Lines….
Well Aria cultured some more of the seemingly ever present Pseudomonas in her blood cultures so they are back to banging that old drum. They aren’t convinced this is what has been causing her daily temperature spike but they do need to treat it.
To this end they have restarted her antibiotic that we know the Pseudomonas hasn’t been resistant to, even though it messes with her precious kidneys. They have also removed both her central line and dialysis catheter just in case some of the Pseudomonas had taken up residence in them.
This meant however she needed a peripheral IV inserted into her arm, and a trip to theater first thing this morning to have a new dialysis catheter inserted. She was very brave getting her new IV inserted and the PA that did it was AWESOME at getting it in. She is REALLY, REALLY good at it which is nice because Aria’s veins can be super tricky.
Highlight of the day was being able to take Aria to the movie night Child Life put on to watch Planet 51. She and Asher sat next to each other and shared a packet of popcorn and held hands for a bit. She seemed pretty into the movie and generally enjoyed another opportunity to get out of her room.
The next big challenge is getting her up on her feet again. Given how long it took for her to decide she wanted to walk to start with, we wonder how she will embrace getting back to walking. Oh well, the fact we are even discussing it can only be a good thing.
Please pray for her breathing, kidneys, infections and standing. These are the obstacles ahead of us which prevent us getting home and we would really like to get her here.
7 Responses to “Lines….”
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From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 18 Jun at 6:26 am
Many prayers, positive thoughts and best wishes are happening. I can imagine they looked adorable watching the movie together with popcorn in tow. Hope the B’day celebrations go well xxxx
# 18 Jun at 7:06 am
Sorry about the little bump in the road but Aria will bounce right back as always. Glad they caught it so soon.Praying always for the needs and thanks for the blessings. So happy Aria and Asher can enjoy the fun things.
# 18 Jun at 1:55 pm
Stoked to hear that Aria got to go to the child life movie night!! I love that her and Boomie are getting to hang together more – they must miss each other. Sucks missing your sibling. Will continue to pray for Aria’s wee kidneys (nice pun if I do say so myself) – thank you for keeping us in the loop with specific prayer requests. Love you all a ridiculous amount – please give the kids kisses and hugs for me – and I hope one or both of you has been playing hiding with Boomie 🙂 Fruit snacks for life!!
# 18 Jun at 3:24 pm
We’ve been rejoicing with you at all the awesome positives and will continue to pray that these negatives turn out to be non events. What a brave little girl Aria is, and what an amazing Mum and Dad she has. I remember this morning that God doesnt waste any experiences that we have. May there be many more like the movie in the short and long term future. God Bless you all.
# 19 Jun at 1:32 am
praying for Aria
and how special going to the movies
so cute
the stuff good memories are made of
# 19 Jun at 9:38 am
Always always praying for miss Aria 🙂
# 19 Jun at 3:23 pm
I’m sure Aria enjoyed getting away for a little bit, & having fun! Hopefully those nasty bugs won’t get into her system again! Have a great day! God Bless!