag of white fluid is NOT TPN but formula made particularly for Aria and connects to her ‘nose noodle’ No more sterile technique- you mix and go. Most of Aria’s meds GO THRU HER BOWEL!!!!
Found this photo from after the 1st transplant and TPN isn’t even on.
Busy work. Aria has had the strength of a newborn baby. She hasn’t been able to hold up her head or sit up for months. Can you see she is sitting up with a pillow behind her and able to focus on the task of putting an IV into her ‘wiggle baby’ tricky finger work. She is able to hold her head and look around and sitting up without falling left or right.
100 Responses to “Progress in pictures-update one more”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 13 Jun at 7:15 pm
That smile made my day 🙂
# 13 Jun at 7:29 pm
Go guys. What awsome photo’s. Great to see the improvement, and to see such a smile on Aria’s face. You’ve all been through so much but the smile say’s it all. Praise God.
# 13 Jun at 7:49 pm
Wow! What awesome progress. Beautiful smile, Miss Aria! xx
# 13 Jun at 7:59 pm
Wow, she looks FANTASTIC! So beautiful and I love her cute pigtails. I just can’t believe the change in her from just a few weeks ago. Are you pinching yourselves when you see her eating? I know you talked about it so much before but here it is – how amazing is that! thank you so much for sharing such gorgeous pictures. i hope Ashie is feeling a bit better now too.
# 13 Jun at 8:07 pm
Amazing!
# 13 Jun at 8:35 pm
wow, she is looking so good!
# 13 Jun at 8:54 pm
AHHHHHHHHHHHHHHHH she is TOO cute!! I just wanna give her a big cuddle and kisses. I’m the proudest Aunty in the world!! Praise God – He is good good good!
# 13 Jun at 9:01 pm
These photos should be enlarged and framed! What progress. Keep it up Aria. I wonder what she thinks about the taste of food and the act of swallowing. Congratulations Hamish and Anita for your perserverance.
# 13 Jun at 9:10 pm
It’s awesome to see her smile! 🙂 Good Job Aria at eating! I pray she has more days like this! God Bless!
# 13 Jun at 9:16 pm
Lovely photos 🙂 Aria is looking fabulous! Keep up the good work Aria 🙂
# 13 Jun at 9:24 pm
How amazing, such progress towards wellbeing for little Aria, at last. You must be so relieved and thankful.
Thinking of you all often.
# 13 Jun at 9:31 pm
Wonderful! Wonderful!
# 13 Jun at 9:48 pm
The master physician guided the hand – profound indeed.
# 13 Jun at 9:57 pm
Yay cool photos. She a new girl now without all those attachemnts and eating!!!!! big high five for that! praying for yoyu all
# 13 Jun at 10:10 pm
Aria is looking great. Keep it up girl! How is Asher doing?
# 13 Jun at 10:17 pm
I havn’t posted on here before but have been following the blog from the beginning. Today when I read it and saw those lovely photos I just felt so pleased for you and Aria. You must be feeling awesome! Thanks be to God!
# 13 Jun at 10:36 pm
I can’t believe it – this is soooo awesome – and i so love her pigtails = beautiful miracle
# 13 Jun at 10:40 pm
I can ‘hear’ the thrill you are experiencing from all this – so glad for you all 🙂
# 13 Jun at 11:09 pm
YAYE!!!!
God is so good 🙂 🙂 🙂
# 13 Jun at 11:14 pm
Only 5pm here in Auck & what a massive response to this update, plus more kiwis probably still yet to readd & SEE the good news.
Those pics spoke a million words, created a million goosebumps amidst tears of happiness.
WHAT A DAY OF CELEBRATION. A bowl of soup in front of her, spoon to her mouth & she swallows whooppee. Just so awesome & almost speechless.
This day has finally come. Well guys you better get used to sharing food, buying an extra ice cream etc & not just for taste It will be consumed. Wow so happy for you all.
Aria looks so perfect at mastering the task of eating as if she has always done it. Clever girl, you leave us spell bound & so proud.
Long may it continue
Love & blessings to you all….what a milestone
# 13 Jun at 11:14 pm
Wow I feel quite emotional seeing these awesome photos today. Such a little miracle. And the difference between all those meds and today – wow! I celebrate God’s goodness with you guys!
# 13 Jun at 11:24 pm
Absolutely wonderful photos!! Thanks so much for sharing these with us. I told Bev too and she said “Oh wow!!” Praise God for His goodness. Looking forward to Miss Aria’s voiced opinion about eating. She always has something profound to say 🙂 Happy along with you all. Praying for continued positive progress.
# 13 Jun at 11:28 pm
What a wonderful update. I am so pleased that Aria is doing so well.
# 14 Jun at 12:00 am
Wow, awesome photos/news!! Aria, you are doing so well! So good to be able to eat. Praise God 🙂
# 14 Jun at 1:11 am
We are so thrilled for you. Blessings Marianne
# 14 Jun at 1:43 am
Once again looking at Aria’s photos I find it hard to see through the tears, but these are HAPPY tears. Thankyou Lord for this wonderful progress.
# 14 Jun at 2:08 am
Praise the Lord for His healing hand has indeed been busy(about TEN steps forward I’d say). Beautiful smile and eating at last. Praying for continuation of improvements. Blessings to ypu all.
Judy.
# 14 Jun at 2:37 am
We can’t believe how cute Aria looks in these latest photos – go girl you are doing really well – New Zealanders love you.
# 14 Jun at 2:41 am
Beautiful!!
# 14 Jun at 2:42 am
Such an encouraging blog today, had to read it three times today (seperate times). Still praying for Gods work in all.
# 14 Jun at 2:53 am
Wow!!!! Amazing Aria!!! Those are the most beautiful photos I have ever seen. They brought tears to my eyes. Following Aria and her family has been a special privilege. Thank you for sharing these photos with us. Stay strong all of you. You have impacted so many peoples lives with your spirit, determination and faith. God Bless.
# 14 Jun at 3:14 am
Yay! Awesome news and super gorgeous photos! Go Princess Aria!! 🙂 much love sent your way xxx
# 14 Jun at 3:29 am
Gorgeous photos of Aria – Great news!!
# 14 Jun at 3:42 am
Fantasitc pictures of Aria, thank you for sharing them with us. Just lovely to see her looking so well and making progress.
# 14 Jun at 3:48 am
Now 9.45pm nz. Just had to come back & reread & relook tho that pic of Miracle Aria with the spoon to her mouth it etched in my mind & I thought of her every mouthful I took at dinner time….oh what we take for granted. Yet little Aria HAS GRADUATED to.
Go little miracle.
Surely the number of comments must be a record to???!!! I’ve followed from beginning but don’t think I’ve seen so many before, even tho I’ve only starting posting since you leaving NZ. At this rate & pace hope we can welcome you all back soon….sorry America they are ours haha!!
Double celebration in the winds….Birthday & Graduation???
The next big miracle would be a pic of the 4 of you eating together as a family..wow!!
Blessings & love to you all
# 14 Jun at 5:18 am
AMAZING!! What a long road she has had to hoe and what an incredible journey she has made, it just goes to show how resilient a tiny body can be, to go through the treadmill and come out the other side. Onwards and upwards Aria!!! Thank goodness you had parents who believed in you!!
# 14 Jun at 5:48 am
I too had to have another look at those beautiful photos of your amazing little princess before I go to bed. Have another amazing day tomorrow. Blessings,
Judy.
# 14 Jun at 6:04 am
Great is they faithfulness o God our Father!!!!!! thanks so much Anita and Hamish for great pics of Aria, yeah great story amene.
God is before you behind you all around you inside of you all!!!!!!!lots of hugs and blessings upon you family, praise God!!!
# 14 Jun at 3:32 pm
What a wonderful day! Aria is looking so well and so bright and happy. We serve an awesome God and He has blessed Aria and her family with a brilliant team of doctors and nurses. Thank you Lord that even simple little things we take for granted are huge MIRACLES for this family. Bless you all xoxox
# 14 Jun at 3:45 pm
Beautiful pics 🙂 so pleased to hear that Aria is doing so well and just love the smile xo
# 14 Jun at 4:09 pm
im lovin these photos. you are a star aria!! looks like you enjoyed your soup. im so happy for you all, Anita and Hamish your incredible determination and love for aria is a credit too and a huge part of getting her to where shes at.
# 14 Jun at 4:52 pm
Cool photos!! Thanks 🙂
# 14 Jun at 7:18 pm
EATING! YA-hooooo!
And smiling!
What a fantastic wee girl and what a fantastic family.
Lots of love to you all.
Liz, Steve, Isla, Callum & Hamish Paterson
# 14 Jun at 9:22 pm
Wow, she looks just gorgeous! So great to see these progress photo’s….I think it makes your journey all the more real and personable to us. PTL!
# 14 Jun at 9:55 pm
Great photos. She is doing so well. Hope your little man is feeling better too.
# 14 Jun at 10:29 pm
Oh….THANK YOU for posting these!!! I can go to bed rejoicing, and thanking God for the work He is doing in sweet little Aria’s life! I can’t wait to see this precious face in person!!!! (as well as 3 others…..) 😉
# 15 Jun at 3:58 am
TINO ATAAHUA E HOA, Very beautiful my friend
Wwat a pleasure to see Aria so alert and less so many attachments, you have a very strong little girl. Keep up the good work all of you, you are all doing a fantastic job
Love n Hugs
Jacqui, Kavahn and Jaedah-Leah
xox
# 15 Jun at 5:53 am
Oh the journey you have all travelled to get to point is just overwhelming and amazing. Miracles are special and you have one in Princess Aria. I have tears rolling down my face as I type this. Tears of joy. Xxxx
# 15 Jun at 6:28 am
I am so glad this post is still up. I keep re-visiting it every few hours to see Bubble! It makes me SO happy to see her this way – smiling again. I know there is still a long way to go, but this is such amazing progress. Incredible! I am so very proud of all of you. And of course of Aria! 🙂
# 16 Jun at 2:36 am
Thank you for sharing this most thrilling event! What a wonderful day for you all. So pleased Aria has come so far, it is truly incredible!